Question to the Department of Health and Social Care:

To ask Her Majesty's Government who authorised NHS England's scheme to allow people to pay to have their genes sequenced on the condition that they share their data.

The second Life Sciences Sector Deal, published by the Government in December 2018, announced that Genomics England will undertake development work on a new service to enable volunteers to pay for a personalised report on their unique genetic makeup.

Genomics England are in the early stages of developing the scheme, working with patient groups and the public as well as key partners, including the National Health Service.

It will be developed in line with the founding principles of the NHS and established to the highest ethical standards.