Haemophilia and Contaminated Blood APPG

First Registered: 30/07/2015 • Last updated on: 10/03/2021

Official Page

To promote awareness of, and campaign for, people with haemophilia and other bleeding disorders and people infected with blood-borne viruses due to contaminated blood and blood products used in their healthcare treatment.

Note: All-Party Parliamentary Groups (APPGs) are informal, cross-party groups formed by MPs and Members of the House of Lords who share a common interest in a particular policy area, region or country. APPGs have no official status within Parliament.


This content was generated for your convenience by Parallel Parliament and does not form part of the official record.
Recent Documents related to Haemophilia and Contaminated Blood

1. Reform of the support arrangements for people affected by contaminated blood and blood products
23/11/2016 - Parliamentary Research

Found: arrangements for people affected by contaminated blood and blood products By Sarah Barber Jacqueline

2. Haemophilia and Contaminated Blood
30/07/2015 - APPGs

Found: for, people with haemophilia and other bleeding disorders and people infected with blood-borne viruses due

3. CONTAMINATED BLOOD INQUIRY
16/10/2017 - Early Day Motions

Found: Minister's announcement of an inquiry into the contaminated blood scandal; thanks the Rt. Rev James Jones,

4. Contaminated Blood (Support for Infected and Bereaved Persons) Bill 2013-14
24/03/2014 - Bills

Found: a committee to advise on haemophilia; to make provision in relation to blood donations; to establish a

5. Test all pregnant women for being a carrier of haemophilia
29/05/2019 - Petitions

Found: two-year-old was diagnosed with haemophilia a year ago and nearly lost his life due to blood loss. I also found out

Latest Documents
Recent Speeches related to Haemophilia and Contaminated Blood

1. Contaminated Blood
29/01/2018 - Lords Chamber

1: The Statement is as follows:“The contaminated blood scandal of the 1970s and 1980s was an appalling - Speech Link
2: what he said about the all-party group. The Haemophilia Society has also been very active in this area - Speech Link
3: that my nephew died; he was a victim of the contaminated blood scandal. Concerns have been voiced over the - Speech Link

2. Contaminated Blood
11/07/2017 - Commons Chamber

1: for an independent public inquiry into the contaminated blood scandal.May I first thank you, Mr - Speech Link
2: to the national and regional groups, such as Haemophilia Wales, who have done so much to stand up for - Speech Link
3: of more than 2,400 people with haemophilia, infected mainly through blood factor concentrates. Many others - Speech Link

3. Contaminated Blood
25/04/2017 - Commons Chamber

1: in this House? I make it on the subject of contaminated blood for a simple reason: knowing what I know - Speech Link
2: share his experiences with us in relation to contaminated blood.I want to raise a point about Lord - Speech Link
3: Lewisham and Oxford haemophilia centres to have tests to see whether he had haemophilia. When he was seven - Speech Link

4. Contaminated Blood
20/07/2017 - Commons Chamber

1: spoken in this House about the tragedy of contaminated blood, and by reiterating that the Government recognise - Speech Link
2: not an occasion for a general debate on the contaminated blood scandal. We have had that on many occasions - Speech Link
3: week’s announcement of an inquiry into the contaminated blood scandal, the vast majority of people affected - Speech Link

5. Infected Blood Inquiry
02/07/2018 - Commons Chamber

1: appointment of Sir Brian Langstaff to chair the infected blood inquiry. From the outset, Sir Brian has been clear - Speech Link
2: the House in the all-party group on haemophilia and contaminated blood, and especially to my hon. Friend - Speech Link
3: exceptional nature and gravity of the infected blood tragedy, I have decided that it is overwhelmingly - Speech Link

Latest Speeches
Recent Questions related to Haemophilia and Contaminated Blood
1. Haemophilia
asked by: Diana Johnson
23/10/2020
... what progress has been made in meeting the Government’s aim for haemophilia patients to be bleed free; and if he will set out a timetable for meeting that aim.

2. Haemophilia
asked by: Diana Johnson
23/10/2020
... if he will publish updated data on bleeds for people with haemophilia for 2019.

3. Haemophilia
asked by: Diana Johnson
09/04/2019
... (b) moderate and (c) severe (i) haemophilia A and (ii) haemophilia B by (A) the number of bleeds they had in the most recent year for which data is available and (B) age groups (1) 0 to 18 and (2) over 18.

