Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what steps his department are taking to improve the reliability of ME/CFS diagnosis tests.

We have outlined our approach to supporting myalgic encephalomyelitis, also known as chronic fatigue syndrome (ME/CFS), research in the ME/CFS Final Delivery Plan published in July. These steps include a research showcase event, a new funding opportunity for a development award focussed on evaluating repurposed pharmaceutical interventions, and the announcement of new funded studies in health and care services, and research infrastructure and capacity-building.

We are determined to accelerate progress in the treatment and management of ME/CFS and will continue working with the ME/CFS community to identify and address barriers to research, with the ambition of supporting more research and capacity-building programmes.

The National Institute for Health and Care Research (NIHR) and Medical Research Council have provided over £3.2 million towards the DecodeME study which aims to understand if there is a genetic component to the condition. While there is currently no diagnostic test for ME/CFS, we hope that DecodeME will help support the development of diagnostic tests and targeted treatments. Preliminary findings from DecodeME indicate genetic differences in eight areas linked to the immune and nervous systems in people with ME/CFS. This discovery of specific genetic signals may help us understand the biological pathways involved in ME/CFS in the future. Further research is needed for the development of diagnostic tests and targeted treatments.

The Department funds research through the NIHR. The NIHR welcomes funding applications for research into any aspect of human health and care, including ME/CFS and the development of diagnostic tests. Research funding is available, and applications are subject to peer review and judged in open competition, with awards made on the basis of the importance of the topic to patients and health and care services, value for money, and scientific quality.