Haemophilia and Contaminated Blood APPG

First Registered: 30/07/2015 • Last updated on: 06/10/2021

Official Page

To promote awareness of, and campaign for, people with haemophilia and other bleeding disorders and people infected with blood-borne viruses due to contaminated blood and blood products used in their healthcare treatment.

Note: All-Party Parliamentary Groups (APPGs) are informal, cross-party groups formed by MPs and Members of the House of Lords who share a common interest in a particular policy area, region or country. APPGs have no official status within Parliament.


This content was generated for your convenience by Parallel Parliament and does not form part of the official record.
Recent Documents related to Haemophilia and Contaminated Blood

1. Reform of the support arrangements for people affected by contaminated blood and blood products
23/11/2016 - Parliamentary Research

Found: arrangements for people affected by contaminated blood and blood products By Sarah Barber Jacqueline

2. CONTAMINATED BLOOD INQUIRY
16/10/2017 - Early Day Motions

Found: Minister's announcement of an inquiry into the contaminated blood scandal; thanks the Rt. Rev James Jones,

3. Haemophilia and Contaminated Blood
30/07/2015 - APPGs

Found: for, people with haemophilia and other bleeding disorders and people infected with blood-borne viruses due

4. Creutzfeldt-Jakob disease (CJD) surveillance: biannual updates
11/02/2020 - Public Health England (PHE)
- View source

Found: with the CJD agent. Some individuals also provide blood or tissue specimens for research purposes . A number

5. Creutzfeldt-Jakob disease (CJD) surveillance: biannual updates
11/02/2020 - Public Health England (PHE)
- View source

Found: with the CJD agent. Some individuals also provide blood or tissue specimens for research purposes . A number

Latest Documents
Recent Speeches related to Haemophilia and Contaminated Blood

1. Contaminated Blood
29/01/2018 - Lords Chamber

1: The Statement is as follows:“The contaminated blood scandal of the 1970s and 1980s was an appalling - Speech Link
2: what he said about the all-party group. The Haemophilia Society has also been very active in this area - Speech Link
3: that my nephew died; he was a victim of the contaminated blood scandal. Concerns have been voiced over the - Speech Link

2. Contaminated Blood
11/07/2017 - Commons Chamber

1: for an independent public inquiry into the contaminated blood scandal.May I first thank you, Mr - Speech Link
2: to the national and regional groups, such as Haemophilia Wales, who have done so much to stand up for - Speech Link
3: of more than 2,400 people with haemophilia, infected mainly through blood factor concentrates. Many others - Speech Link

3. Contaminated Blood
25/04/2017 - Commons Chamber

1: in this House? I make it on the subject of contaminated blood for a simple reason: knowing what I know - Speech Link
2: share his experiences with us in relation to contaminated blood.I want to raise a point about Lord - Speech Link
3: Lewisham and Oxford haemophilia centres to have tests to see whether he had haemophilia. When he was seven - Speech Link

4. Infected Blood Inquiry
02/07/2018 - Commons Chamber

1: appointment of Sir Brian Langstaff to chair the infected blood inquiry. From the outset, Sir Brian has been clear - Speech Link
2: the House in the all-party group on haemophilia and contaminated blood, and especially to my hon. Friend - Speech Link
3: exceptional nature and gravity of the infected blood tragedy, I have decided that it is overwhelmingly - Speech Link

5. Contaminated Blood
20/07/2017 - Commons Chamber

1: spoken in this House about the tragedy of contaminated blood, and by reiterating that the Government recognise - Speech Link
2: not an occasion for a general debate on the contaminated blood scandal. We have had that on many occasions - Speech Link
3: week’s announcement of an inquiry into the contaminated blood scandal, the vast majority of people affected - Speech Link

Latest Speeches
Recent Questions related to Haemophilia and Contaminated Blood
1. Haemophilia
asked by: Diana Johnson
23/10/2020
... what progress has been made in meeting the Government’s aim for haemophilia patients to be bleed free; and if he will set out a timetable for meeting that aim.

2. Haemophilia
asked by: Diana Johnson
23/10/2020
... if he will publish updated data on bleeds for people with haemophilia for 2019.

3. Haemophilia
asked by: Diana Johnson
09/04/2019
... (b) moderate and (c) severe (i) haemophilia A and (ii) haemophilia B by (A) the number of bleeds they had in the most recent year for which data is available and (B) age groups (1) 0 to 18 and (2) over 18.

4. Haemophilia
asked by: Diana Johnson
09/04/2019
... (b) moderate and (c) severe (i) haemophilia A and (ii) haemophilia B by the number of bleeds they had in the most recent year for which data is available.

5. Haemophilia
asked by: Diana Johnson
09/04/2019
... (b) moderate and (c) severe (i) Haemophilia A and (ii) Haemophilia B had in the latest year for which data is available.

Latest Questions
APPG Supplied Content

APPGs can register with Parallel Parliament and submit files and articles to be placed here.

Parallel Parliament offers the facility for APPGs to submit written content and files, which are made available through this page.

Submitters can draft and edit publications, and either release them on demand, or schedule release for a future date.

Both text content and attached files submitted through this facility is indexed by our website, and made available through both the search function and relevant e-mail alerts. Any of our users registered for an alert which matches your content, will receive a link making them aware of its publication.

