Rare Diseases: Medical Treatments

(asked on 27th April 2023) - View Source

Question to the Department of Health and Social Care:

To ask His Majesty's Government, with reference to the England Rare Diseases Action Plan 2022, whether NHS England still plans to assess and publish a report on levels of uptake of rare disease treatments, in addition to the highly specialised services annual report.


Answered by
Lord Markham Portrait
Lord Markham
Parliamentary Under-Secretary (Department of Health and Social Care)
This question was answered on 11th May 2023

NHS England’s specialised commissioning team has assessed the levels of uptake of rare disease treatments and presented the results to the last meeting of the NHS England Rare Diseases Advisory Group in April 2023. NHS England currently have no plans to publish the report.

Reticulating Splines