Ehlers-Danlos Syndrome and Craniocervical Instability

Alistair Strathern Excerpts

Thursday 26th March 2026 Westminster Hall

[Josh Newbury (Cannock Chase) (Lab)]

I beg to move,

That this House has considered outcomes for patients with Ehlers-Danlos syndrome and craniocervical instability.

It is a pleasure to serve under your chairship, Ms Furness. Before I start my speech, I thank the Backbench Business Committee for granting us the time for this debate. I also thank Members from across the House who supported our application, and the clinicians, the charities and, most importantly, the patients who have shared their experiences in order to inform the debate.

Let me also take this opportunity to warmly welcome the Minister to what is still her fairly new role. I know that throughout her time in Parliament she has been a staunch advocate for people with conditions such as less survivable cancers and other rare conditions, and for people who have suffered from medical failings, such as those with pelvic mesh. Throughout those campaigns, she has above all given voice to people who feel let down and forgotten by our healthcare system, so I know that she will empathise with much of what will be said in today’s debate.

In April last year, I had an email from my constituent Connor Edwards. Connor opened his email by telling me that he was in “sheer desperation.” He explained that he was living with two conditions, Ehlers-Danlos syndrome and craniocervical instability—having pronounced them correctly, I will now refer to them as EDS and CCI.

I will be honest with the House: until that point, I had never heard of these conditions. I did not know how profoundly they affect people such as Connor, or the extent to which they are unseen in our NHS. Six years ago, Connor was 25 and living a very active life. He was a keen fisherman and mountain biker and, like many people in my constituency of Cannock Chase, he loved to spend his time outdoors, surrounded by the natural beauty that we are so fortunate to have on our doorstep.

Connor’s story with EDS and CCI began when he was bitten by a tick while he was out on the Chase and subsequently developed Lyme disease. However, it turned out that that was only the start. In seeking explanations for his worsening health, Connor had to do so much research himself. Then, after finally seeing many specialists, he was diagnosed with EDS, a connective tissue disorder that affects the collagen responsible for supporting the skin, joints, blood vessels and internal organs.

Some people living with EDS experience chronic joint dislocations, severe and persistent pain, and significant neurological complications. One of those complications in cases like Connor’s is CCI, whereby the skull no longer sits safely on the spine, placing pressure on the brain stem and spinal cord.

I am conscious that I can get quite technical when I discuss Connor’s case, so I will put it in his words. He says that his head is quite literally falling off his body. Chillingly, that is not something that is picked up on a scan but not felt; rather, Connor feels his head shifting around dangerously every day, with all the pain that goes with that. He is also acutely aware that his symptoms continue to worsen.

It is the intersection between EDS and CCI that I will focus on today, and I know that many other hon. Members will make important contributions about the broader challenges faced by people living with EDS.

[Alistair Strathern (Hitchin) (Lab)]

I congratulate my hon. Friend on securing this debate on a topic that, like him, I must confess I had not heard much about until I spoke to two of my constituents about it. Having heard from Sarah and Mark, who both suffer from craniocervical instability, I know that it is impossible for those suffering from it not to be left devastated by its impact. It not only limits and narrows their lives and what they can do, but crushes their family finances, as they are forced to seek expensive private treatment due to inadequate access to treatment via the NHS. Does my hon. Friend agree that it is really important to put that right and that we should start to consider what a better clinical pathway for this condition might look like, so that everyone suffering from it can access the treatment they deserve in their community?

[Josh Newbury]

I completely agree with my hon. Friend. In this country, we are incredibly proud of our NHS and the care that it can give people who have very common or very rare conditions. However, as I will set out further, and as he has just said, so many people with these two conditions feel very unseen, and we absolutely need to correct that. People should not have to fundraise to seek private treatment to be seen by doctors.

I will ensure in my speech that the experiences of patients who develop these two conditions and serious neurological complications are heard. When I speak to Connor now, the reality of what he is living with is incredibly difficult to hear. He has told me how much he is struggling, not just with the physical symptoms of his conditions but with his battle to be recognised in our health system. He feels that his conditions are not seen, not properly assessed and too often misunderstood. Like many other people, he has been left feeling that he is not even believed.