4. Haemophilia
asked by: Diana Johnson
09/04/2019
... (b) moderate and (c) severe (i) haemophilia A and (ii) haemophilia B by the number of bleeds they had in the most recent year for which data is available.

5. Haemophilia
asked by: Diana Johnson
09/04/2019
... (b) moderate and (c) severe (i) Haemophilia A and (ii) Haemophilia B had in the latest year for which data is available.

Latest Questions
10 Current APPG Officers
Philippa Whitford Portrait
Philippa Whitford
Vice Chair
Scottish National Party - Central Ayrshire
Joined: 28th September 2017
Barbara Keeley Portrait
Barbara Keeley
Vice Chair
Labour - Worsley and Eccles South
Joined: 30th July 2015
Jo Stevens Portrait
Jo Stevens
Vice Chair
Labour - Cardiff Central
Joined: 8th April 2020
Baroness Ritchie of Downpatrick Portrait
Baroness Ritchie of Downpatrick
Officer
Non-affiliated - Life peer
Joined: 8th April 2020
Contact Details

Registered Contact:

Dame Diana Johnson MP, House of Commons, London, SW1A 0AA. Tel: 020 7219 5647.

Email: johnsond@parliament.uk

Public Enquiry Point:

James Hunt, The Haemophilia Society, 52B Borough High Street, London SE1 1XN. Tel: 020 7939 0780

Email: appg@haemophilia.org.uk

Secretariat:

The Haemophilia Society acts as the group's secretariat. http://haemophilia.org.uk/

Group's Website:

http://haemophilia.org.uk/get-involved/campaigning/access-to-care/appg/

Benefits in Kind
Date
11 Feb 2020
Source
The Haemophilia Society
Description
Secretariat   From : 11/02/2020 To : 11/02/2021
Value
£1,501
Date
12 Jul 2018
Source
The Haemophilia Society
Description
Secretariat   From : 12/07/2018 To : 11/07/2019
Value
£1,501
Date
12 Jul 2017
Source
The Haemophilia Society
Description
Secretariat   From : 12/07/2017 To : 11/07/2018
Value
£1,501
Date
1 Jul 2017
Source
The Haemophilia Society
Description
Secretariat   From : 01/07/2017 To : 30/06/2018
Value
£1,501
Date
1 Jan 2016
Source
The Haemophilia Society
Description
Secretariat   From : 01/01/2016 To : 31/12/2016
Value
£1,501
Date
2 Jun 2015
Source
The Haemophilia Society
Description
Research, analysis and publication of inquiry report and launch reception.
Value
£4,501
Date
1 Jan 2015
Source
The Haemophilia Society
Description
Secretariat   From : 01/01/2015 To : 31/12/2015
Value
£1,501

No direct financial benefits are on record for the Haemophilia and Contaminated Blood APPG

Former APPG Officers
Baroness Featherstone Portrait
Baroness Featherstone
Vice-Chair
Liberal Democrat - Life peer
Joined: 28th September 2017
Departed: 5th November 2019
No other APPG Memberships
Norman Lamb Portrait
Norman Lamb
Vice-Chair
Liberal Democrat - Former Member for North Norfolk
Joined: 28th September 2017
Departed: 5th November 2019
No other APPG Memberships
Jim McMahon Portrait
Jim McMahon
Vice-Chair
Labour (Co-op) - Oldham West and Royton
Joined: 21st November 2018
Departed: 5th November 2019
Esther McVey Portrait
Esther McVey
Vice-Chair
Conservative - Tatton
Joined: 28th September 2017
Departed: 20th December 2017
1 APPG Membership
Gaps in Support
Chloe Smith Portrait
Chloe Smith
Vice Chair
Conservative - Norwich North
Joined: 30th July 2015
Departed: 2nd May 2017
No other APPG Memberships
None Portrait
Ms Margaret Ritchie
Vice Chair
Joined: 21st July 2016
Departed: 2nd May 2017
Jonathan Reynolds Portrait
Jonathan Reynolds
Vice Chair
Labour (Co-op) - Stalybridge and Hyde
Joined: 30th July 2015
Departed: 3rd June 2016
Maggie Throup Portrait
Maggie Throup
Vice Chair
Conservative - Erewash
Joined: 30th July 2015
Departed: 3rd June 2016
No other APPG Memberships
Huw Irranca-Davies Portrait
Huw Irranca-Davies
Vice Chair
Labour - Former Member for Ogmore
Joined: 30th July 2015
Departed: 16th March 2016
No other APPG Memberships