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Scottish Government Publication (Transparency data)
Marine Directorate

Jan. 03 2024

Source Page: Fish Health Inspectorate: mortality information
Document: Mortality information - until end November 2023 (Excel)

Found: sealice treatment.FHI to monitor situation2016MRT00274Howietoun FisheryFB0151Buckieburn Freshwater Research

Non-Departmental Publication (Guidance and Regulation)
Medicines and Healthcare products Regulatory Agency

Dec. 22 2023

Source Page: Medicines: packaging, labelling and patient information leaflets
Document: always read the leaflet - getting the best information with every medicine (PDF)

Found: catastrophic, eg those killing many people at once in one place, are feared more than those that are chronic

Non-Departmental Publication (Transparency)
Medicines and Healthcare products Regulatory Agency

Dec. 21 2023

Source Page: Freedom of Information responses from the MHRA - week commencing 4 July 2022
Document: FOI-22-745-2 (PDF)

Found: Capillary Leak Syndrome The MHRA has received 17 reports of suspected capillary leak syndrome (a

Non-Departmental Publication (Transparency)
Medicines and Healthcare products Regulatory Agency

Dec. 21 2023

Source Page: Freedom of Information responses from the MHRA - week commencing 4 July 2022
Document: FOI-22-745-1 (PDF)

Found: Old er age and chronic underlying illnesses make it more likely that coincidental adverse events will

Non-Departmental Publication (Statistics)
Public Health England (PHE)

Dec. 11 2023

Source Page: SACN vitamin D and health report
Document: SACN vitamin D and health report (PDF)

Found: characterised by symptoms of depression, anxiety, irritability, appetite changes, hypersomnia and fatigue

Scottish Government Publication (Research and analysis)
Chief Operating Officer, NHS Scotland Directorate

Dec. 08 2023

Source Page: Endometriosis: lived experience insight report 2023
Document: Endometriosis: Lived Experience Insight Report 2023 (PDF)

Found: One of the symptoms not commonly spoken about is the fatigue associated with endometriosis.

Departmental Publication (Transparency)
Ministry of Defence

Dec. 06 2023

Source Page: FOI responses published by MOD: week commencing 4 December 2023
Document: Latest version of JSP 950 (PDF)

Found: Chronic fatigue syndrome and associated disorders 12.

Written Question
Chronic Fatigue Syndrome: Research
Tuesday 5th December 2023

Asked by: John McDonnell (Labour - Hayes and Harlington)

Question to the Department for Science, Innovation & Technology:

To ask the Secretary of State for Science, Innovation and Technology, what steps her Department is taking to help facilitate research into the (a) causes and (b) treatment of Myalgic Encephalomyelitis.

Answered by Andrew Griffith - Minister of State (Department for Science, Innovation and Technology)

Since 2012, UK Research and Innovation (UKRI)’s Medical Research Council (MRC) has awarded £6.2 million for research on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). This includes DecodeME, a significant strategic initiative co-funded by the National Institute of Health and Care Research in 2020, which aims to find genetic causes of ME/CFS in order to better understand the disease and ultimately to find treatments.

The Government works with the ME/CFS Priority Setting Partnership to identify research priorities in this area and MRC has an open highlight notice to encourage ME/CFS research.

Written Question
Chronic Fatigue Syndrome: Research
Tuesday 5th December 2023

Asked by: John McDonnell (Labour - Hayes and Harlington)

Question to the Department for Science, Innovation & Technology:

To ask the Secretary of State for Science, Innovation and Technology, what assessment she has made of the potential merits of increasing public funding for research into Myalgic Encephalomyelitis.

Answered by Andrew Griffith - Minister of State (Department for Science, Innovation and Technology)

Since 2012, UK Research and Innovation (UKRI)’s Medical Research Council (MRC) has awarded £6.2 million for research on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). This includes DecodeME, a significant strategic initiative co-funded by the National Institute of Health and Care Research in 2020, which aims to find genetic causes of ME/CFS in order to better understand the disease and ultimately to find treatments.

The Government works with the ME/CFS Priority Setting Partnership to identify research priorities in this area and MRC has an open highlight notice to encourage ME/CFS research.

Departmental Publication (Statistics)
Department for Education

Nov. 30 2023

Source Page: Children of the 2020s: first survey of families at age 9 months
Document: Cot20s wave 1: technical report (PDF)

Found: Three or more times -99 Don’t know -98 Prefer not to say Chronic health problems Chronic health