First Registered: 30/07/2015 • Last updated on: 24/01/2024
To increase recognition and understanding of the Syndrome across policy makers and the medical profession. Eventually aiming for, once diagnosed, life-long health strategy for sufferers.
APPGs can register with Parallel Parliament and submit files and articles to be placed here.
Parallel Parliament offers the facility for APPGs to submit written content and files, which are made available through this page.
Submitters can draft and edit publications, and either release them on demand, or schedule release for a future date.
Both text content and attached files submitted through this facility is indexed by our website, and made available through both the search function and relevant e-mail alerts. Any of our users registered for an alert which matches your content, will receive a link making them aware of its publication.
If you wish to register as an authorised representative of the 22q11 Syndrome APPG and use this facility, click below
David Duguid MP, House of Commons, London, SW1A 0AA. Tel: 0207 219 2819.
Public Enquiry Point:
Julie Wootton, Max Appeal 15 Meriden Avenue, Stourbridge, West Midlands DY8 4QN. Tel: 0300 999 2211
Max Appeal acts as the group's secretariat. http://www.maxappeal.org.uk/