If you wish to register as an authorised representative of the Haemophilia and Contaminated Blood APPG and use this facility, click below

10 Current APPG Officers
Peter Bottomley Portrait
Peter Bottomley
Co-Chair
Conservative - Worthing West
Joined: 30th July 2015
69 APPG Memberships
Adult Education , Ageing and Older People , Arts and Heritage , Austria , BBC , Black Maternal Health , Black, Asian and Minority Ethnic Business Owners , British Overseas Territories , Carbon Monoxide , Citizens Rights , Commonwealth , Cycling and Walking , Dalits , Dark Skies , Democracy and Human Rights in the Gulf , Disability , Domestic Violence and Abuse , Equitable Life Policyholders , Fatherhood , Flags and Heraldry , Gasworks Redevelopment , Global Security and Non-Proliferation , Governance and Inclusive Leadership , Gypsies, Travellers and Roma , Haiti , Hospice and End of Life Care , Immigration Detention , Insurance and Financial Services , Internet, Communications and Technology , Ireland and the Irish in Britain , Kosovo , Leasehold and Commonhold Reform , Limits to Growth , Longevity , Media , Music , No Recourse to Public Funds , Olympic and Paralympic Games , Opera , Park Homes , Period Equality , Photography , Race and Community , Religious Education , Republic of Korea , Retail Crime , Road Freight and Logistics , Rowing , Scientific , Scotch Whisky , Sexual and Reproductive Health in the UK , Single Parent Families , Social Enterprise , Social Integration , Social Science and Policy , Social Work , St George's Day , Tibet , Transport Safety , United Nations , United Nations Women , Vascular and Venous Disease , Votes at 16 , Western Rail Link to Heathrow , Western Sahara , Wine and Spirits , Wine of Great Britain , Women in Transport , Youth Affairs
Philippa Whitford Portrait
Philippa Whitford
Vice Chair
Scottish National Party - Central Ayrshire
Joined: 28th September 2017
Jo Stevens Portrait
Jo Stevens
Vice Chair
Labour - Cardiff Central
Joined: 8th April 2020
2 APPG Memberships
Colombia , Darts
Baroness Ritchie of Downpatrick Portrait
Baroness Ritchie of Downpatrick
Officer
Labour - Life peer
Joined: 8th April 2020
2 APPG Memberships
Dementia , Trade and Export Promotion
Contact Details

Registered Contact:

Dame Diana Johnson MP, House of Commons, London, SW1A 0AA. Tel: 020 7219 5647.

Email: johnsond@parliament.uk

Public Enquiry Point:

Jeff Courtney, The Haemophilia Society, 52B Borough High Street, London SE1 1XN. Tel: 020 7939 0780

Email: appg@haemophilia.org.uk

Secretariat:

The Haemophilia Society acts as the group's secretariat. http://haemophilia.org.uk/

Group's Website:

http://haemophilia.org.uk/get-involved/campaigning/access-to-care/appg/

Benefits in Kind
Date
11 Feb 2021
Source
The Haemophilia Society
Description
Secretariat   From : 11/02/2021 To : 10/02/2022
Value
£1,501
Date
10 Nov 2020
Source
The Haemophilia Society, funded by a grant from Swedish Orphan Biovitrum
Description
Production of an APPG report
Value
£7,501
Date
11 Feb 2020
Source
The Haemophilia Society
Description
Secretariat   From : 11/02/2020 To : 11/02/2021
Value
£1,501
Date
12 Jul 2018
Source
The Haemophilia Society
Description
Secretariat   From : 12/07/2018 To : 11/07/2019
Value
£1,501
Date
12 Jul 2017
Source
The Haemophilia Society
Description
Secretariat   From : 12/07/2017 To : 11/07/2018
Value
£1,501
Date
1 Jul 2017
Source
The Haemophilia Society
Description
Secretariat   From : 01/07/2017 To : 30/06/2018
Value
£1,501
Date
1 Jan 2016
Source
The Haemophilia Society
Description
Secretariat   From : 01/01/2016 To : 31/12/2016
Value
£1,501
Date
2 Jun 2015
Source
The Haemophilia Society
Description
Research, analysis and publication of inquiry report and launch reception.
Value
£4,501
Date
1 Jan 2015
Source
The Haemophilia Society
Description
Secretariat   From : 01/01/2015 To : 31/12/2015
Value
£1,501

No direct financial benefits are on record for the Haemophilia and Contaminated Blood APPG

Former APPG Officers
Baroness Featherstone Portrait
Baroness Featherstone
Vice-Chair
Liberal Democrat - Life peer
Joined: 28th September 2017
Departed: 5th November 2019
No other APPG Memberships
Norman Lamb Portrait
Norman Lamb
Vice-Chair
Liberal Democrat - Former Member for North Norfolk
Joined: 28th September 2017
Departed: 5th November 2019
No other APPG Memberships
Jim McMahon Portrait
Jim McMahon
Vice-Chair
Labour (Co-op) - Oldham West and Royton
Joined: 21st November 2018
Departed: 5th November 2019
Esther McVey Portrait
Esther McVey
Vice-Chair
Conservative - Tatton
Joined: 28th September 2017
Departed: 20th December 2017
Chloe Smith Portrait
Chloe Smith
Vice Chair
Conservative - Norwich North
Joined: 30th July 2015
Departed: 2nd May 2017
No other APPG Memberships
None Portrait
Ms Margaret Ritchie
Vice Chair
Joined: 21st July 2016
Departed: 2nd May 2017
Jonathan Reynolds Portrait
Jonathan Reynolds
Vice Chair
Labour (Co-op) - Stalybridge and Hyde
Joined: 30th July 2015
Departed: 3rd June 2016
Maggie Throup Portrait
Maggie Throup
Vice Chair
Conservative - Erewash
Joined: 30th July 2015
Departed: 3rd June 2016
No other APPG Memberships
Huw Irranca-Davies Portrait
Huw Irranca-Davies
Vice Chair
Labour - Former Member for Ogmore
Joined: 30th July 2015
Departed: 16th March 2016
No other APPG Memberships