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Non-Departmental Publication (Statistics)
NHS England

Jun. 08 2023

Source Page: Q3 KPI Screening Data (1 October to 31 December)
Document: (ODS)

Found: offer of prenatal diagnosis (PND) to women at risk of having an infant with sickle cell disease or thalassaemia


Non-Departmental Publication (Statistics)
NHS England

Jun. 08 2023

Source Page: Q3 KPI Screening Data (1 October to 31 December)
Document: (Excel)

Found: coverage: antenatal screeningThe proportion of pregnant women eligible for antenatal sickle cell and thalassaemia


Departmental Publication (Transparency)
Home Office

Apr. 24 2023

Source Page: Non-technical summaries granted in 2022
Document: Non-technical summaries: projects granted in 2022, July to December (PDF)

Found: disease indications including correction of the mutations such as those causing forms of anaemia (e.g. thalassaemia


Departmental Publication (Transparency)
Home Office

Apr. 24 2023

Source Page: Non-technical summaries granted in 2022
Document: Non-technical summaries: projects granted in 2022, January to June (PDF)

Found: Genetic abnormalities may be parentally inherited e.g. mutations causing thalassaemia, a disease of


Non-Departmental Publication (Statistics)
NHS England

Mar. 23 2023

Source Page: Q1 (1 April to 30 June 2022) ANNB and YPA screening KPI data
Document: (ODS)

Found: offer of prenatal diagnosis (PND) to women at risk of having an infant with sickle cell disease or thalassaemia


Non-Departmental Publication (Statistics)
NHS England

Mar. 23 2023

Source Page: Q1 (1 April to 30 June 2022) ANNB and YPA screening KPI data
Document: Q1 (1 April to 30 June 2022) ANNB and YPA screening KPI data (webpage)

Found: (NBS) screening programme, NHS newborn hearing screening programme (NHSP), and NHS sickle cell and thalassaemia


Non-Departmental Publication (Statistics)
NHS England

Mar. 23 2023

Source Page: Q1 (1 April to 30 June 2022) ANNB and YPA screening KPI data
Document: (ODS)

Found: timeliness of antenatal screening The proportion of pregnant women having antenatal sickle cell and thalassaemia


Written Question
Sickle Cell Diseases: Training
Friday 17th March 2023

Asked by: Janet Daby (Labour - Lewisham East)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, if he will make an assessment of the potential impact of redeploying staff to other parts of country on the ability of medical students to participate in sickle cell specialist practical training.

Answered by Neil O'Brien

No specific assessment has been made and there are no plans to do so. The standard of training for health care professionals is the responsibility of the health care independent statutory regulatory bodies such as the General Medical Council, the Nursing and Midwifery Council and Health and Care Professions Council, which are independent statutory bodies. These have the general function of promoting high standards of education and co-ordinating all stages of education to ensure that health and care students and newly qualified healthcare professionals are equipped with the knowledge, skills and attitudes essential for professional practice.

The healthcare regulators set the standards expected at undergraduate level and approve courses. In so doing, they play an important role in setting out the knowledge, skills and behaviours that healthcare professionals must be able to demonstrate. The Higher Education Institutes write and teach the curricula content that enables their students to meet the regulators standards.

Recent improvements have been made to the postgraduate haematology medical curriculum, with understanding sickle cell disease and thalassemia now described in the curriculum as core competencies.

Additional training is also available for medical trainees across England to receive specialist training to treat people with sickle cell disease. This includes an e-learning programme delivered by Health Education England which has specific courses such as the NHS Screening Programme and includes the Sickle Cell and Thalassaemia Screening Programme.


Written Question
Sickle Cell Diseases: Health Services
Tuesday 14th March 2023

Asked by: Janet Daby (Labour - Lewisham East)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what assessment his Department has made of the ability of NHS staff to identify when a patient is undergoing a Sickle Cell crisis.

Answered by Neil O'Brien

No assessment has been made. NHS England and Health Education England (HEE) have invested in raising awareness of sickle cell disease amongst medical staff. NHS England’s Health Inequalities improvement team launched a sickle cell awareness campaign ‘Can you tell it’s sickle cell’ in June 2022 and continues to promote and monitor its reach. A sickle cell disorder e-learning resource has also been developed and is now available across the National Health Service.

There have been recent improvements to the haematology medical curriculum, with understanding sickle cell and thalassaemia now described in the curriculum as core competencies. HEE has additionally held discussions with the Royal Colleges of Pathology and Physicians to ensure that this curriculum is deliverable across all four nations, in line with General Medical Council standards.

In addition to the above e-learning, HEE now provides two ‘e-Learning for healthcare’ programmes with sickle cell content, NHS Screening Programmes, including the Sickle Cell and Thalassaemia Screening Programme and the Maternity Support Worker Programme.


Written Question
Sickle Cell Diseases: Health Services
Tuesday 14th March 2023

Asked by: Janet Daby (Labour - Lewisham East)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what steps his Department is taking to increase awareness of Sickle Cell amongst healthcare professionals outside of London.

Answered by Neil O'Brien

No assessment has been made. NHS England and Health Education England (HEE) have invested in raising awareness of sickle cell disease amongst medical staff. NHS England’s Health Inequalities improvement team launched a sickle cell awareness campaign ‘Can you tell it’s sickle cell’ in June 2022 and continues to promote and monitor its reach. A sickle cell disorder e-learning resource has also been developed and is now available across the National Health Service.

There have been recent improvements to the haematology medical curriculum, with understanding sickle cell and thalassaemia now described in the curriculum as core competencies. HEE has additionally held discussions with the Royal Colleges of Pathology and Physicians to ensure that this curriculum is deliverable across all four nations, in line with General Medical Council standards.

In addition to the above e-learning, HEE now provides two ‘e-Learning for healthcare’ programmes with sickle cell content, NHS Screening Programmes, including the Sickle Cell and Thalassaemia Screening Programme and the Maternity Support Worker Programme.