Question to the Department of Health and Social Care:

To ask His Majesty's Government whether they have made an assessment of the impact of the reintegration of NHS England on the delivery of the National Congenital Anomaly and Rare Disease Registration Service.

Working under the UK Rare Diseases Framework, the Government is committed to improving the lives of those living with rare diseases. Digital data and technology are an underpinning theme of the framework. We acknowledge the important role of the National Congenital Anomaly and Rare Disease Registration Service, part of the National Disease Registration Service, play in underpinning the delivery of England’s rare diseases action plans. Ministers and senior Departmental officials are working with the new executive team at the top of NHS England, led by Sir Jim Mackey, to lead the formation of a new joint centre. The important role of the National Disease Registration Service will be considered as part of future plans. Whilst this transformation takes place, we will ensure that we continue to evaluate impacts and work collaboratively to ensure continuity of care and that there are no risks to patient safety.