Alysha's experience is all too common. Patients with #SickleCell have suffered for too long. As Chair of the Sickle Cell & Thalassaemia APPG I will continue to campaign so that all the recommendations of the APPG's report are implemented in full. 1/2 https://t.co/xIBGMoUQNR
Feb. 16 2023
Source Page: A phase 1/2/3, placebo-controlled, randomized, observer-blind, dose-finding study to evaluate the safety, tolerability, immunogenicity, and efficacy of SARS-CoV-2 RNA vaccine candidates against COVID-19 in healthy individuals. (3 docs).Found: cell trait 0 3 (0.3) Spina bifida occulta 1 (0.1) 0 Strabismus congenital 1 (0.1) 0 Talipes 1 (0.1) 0 Thalassaemia
Asked by: Baroness Benjamin (Liberal Democrat - Life peer)
Question to the Department of Health and Social Care:
To ask His Majesty's Government, further to the All Party Parliamentary Group for Sickle Cell and Thalassaemia report No One's Listening: An Inquiry into the Avoidable Deaths and Failures of Care for Sickle Cell Patients in Secondary Care, published on 15 November 2021, what assessment they have made of the impact of prescription charges for people with sickle cell disease.
Answered by Lord Markham - Parliamentary Under-Secretary (Department of Health and Social Care)
No specific assessment has been made and there are no current plans to review or extend the prescription charge medical exemptions list to include long term conditions, such as sickle cell disease.
Approximately 89% of prescription items are currently dispensed free of charge and there are a range of exemptions from prescription charges for which those with sickle cell disease may meet the eligibility criteria and be in receipt of free prescriptions. To support those who do not qualify for an exemption from prescription charges, the cost of prescriptions can be capped by purchasing a prescription pre-payment certificate, which can be paid for in instalments. A holder of a 12-month certificate can get all the prescriptions they need for just over £2 per week. Additionally, those on a low income who do not qualify for an exemption from prescription charges can also seek help under the NHS Low Income Service, which provides help with health costs on an income-related basis.
I am delighted to be supporting @teamukts on National Thalassaemia Day and raising awareness in Parliament #NTD2022 https://t.co/1frMQVohR7
Today is National Thalassaemia Day. Thank you to all those who have given blood. The NHS is reporting low blood stocks, so please consider giving blood if you can. https://t.co/dCEGHu1R82 https://t.co/apbqcWwJuZ
This National Thalassaemia Day I’m pleased to be supporting @teamukts and helping to raise awareness of thalassaemia in Parliament. We must continue to work for better services and treatment options for people living with thalassaemia in the UK and around the world. https://t.co/PCPRSvge2y
On National Thalassaemia Day I am proud to stand with the Chair of the Thalassaemia APPG @BambosMP and call for better services and treatment options for those with this condition. Thanks also to @teamukts for all the work they do in supporting families & professionals. https://t.co/lphliRN0EV
Delighted to be supporting @teamukts on national Thalassaemia day and raising awareness of Thalassaemia in Parliament https://t.co/ksln18uBe8
Asked by: Janet Daby (Labour - Lewisham East)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, whether her Department is taking steps to help ensure that medical trainees receive specialist practical training to treat people with sickle cell disease in (a) London and (b) the South East.
Answered by Robert Jenrick
Each medical school sets its own undergraduate curriculum, which must meet the standards set by the General Medical Council (GMC) in its Outcomes for Graduates. The GMC would expect that, in fulfilling these standards, newly qualified doctors are able to identify, treat and manage any care needed, including relating to sickle cell disease.
Recent improvements have also been made to the postgraduate haematology medical curriculum, with understanding sickle cell disease and thalassemia now described in the curriculum as core competencies.
Additional training is also available for medical trainees across England, including London and the South East, to receive specialist training to treat people with sickle cell disease. This includes an e-learning programme delivered by Health Education England which has specific courses such as the NHS Screening Programme and includes the sickle cell and thalassaemia Screening Programme.
As Chair of the Sickle Cell & Thalassaemia APPG I have stressed to @theresecoffey that health inequalities impacting Sickle Cell patients must be addressed. See below to view mine and @SickleCellUK calls for a national action plan for Sickle Cell patients ?? https://t.co/99JVILZJlu