Connor told me that at one point he was barely eating, in order to try to save enough money to see a specialist neurosurgeon abroad. He does not come from a privileged background, so he has had to set up a crowdfunding page in the hope of raising enough money to get the specialist surgery and treatment that he needs. However, like so many patients in a similar situation, he is falling short. Even if he is able to reach his target and go abroad, he will be left asking the very simple question: “What happens when I come home?” He has described feeling as though he has been “gaslit” by the system, with his symptoms attributed elsewhere and his concerns not taken seriously.

GP Contract

Alistair Strathern Excerpts

Monday 16th March 2026 Commons Chamber

[Stephen Kinnock]

I am not familiar with the details of that specific case, but if the hon. Member writes to me, I will be more than happy to furnish her with a response. There is a real concern in some parts of the country, particularly where there have been new developments or populations moving into the area, that the GP practice does not have the required capacity. I am not sure whether that has happened in the case she refers to, but in such cases we also look to developers, including to section 106 and the community infrastructure levy as an opportunity. We have the primary care utilisation fund, and with neighbourhood health centre funding coming on stream, that may also be an opportunity. If she cares to write to me, I will furnish her with a response.

[Alistair Strathern (Hitchin) (Lab)]

The welcome funding, alongside the contract, to hire 16,000 more GPs will be really encouraging news for my community. However, in high-growth areas such as mine, all too often it is physical space rather than funding for GPs that constrains practices. I am really glad that, after getting involved, we have been able to help move forward crucial expansion projects at Shefford health centre and Lower Stondon GP surgery in my constituency, but we should not need the MP to get involved in such situations to help our GPs. Will the Minister meet me to decide how we can work with our ICBs better to ensure that, where we have areas of significant housing growth, we will automatically see growth in the number of GP surgeries in the future?

[Stephen Kinnock]

Very much along the lines of what I said to the hon. Member for Gosport (Dame Caroline Dinenage), we need to ensure that the social infrastructure is there in such areas of population growth. I would be more than happy to meet my hon. Friend to discuss that further.

Medical Training (Prioritisation) Bill

Alistair Strathern Excerpts

2nd reading
Tuesday 27th January 2026 Commons Chamber

[Wes Streeting]

I will make some progress because, with respect, I have not yet set out the measures that we are to debate today. Let me take the intervention from my hon. Friend the Member for Hitchin, then I will set out the Government’s rationale and take further interventions.

[Alistair Strathern (Hitchin) (Lab)]

I wonder if the Secretary of State shares my residents’ utter disbelief that the last Government created a system where thousands of UK medical graduates, educated at the cost of billions to the UK taxpayer, were suddenly forced to compete with overseas students, pushing many abroad for their careers and losing a big talent pool that should be powering our NHS and getting it back on its feet.

[Wes Streeting]

That is right. I have to say, many of my counterparts around the world cannot fathom how we ended up in this situation in the first place. They certainly do not do as we have been doing, investing so much in their home-grown talent only to then see that talent compete on equal terms with anyone from anywhere else in the world.

Let me set out why we need this Bill. There are workforce problems that only Government can solve. We know that the treatment of resident doctors has been totally unacceptable for years and we see the training bottlenecks that resident doctors face today. In 2019, there were around 12,000 applicants for 9,000 specialty training places. This year, that has soared to nearly 40,000 applicants for 10,000 places, with nearly twice as many overseas-trained applicants as UK-trained ones. As a result, we now have the ridiculous state of affairs where UK medical graduates, whose training British taxpayers fund to the tune of £4 billion a year and who want to carve out a career in their NHS, are either being lost abroad or to the private sector. If we do not deal with that, the scale of the issue and the resentment it causes will just get worse. More taxpayers’ money will be wasted, more British medics will turn their backs on the NHS, and patients and our NHS will ultimately suffer.

Therapeutic Play and Children’s Healthcare

Alistair Strathern Excerpts

Tuesday 6th January 2026 Westminster Hall

[Alistair Strathern (Hitchin) (Lab)]

I thank my hon. Friend the Member for Leyton and Wanstead (Mr Bailey) not just for securing the debate, but for continuing to live up to his true legend status by being so generous with interventions and speaking time.

