Down Syndrome APPG

First Registered: 02/06/2021 • Last updated on: 29/12/2021

Official Page

To campaign for equal access and provision to ensure equality and promote respect at all stages of life for people with Down syndrome.

Note: All-Party Parliamentary Groups (APPGs) are informal, cross-party groups formed by MPs and Members of the House of Lords who share a common interest in a particular policy area, region or country. APPGs have no official status within Parliament.


This content was generated for your convenience by Parallel Parliament and does not form part of the official record.
Recent Documents related to Down Syndrome

1. Screening for Down’s syndrome, Edwards’ syndrome and Patau’s syndrome: NIPT summary information
01/07/2021 - Public Health England (PHE)
- View source

Found: Screening for Down’s syndrome, Edwards’ syndrome and Patau’s syndrome: NIPT summary information

2. Screening tests for you and your baby: easy guides
19/06/2020 - Public Health England (PHE)
- View source

Found: Screening for Down™s syndrome, Edwards™ syndrome and Patau™s syndrome An easy guide to screening tests

3. Down’s syndrome, Edwards’ syndrome and Patau’s syndrome screening pathway requirements specification
21/06/2021 - Public Health England (PHE)
- View source

Found: Guidance Down’s syndrome, Edwards’ syndrome and Patau’s syndrome screening pathway requirements

4. Screening for Down’s syndrome, Edwards’ syndrome and Patau’s syndrome: non-invasive prenatal testing (NIPT)
26/04/2021 - Public Health England (PHE)
- View source

Found: Screening for Down’s syndrome, Edwards’ syndrome and Patau’s syndrome: non-invasive prenatal testing

5. Bill 17 EN 2021-22 - large print
17/11/2021 - Bill Documents

Found: Bill 1 7-EN [58/2] DOWN SYNDROME BILL EXPLANATORY NOTES What these notes do These Explanatory

Latest Documents
Recent Speeches related to Down Syndrome

1. Down Syndrome Awareness Month
22/10/2020 - Commons Chamber

1: mention a bit more later. This year’s theme for Down Syndrome Awareness Month is “what holds me back”, which - Speech Link
2: work to raise awareness of the needs of Down’s syndrome children in places such as Carshalton and Wallington - Speech Link
3: people across the UK and around the world mark Down Syndrome Awareness Month. Among other things, it is an - Speech Link

2. Down Syndrome Bill
26/11/2021 - Commons Chamber

1: I thank the role models for those with Down’s syndrome, particularly Tommy Jessop and Bethany Asher, - Speech Link

3. Down Syndrome Bill
26/11/2021 - Commons Chamber

1: in favour of the measures it contains. Down’s syndrome is a visible condition and the name will be familiar - Speech Link
2: for those with Down’s syndrome. This Bill will help people with Down’s syndrome and their families to - Speech Link

4. Down Syndrome Bill
26/01/2022 - Public Bill Committees

1: Bill.Amendment 3, title, line 1, leave out from “syndrome;” to second “and” in line 3.This amendment brings - Speech Link
2: personal experience of a family member with Down syndrome. It is also a very good example of why our system - Speech Link
3: for other conditions such as 22q11.2 deletion syndrome, which affects a smaller number of people but - Speech Link

5. Tourette’s syndrome
25/01/2022 - Westminster Hall

1: delighted to have secured this debate on Tourette’s syndrome and how a lack of provision for research, diagnosis - Speech Link
2: committed to support research into Tourette’s syndrome.”Research investment into this condition through - Speech Link

Latest Speeches
Recent Questions related to Down Syndrome
1. Tourette's Syndrome
asked by: Jim Shannon
04/12/2020
... by (a) age and (b) gender.

2. Tourette's Syndrome
asked by: Conor McGinn
21/06/2021
... what funding his Department invested through the National Institute for Health Research into research on Tourette’s syndrome in each year since 2010.

3. Tourette's Syndrome
asked by: Conor McGinn
21/06/2021
... what proportion of Health Education England’s clinical psychology intake has opted to undertake a specialist placement focusing on Tourette’s syndrome in each of the last five years.

4. Tourette's Syndrome
asked by: Conor McGinn
29/06/2021
... (b) the North West region and (c) England.

5. Down's Syndrome
asked by: Barry Sheerman
14/12/2021
... education and local authorities take account of the specific needs of people with Down Syndrome.

Latest Questions
APPG Supplied Content

APPGs can register with Parallel Parliament and submit files and articles to be placed here.

Parallel Parliament offers the facility for APPGs to submit written content and files, which are made available through this page.

Submitters can draft and edit publications, and either release them on demand, or schedule release for a future date.

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If you wish to register as an authorised representative of the Down Syndrome APPG and use this facility, click below

10 Current APPG Officers
Lisa Cameron Portrait
Lisa Cameron
Chair & Registered Contact
Scottish National Party - East Kilbride, Strathaven and Lesmahagow
Joined: 2nd June 2021
82 APPG Memberships
22q11 Syndrome , American Football , Antisemitism , Arctic and Nordic Councils , Armed Forces , Armed Forces Covenant , Assistive Technology , Australia and New Zealand , Autism , Bahrain , Banning Trophy Hunting , Bees and Pollinators , Bermuda , Boys' Brigade , Breast Cancer , British Jews , British Overseas Territories , Canada , Cats , Cerebral Palsy , Channel 4 , Channel Islands , Childhood Trauma , Chile , China , Commonwealth , Crypto and Digital Assets , Cyprus , Darts , Dementia , Diabetes , Digital Regulation and Responsibility , Disability , Dog Advisory Welfare , Dying Well , Eating Disorders , Entrepreneurship , Estonia , Ethics and Sustainability in Fashion , Fair Business Banking , Financial Education for Young People , Foreign Affairs , Future of Retail , Global Health , Health , Holocaust Memorial , Hydrogen , Inclusive Entrepreneurship , International Freedom of Religion or Belief , Japan , Learning Disability , Liechtenstein , Limits to Growth , Loan Charge and Taxpayer Fairness , Media , Mentoring , Montserrat , Olympic and Paralympic Games , Pacific Islands , Pro-Life , Psychology , Pubs , Qatar , Queen’s Platinum Jubilee 2022 , Reserves and Cadets , Russia , San Marino , Serbia , Small Island Developing States , Social Media , Spinal Cord Injury , Street Children , Switzerland , Textiles and Fashion , Thalidomide , Twelve Steps Recovery Programme from Addiction , United Nations , United Nations Global Goals for Sustainable Development , United Nations Women , Vulnerable Groups to Pandemics , Whistleblowing , Woods and Trees
Contact Details

Registered Contact:

Dr Lisa Cameron MP, House of Commons, London, SW1A 0AA. Tel: 020 7219 6855.

Email: lisa.cameron.mp@parliament.uk

Public Enquiry Point:

Nicola Enoch , The Down Syndrome Policy Group, 5 Hill Close, Leamington Spa, Warwickshire CV32 7RQ . Tel: 07814 929 306

Email: nicola.enoch@dspg.uK

Secretariat:

The Down Syndrome Policy Group acts as the group's secretariat. https://dspg.uk/

Group's Website:

https://appg-ds.org/

Benefits in Kind
Date
12 May 2021
Source
The Down Syndrome Policy Group
Description
Secretariat   From : 12/05/2021 To : 11/05/2022
Value
£3,001

No direct financial benefits are on record for the Down Syndrome APPG