Multiple Sclerosis APPG

First Registered: 29/09/2015 • Last updated on: 27/01/2021

Official Page

To promote the interests of people affected by MS (Multiple Sclerosis).

Note: All-Party Parliamentary Groups (APPGs) are informal, cross-party groups formed by MPs and Members of the House of Lords who share a common interest in a particular policy area, region or country. APPGs have no official status within Parliament.


This content was generated for your convenience by Parallel Parliament and does not form part of the official record.
Recent Documents related to Multiple Sclerosis

1. Lemtrada (alemtuzumab) and serious cardiovascular and immune-mediated adverse reactions: new restrictions to use and strengthened monitoring requirements
17/05/2019 - Medicines and Healthcare products Regulatory Agency (MHRA)
- View source

Found: treatment. All patients on alemtuzumab for multiple sclerosis should be alerted to these risks and what

2. Ms H Rawlins v Multiple Sclerosis Society: 2206532/2018
31/12/2019 - HM Courts & Tribunals Service (HMCTS)
- View source

Found: Ms H Rawlins v Multiple Sclerosis Society: 2206532/2018 - GOV.UK

3. Drug Safety Update: monthly PDF newsletter
21/11/2019 - Medicines and Healthcare products Regulatory Agency (MHRA)
- View source

Found: progressive multifocal leu koencephalopathy in a multiple sclerosis patient who had severe, prolonged lymphopenia

4. Multiple sclerosis: prevalence, incidence and smoking status
04/02/2020 - Public Health England (PHE)
- View source

Found: Research and analysis Multiple sclerosis: prevalence, incidence and smoking status

5. Drug Safety Update: monthly PDF newsletter
21/11/2019 - Medicines and Healthcare products Regulatory Agency (MHRA)
- View source

Found: 201 7 Contents Daclizumab in multiple sclerosis now restricted, promptly review patients

Latest Documents
Recent Speeches related to Multiple Sclerosis

1. Legalisation of Cannabis (Medicinal Purposes)
10/10/2017 - Commons Chamber

1: she was struck down at the age of 26 with multiple sclerosis, which virtually destroyed her life and affected - Speech Link

2. Maraviroc and Progressive Multifocal Leukoencephalopathy
30/09/2019 - Commons Chamber

1: clear.Ms Rai was sadly diagnosed with multiple sclerosis in 2013 aged 34. She was prescribed Natalizumab - Speech Link
2: immune reconstitution inflammatory syndrome in multiple sclerosis. An individual funding request was submitted - Speech Link
3: Lady’s constituent, who unfortunately has multiple sclerosis, has been paying privately for the drug, - Speech Link

3. Medical Cannabis
20/02/2018 - Commons Chamber

1: medicines for conditions associated with multiple sclerosis, the side-effects of chemotherapy, and epilepsy - Speech Link
2: suffering from the very final stages of multiple sclerosis. Her husband has found that the only drug - Speech Link
3: our party conference heard evidence from a multiple sclerosis sufferer, Laura Brennan-Whitefield, who called - Speech Link
4: different illnesses, such as epilepsy and multiple sclerosis. They told me that conventional drugs have - Speech Link
5: talked about and discuss the fact that the Multiple Sclerosis Society has changed its position on the use - Speech Link

4. Drugs Licensing
19/06/2018 - Lords Chamber

1: benefits for people suffering from cancer, multiple sclerosis, Tourette’s syndrome, chronic severe pain - Speech Link
2: cannabis-based medication for epilepsy and multiple sclerosis and as pain relief in some forms of terminal - Speech Link
3: of conditions. I worked with sufferers of multiple sclerosis for 10 years and the use of cannabis-derived - Speech Link

5. Medicinal Cannabis
06/07/2020 - Lords Chamber

1: capable of handling medical cannabis, which has multiple active ingredients and is therefore not suitable - Speech Link
2: them, Sativex—prescribed within the NHS for multiple sclerosis—has a high level of the active cannabinoid - Speech Link

6. Social Security and Employment Support for Disabled People
06/03/2019 - Commons Chamber

1: conditions such as motor neurone disease, multiple sclerosis and cancer—being exempted from repeat assessments - Speech Link
2: problems. The fact that 83% of people with multiple sclerosis who appeal their PIP case are successful - Speech Link
3: Specifically on the case of people with multiple sclerosis, or cases brought to me by people who feel - Speech Link

7. Toilets (Provision and Accessibility)
27/06/2018 - Commons Chamber

1: older people, 40,000 people with profound and multiple learning disabilities, 30,000 people with cerebral - Speech Link

8. Cannabis (Legalisation and Regulation)
23/03/2016 - Commons Chamber

1: cruel, unjust policy that is. We criminalise multiple sclerosis sufferers and many others who use cannabis - Speech Link

9. Drugs Policy: Departmental Responsibility
07/02/2017 - Lords Chamber

1: some of the increases in drug-related deaths are multiple and complex, which is why we established an expert - Speech Link
2: the value of Sativex in the treatment of multiple sclerosis and other types of pain relief. The MHRA - Speech Link

10. Cannabis-based Medication
21/02/2018 - Lords Chamber

1: I worked extensively with people who had multiple sclerosis, and I know that Sativex has been produced - Speech Link

Latest Speeches
Recent Questions related to Multiple Sclerosis
1. Multiple Sclerosis
asked by: Royston Smith
19/12/2018
... what financial assistance his Department makes available to (a) organisations dealing with multiple sclerosis and (b) individuals who have multiple sclerosis.

