Down Syndrome APPG

First Registered: 02/06/2021 • Last updated on: 25/08/2021

Official Page

To campaign for equal access and provision to ensure equality and promote respect at all stages of life for people with Down syndrome.

Note: All-Party Parliamentary Groups (APPGs) are informal, cross-party groups formed by MPs and Members of the House of Lords who share a common interest in a particular policy area, region or country. APPGs have no official status within Parliament.


This content was generated for your convenience by Parallel Parliament and does not form part of the official record.
Recent Documents related to Down Syndrome

1. Screening tests for you and your baby: easy guides
19/06/2020 - Public Health England (PHE)
- View source

Found: Screening for Down™s syndrome, Edwards™ syndrome and Patau™s syndrome An easy guide to screening tests

2. Screening for Down’s syndrome, Edwards’ syndrome and Patau’s syndrome: NIPT summary information
01/07/2021 - Public Health England (PHE)
- View source

Found: Screening for Down’s syndrome, Edwards’ syndrome and Patau’s syndrome: NIPT summary information

3. Down’s syndrome, Edwards’ syndrome and Patau’s syndrome screening pathway requirements specification
21/06/2021 - Public Health England (PHE)
- View source

Found: Guidance Down’s syndrome, Edwards’ syndrome and Patau’s syndrome screening pathway requirements

4. Screening for Down’s syndrome, Edwards’ syndrome and Patau’s syndrome: non-invasive prenatal testing (NIPT)
26/04/2021 - Public Health England (PHE)
- View source

Found: Screening for Down’s syndrome, Edwards’ syndrome and Patau’s syndrome: non-invasive prenatal testing

5. Down’s syndrome screening: risk calculation software requirements
27/10/2020 - Public Health England (PHE)
- View source

Found: Guidance Down’s syndrome screening: risk calculation software requirements

Latest Documents
Recent Speeches related to Down Syndrome

1. Down Syndrome Awareness Month
22/10/2020 - Commons Chamber

1: mention a bit more later. This year’s theme for Down Syndrome Awareness Month is “what holds me back”, which - Speech Link
2: work to raise awareness of the needs of Down’s syndrome children in places such as Carshalton and Wallington - Speech Link
3: people across the UK and around the world mark Down Syndrome Awareness Month. Among other things, it is an - Speech Link

2. Hypermobility Syndromes: Healthwatch Calderdale’s Report
07/10/2019 - Commons Chamber

1: people who are described as having a hypermobility syndrome.The most common of these syndromes is hypermobility - Speech Link
2: consideration. People suffering from hypermobility syndrome feel that they have to fight to be believed, fight - Speech Link
3: people—specifically those with hypermobile Ehlers-Danlos syndrome or hypermobility spectrum disorder—are not receiving - Speech Link

3. Sudden Adult Death Syndrome
09/06/2021 - Lords Chamber

1: make of avoidable deaths from Sudden Adult Death Syndrome in the United Kingdom each year; and what steps - Speech Link
2: screening for potential causes of sudden adult death syndrome. In addition, the NHS is focusing on fast and - Speech Link
3: in SAD, including the sudden arrhythmic death syndrome charity SADS UK. That organisation in particular - Speech Link

4. DiGeorge Syndrome (Review and National Health Service Duty)
05/06/2018 - Commons Chamber

1: conduct a review into DiGeorge (22q11 deletion) syndrome; to require the National Health Service to publish - Speech Link

5. Learning Disabilities Mortality Review
15/05/2019 - Commons Chamber

1: who died had “learning disabilities” or “Down’s syndrome” given as the reason not to resuscitate them. - Speech Link
2: doctors have recorded learning disability or Down’s syndrome as the reason for a “do not attempt cardio-pulmonary - Speech Link
3: That applies particularly to people with Down’s syndrome. We must proclaim that, in this country, there - Speech Link

Latest Speeches
Recent Questions related to Down Syndrome
1. Tourette's Syndrome
asked by: Jim Shannon
04/12/2020
... by (a) age and (b) gender.

2. Tourette's Syndrome
asked by: Conor McGinn
21/06/2021
... what proportion of Health Education England’s clinical psychology intake has opted to undertake a specialist placement focusing on Tourette’s syndrome in each of the last five years.

3. Tourette's Syndrome
asked by: Conor McGinn
21/06/2021
... what funding his Department invested through the National Institute for Health Research into research on Tourette’s syndrome in each year since 2010.

4. Tourette's Syndrome
asked by: Conor McGinn
29/06/2021
... (b) the North West region and (c) England.

5. Irlen Syndrome
asked by: Mike Amesbury
23/01/2020
... what plans his Department has to improve recognition of Irlen Syndrome within the NHS.

Latest Questions
10 Current APPG Officers
Lisa Cameron Portrait
Lisa Cameron
Chair & Registered Contact
Scottish National Party - East Kilbride, Strathaven and Lesmahagow
Joined: 2nd June 2021
Contact Details

Registered Contact:

Dr Lisa Cameron MP, House of Commons, London, SW1A 0AA. Tel: 020 7219 6855.

Email: lisa.cameron.mp@parliament.uk

Public Enquiry Point:

Nicola Enoch , The Down Syndrome Policy Group, 5 Hill Close, Leamington Spa, Warwickshire CV32 7RQ . Tel: 07814 929 306

Email: nicola.enoch@dspg.uK

Secretariat:

The Down Syndrome Policy Group acts as the group's secretariat. https://dspg.uk/

Group's Website:

https://appg-ds.org/

Benefits in Kind
Date
12 May 2021
Source
The Down Syndrome Policy Group
Description
Secretariat   From : 12/05/2021 To : 11/05/2022
Value
£3,001

No direct financial benefits are on record for the Down Syndrome APPG