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Scottish Government Publication (Research and analysis)
Chief Operating Officer, NHS Scotland Directorate

Dec. 08 2023

Source Page: Endometriosis: lived experience insight report 2023
Document: Endometriosis: Lived Experience Insight Report 2023 (PDF)

Found: Endometriosis: lived experience insight report 2023


Scottish Government Publication (Research and analysis)
Chief Operating Officer, NHS Scotland Directorate

Dec. 08 2023

Source Page: Endometriosis: lived experience insight report 2023
Document: Endometriosis: lived experience insight report 2023 (webpage)

Found: Endometriosis: lived experience insight report 2023


Scottish Government Publication (FOI/EIR release)
Chief Medical Officer Directorate

Feb. 01 2024

Source Page: Women's Health Plan and Endometriosis Advisory Group meetings: FOI release
Document: Women's Health Plan and Endometriosis Advisory Group meetings: FOI release (webpage)

Found: Women's Health Plan and Endometriosis Advisory Group meetings: FOI release


Written Question
Endometriosis: Diagnosis
Thursday 21st March 2024

Asked by: Anneliese Dodds (Labour (Co-op) - Oxford East)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what steps her Department is taking to reduce the time taken for endometriosis diagnoses.

Answered by Maria Caulfield - Parliamentary Under Secretary of State (Department for Business and Trade) (Minister for Women)

Care for menstrual problems including endometriosis is a 2024 priority for implementing the Women’s Health Strategy. We are investing £25 million in establishing women’s health hubs, which will play a key role in improving access to care for menstrual problems such as suspected endometriosis.

Through the NHS Delivery Plan for tackling the COVID-19 related elective care backlog, we are increasing activity through dedicated and protected surgical hubs that conduct planned procedures only. Surgical hubs are focusing on providing high-volume low-complexity surgery such as laparoscopies for suspected endometriosis. As of March 2024, 48 surgical hubs conduct gynaecological procedures.

Community diagnostic centres (CDCs) are playing an important part in tackling the backlogs of people waiting for diagnostic tests, which includes checks, tests, and scans for patients on gynaecological pathways, including those with endometriosis. As of March 2024, there are 155 CDCs open already, and up to 160 set to open by March 2025.

The National Institute for Health and Care Excellence is currently updating its guideline on diagnosing and managing endometriosis, which will provide healthcare professionals with evidence-based recommendations on diagnosing and treating endometriosis. NHS England is also updating the service specification for severe endometriosis, which sets the standards of care expected from National Health Service organisations.


Written Question
Endometriosis: Diagnosis
Tuesday 26th March 2024

Asked by: Ian Byrne (Labour - Liverpool, West Derby)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what steps she is taking to reduce the average time taken for an endometriosis diagnosis.

Answered by Maria Caulfield - Parliamentary Under Secretary of State (Department for Business and Trade) (Minister for Women)

Care for menstrual problems including endometriosis is a 2024 priority for implementing the Women’s Health Strategy. We are investing £25 million in establishing women’s health hubs, which will play a key role in improving access to care for menstrual problems including suspected endometriosis.

Through the NHS Delivery Plan for tackling the COVID-19 backlog of elective care, we are increasing activity through dedicated and protected surgical hubs that conduct planned procedures only. Surgical hubs are focusing on providing high-volume low-complexity surgery such as laparoscopies for suspected endometriosis. As of March 2024, 48 surgical hubs conduct gynaecological procedures.

Community diagnostic centres (CDCs) are playing an important part in tackling the backlogs of people waiting for diagnostic tests, which includes checks, tests, and scans for patients on gynaecological pathways, including those with endometriosis. As of March 2024, there are 155 CDCs open already, and up to 160 set to open by March 2025.

The National Institute for Health and Care Excellence is currently updating its guideline on diagnosing and managing endometriosis, which will provide healthcare professionals with evidence-based recommendations on diagnosing and treating endometriosis. NHS England is also updating the service specification for severe endometriosis, which sets the standards of care expected from National Health Service organisations.


Written Question
Endometriosis
Friday 8th December 2023

Asked by: Kate Osamor (Independent - Edmonton)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what assessment she has made of the adequacy of mental health support for people with endometriosis.

Answered by Maria Caulfield - Parliamentary Under Secretary of State (Department for Business and Trade) (Minister for Women)

We are investing at least £2.3 billion of additional funding a year by March 2024 compared to 2018/19 to expand and transform mental health services in England so that two million more people including those with endometriosis can get the mental health support that they need.

The National Institute for Health and Care Excellence (NICE) guideline on endometriosis recognises that endometriosis can have a significant physical, sexual, psychological, and social impact and that people with endometriosis may have complex needs and require long-term support. NICE currently recommends assessment of the individual support needs of people with suspected of confirmed endometriosis, considering their circumstances, symptoms, priorities, desire for fertility, aspects of daily living, work and study, cultural background, and their physical, psychosexual and emotional needs.


