Question to the Department for Work and Pensions:

To ask the Secretary of State for Work and Pensions, what discussions he has had with the Secretary of State for Business and Trade on the adequacy of financial support for parents of critically and terminally ill children.

My right hon. Friend the Secretary of State regularly meets with colleagues across Government to discuss a range of issues.

Many parents caring for children and young people with serious illnesses are likely to need additional support through social security. Financial support is available through Universal Credit (UC), a means tested benefit, which if needed, can offer support available on day one through a UC advance. There is also Disability Living Allowance (DLA) for children aged under 16 and Personal Independence Payment (PIP) for those over 16. They are available if a child or young person’s condition or illness is of a long-term nature and gives rise to care, daily living or mobility needs. These are not means-tested.

For claimants at the end of life, the Government’s priority is to provide financial support quickly and compassionately through special benefit rules – called the Special Rules for End of Life (SREL). For parents with children nearing the end of life these enable families to get faster, and guaranteed, access to the care component of DLA or the daily living components of PIP, without having to undergo a functional assessment or serve a qualifying period.

People caring for a child in these circumstances can use an independent, free and anonymous benefits calculator to check what they could be entitled to. These are available on Gov.uk and provide estimates of the benefits someone could get, how these payments are affected by re-starting work or by a change in circumstances change.