2. Universal Credit: Multiple Sclerosis
asked by: Ian Murray
18/02/2019
... how many people affected by multiple sclerosis in Scotland claim universal credit.

3. Multiple Sclerosis: Diagnosis
asked by: Rosie Cooper
23/07/2020
... what steps his Department is taking to improve the diagnosis of secondary progressive multiple sclerosis.

4. Multiple Sclerosis
asked by: Christine Jardine
01/09/2020
... what data his Department collects on the number of people with Secondary Progressive Multiple Sclerosis.

5. Multiple Sclerosis: Health Services
asked by: Christine Jardine
01/09/2020
... what proportion of people with Secondary Progressive Multiple Sclerosis in England receive an annual care review.

Latest Questions
12 Current APPG Officers
Simon Hoare Portrait
Simon Hoare
Chair & Registered Contact
Conservative - North Dorset
Joined: 29th September 2015
Chris Law Portrait
Chris Law
Vice Chair
Scottish National Party - Dundee West
Joined: 15th February 2017
Lord Monks Portrait
Lord Monks
Vice Chair
Labour - Life peer
Joined: 7th August 2020
1 APPG Membership
Chemical Industry
Gavin Robinson Portrait
Gavin Robinson
Officer
Democratic Unionist Party - Belfast East
Joined: 20th May 2020
Contact Details

Registered Contact:

Simon Hoare MP, House of Commons, London, SW1A 0AA. Tel: 020 7219 5697.

Email: simon.hoare.mp@parliament.uk

Public Enquiry Point:

Joe Brunwin, MS Society, 372 Edgware Road, London NW2 6ND. Tel: 07879 643 289

Email: joseph.brunwin@mssociety.org.uk

Secretariat:

MS Society acts as the group's secretariat. http://www.mssociety.org.uk/

Benefits in Kind
Date
10 Mar 2020
Source
MS Society
Description
Secretariat   From : 10/03/2020 To : 09/03/2021
Value
£4,501
Date
5 Dec 2018
Source
MS Society
Description
Secretariat   From : 05/12/2018 To : 04/12/2019
Value
£4,501
Date
5 Dec 2017
Source
MS Society
Description
Secretariat   From : 05/12/2017 To : 04/12/2018
Value
£4,501
Date
1 Jan 2017
Source
MS Society
Description
Secretariat   From : 01/01/2017 To : 31/12/2017
Value
£9,001
Date
16 Sep 2015
Source
MS Society
Description
Secretariat   From : 16/09/2015 To : 31/12/2015
Value
£7,501

No direct financial benefits are on record for the Multiple Sclerosis APPG

Former APPG Officers
Karen Lee Portrait
Karen Lee
Vice Chair
Labour - Former Member for Lincoln
Joined: 27th March 2019
Departed: 5th November 2019
No other APPG Memberships
Ruth George Portrait
Ruth George
Officer
Labour - Former Member for High Peak
Joined: 27th March 2019
Departed: 5th November 2019
No other APPG Memberships
Christine Jardine Portrait
Christine Jardine
Officer
Liberal Democrat - Edinburgh West
Joined: 27th March 2019
Departed: 5th November 2019
Lord Bellingham Portrait
Lord Bellingham
Officer
Conservative - Life peer
Joined: 27th March 2019
Departed: 5th November 2019
1 APPG Membership
Caribbean
Norman Lamb Portrait
Norman Lamb
Officer
Liberal Democrat - Former Member for North Norfolk
Joined: 27th March 2019
Departed: 5th November 2019
No other APPG Memberships
Stephen Lloyd Portrait
Stephen Lloyd
Officer
Liberal Democrat - Former Member for Eastbourne
Joined: 20th December 2017
Departed: 13th February 2019
No other APPG Memberships
Fiona Mactaggart Portrait
Fiona Mactaggart
Vice Chair
Labour - Former Member for Slough
Joined: 15th February 2017
Departed: 2nd May 2017
No other APPG Memberships
Mark Durkan Portrait
Mark Durkan
Officer
Social Democratic & Labour Party - Former Member for Foyle
Joined: 29th September 2015
Departed: 2nd May 2017
No other APPG Memberships
Nic Dakin Portrait
Nic Dakin
Officer
Labour - Former Member for Scunthorpe
Joined: 29th September 2015
Departed: 6th January 2017
No other APPG Memberships