Written Question
Endometriosis: Health Services
Tuesday 26th March 2024

Asked by: Ian Byrne (Labour - Liverpool, West Derby)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, with reference to the Women's Health Strategy for England, updated on 30 August 2022, what recent assessment she has made of the adequacy of progress on the 10-year ambition that women and girls with severe endometriosis experience better care.

Answered by Maria Caulfield - Parliamentary Under Secretary of State (Department for Business and Trade) (Minister for Women)

No specific assessment has been made. Care for menstrual problems including endometriosis is a 2024 priority for implementing the Women’s Health Strategy. We are investing £25 million in women’s health hubs, so that women can get better access to care for menstrual problems, including women with suspected or diagnosed endometriosis.

The National Institute for Health and Care Excellence (NICE) is in the process of updating its recommendations on diagnosing endometriosis, and surgical management of endometriosis if fertility is a priority. The NICE will provide information on the expected publication date of its final guidance in due course.

Additionally, NHS England is updating the service specification for severe endometriosis, which defines the expected standards of care. This update will ensure that specialist endometriosis services have access to the most up-to-date evidence and advice, and will improve standards of care for women with severe endometriosis.


Written Question
Endometriosis
Thursday 30th November 2023

Asked by: Navendu Mishra (Labour - Stockport)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what steps her Department has taken to (a) improve (i) understanding and (ii) awareness of endometriosis in the NHS and (b) ensure that women with endometriosis are (A) diagnosed and (B) treated efficiently.

Answered by Maria Caulfield - Parliamentary Under Secretary of State (Department for Business and Trade) (Minister for Women)

The Women’s Health Strategy sets out our ambitions for all healthcare professionals to be well informed about women’s health and supported to provide women with the best care possible.

Women’s health is a core competency for general practitioners (GPs) and is included in the Royal College of General Practitioners’ (RCGP) curriculum for trainee GPs. The RCGP has developed a ‘Women’s Health Library’, which brings together educational resources and guidelines on women’s health topics.

The General Medical Council will introduce the Medical Licensing Assessment from the academic year 2024/2025. This includes women’s health topics such as endometriosis, encouraging a better understanding of endometriosis for doctors starting their careers.

We are improving access to diagnosis and treatment services for women with endometriosis. We are investing £25 million in women’s health hubs to improve women’s access to essential services for menstrual problems and more. We are also increasing activity through dedicated and protected surgical hubs that conduct planned procedures only. Surgical hubs are focusing on providing high-volume low-complexity surgery such as laparoscopies for suspected endometriosis.

NHS England is also updating the service specification for severe endometriosis, which defines the expected standards of care. The updated service specification is expected to be published before the end of March 2024.


Written Question
Endometriosis
Friday 8th December 2023

Asked by: Kate Osamor (Independent - Edmonton)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, whether her Department has made an assessment of the level of awareness of endometriosis among doctors.

Answered by Maria Caulfield - Parliamentary Under Secretary of State (Department for Business and Trade) (Minister for Women)

The Women’s Health Strategy sets out our ambitions for all healthcare professionals to be well informed about women’s health, and supported to provide women with the best care possible.

Women’s health is a core competency for general practitioners (GPs) and is included in the Royal College of General Practitioners’ (RCGP) curriculum for trainee GPs. The RCGP has developed a ‘Women’s Health Library’, which brings together educational resources and guidelines on women’s health topics including on endometriosis.

The General Medical Council will introduce the Medical Licensing Assessment from the academic year 2024/2025. This includes women’s health topics such as endometriosis, encouraging a better understanding of endometriosis for doctors starting their careers.


Written Question
Endometriosis: Medical Treatments
Thursday 11th January 2024

Asked by: Claire Hanna (Social Democratic & Labour Party - Belfast South)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what recent assessment she has made of the adequacy of the availability of treatment for women with endometriosis.

Answered by Maria Caulfield - Parliamentary Under Secretary of State (Department for Business and Trade) (Minister for Women)

No specific assessment has been made. Menstrual health and gynaecological conditions, including endometriosis, is a priority in the Women’s Health Strategy. We are investing £25 million in women’s health hubs, so that women can get better access to care for menstrual problems, including women with suspected or diagnosed endometriosis.

The National Institute for Health and Care Excellence (NICE) is updating its recommendations on diagnosing endometriosis and surgical management of endometriosis if fertility is a priority. NICE will provide information on the expected publication date of its final guidance in due course.

Additionally, NHS England is updating the service specification for severe endometriosis, which defines the expected standards of care. This update will ensure that specialist endometriosis services have access to the most up-to-date evidence and advice and will improve standards of care for women with severe endometriosis.