Rare Diseases

(asked on 10th June 2025) - View Source

Question to the Department of Health and Social Care:

To ask His Majesty's Government whether they have made an assessment of the impact of the abolition of NHS England on people with rare conditions.


Answered by
Baroness Merron Portrait
Baroness Merron
Parliamentary Under-Secretary (Department of Health and Social Care)
This question was answered on 24th July 2025

Working under the UK Rare Diseases Framework, the Government is committed to improving the lives of those living with rare diseases.

Ministers and senior Departmental officials are working with the new executive team at the top of NHS England, led by Sir Jim Mackey, to lead the formation of a new joint centre. Whilst this transformation takes place, we will ensure that we continue to evaluate impacts and work collaboratively to ensure continuity of care and that there are no risks to patient safety.

Reticulating Splines