Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what discussions his Department has had since the publication of the Final Delivery Plan for ME/CFS regarding the commissioning of a specialised service for people with very severe ME/CFS.

Our ME/CFS Final Delivery Plan, published in July 2025, includes an action for the Department of Health and Social Care and NHS England to explore whether a specialised service should be prescribed by my Rt Hon. Friend, the Secretary of State for Health and Social Care, for very severe myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).

The third and final session in NHS England’s ME/CFS e-learning series, Managing Severe ME/CFS, is now live on the NHS Learning Hub. This session provides practical, evidence-based guidance to support people living with severe and very severe ME/CFS, and has universal access. There is also an additional version of this module, which is only available to healthcare professionals, and includes clinical guidance on severe and very severe ME/CFS.

NHS England has already started its work on co-designing resources, including a ‘template service specification’ for mild/moderate ME/CFS services, to support systems to improve services for mild and moderate ME/CFS. NHS England and the Department of Health and Social Care have met with a group of key stakeholders to move this work on. This template will now include reference to severe ME/CFS.