Therapeutic play can all too often be seen as a nice-to-have in children’s healthcare, rather than as a fundamental part of doing paediatric care well. I had the privilege recently of joining fantastic play therapists such as Christina at my local hospital and seeing the transformative impact that therapeutic play, done well, can have on outcomes for young people. I spoke to young people who had had trauma eased that could easily have lasted far longer than the condition they were being treated for; to parents who, at some of the most difficult and traumatic moments of their child’s early life, were still able to find moments of joy and solace in the smiles they saw in the play area working with those fantastic therapists; and to wider health professionals who were able to deliver far more effective and often more cost-effective care because of the fantastic collaborative work they had with the therapeutic play provision team who are well embedded into the Lister hospital.

Those parents and families are really lucky. Working with Starlight, I know many other families across the country have got to be equally lucky, but far too often families face a postcode lottery in provision. It is fantastic to see the toolkit coming into effect. We now need to make it a reality for every family and every child with healthcare needs right across the country.

Oral Answers to Questions

Alistair Strathern Excerpts

Tuesday 25th November 2025 Commons Chamber

[Stephen Kinnock]

I thank the hon. Gentleman for his question. I notice he did not welcome the fact that we are supporting the hospice sector with a £100 million capital funding boost and £80 million in revenue funding for children’s hospices over three years. We also notice that Conservative Members do like to welcome the additional investment generated from the last Budget, but they do not seem to welcome the means by which it was generated, so I would say to them: what would they cut or what taxes would they put up to pay for what we are doing to get our NHS back on its feet and fit for the future?

[Alistair Strathern (Hitchin) (Lab)]

I welcome the Government’s commitment to a strategy for palliative care, which is as overdue as it is important, but it will mean nothing for hospices that are not able to last out until it comes into effect. Garden House hospice in my constituency is facing a crucial funding shortfall, and although the capital funding from the Government that came through earlier this year is incredibly welcome, it is still just short of filling the cash-flow gap it needs to fill to secure its operations. Would the Minister meet me to see what further work the integrated care board may be able to do to protect this vital hospice serving my constituents?

[Stephen Kinnock]

I am very pleased that the measures we have taken have provided financial support. I absolutely recognise the challenging financial position, and I would of course be more than happy to meet my hon. Friend to discuss that further.

International Men’s Day

Alistair Strathern Excerpts

Thursday 20th November 2025 Commons Chamber

[Alistair Strathern (Hitchin) (Lab)]

I start with a thank you to my hon. Friend the Member for Cannock Chase (Josh Newbury) for the incredible way in which he opened the debate. Securing it was important enough, but the bravery that he has shown today, as well as the leadership that he has shown on so many of the issues he spoke to in his speech, will perhaps serve men right across the country far better in the future than politics has managed to do in the past. It is a day after International Men’s Day, but I cannot think of a better model of a modern, strong man than the vision of himself that he set out today, in being so brave in sharing that deeply personal experience with us all.

As my hon. Friend finished, I want to start with a dad joke—as we know, all good jokes need some forewarning. Last week, I went to the Library—I do not know why in this place, but I wanted to find a book on paranoia. I went up to the librarian, tapped her on the shoulder and asked her where I might be able to find one. She leaned over to me and whispered, “I am afraid, sir, they’re all right behind you.” [Hon. Members: “Oh.”] That is as good a reaction as my jokes get in this place—it is great to see everyone else lowering themselves to my level for one day.

The point behind the campaign is a really important one: paternity leave in this country is a bit of a joke. When I have held events with new mums, new dads and new parents across my constituency, it has been heartbreaking to hear about the impact that the challenge of paternity leave has on them. I have seen mums with high-risk pregnancies along with dads struggling to see whether they will be able to take off enough time before the birth—let alone after—to be there to support them. New mums have told me heartbreaking stories of how they have had to go through caesarean recoveries alone after the dads had to return to work. That cannot be good enough. As progressives, the statutory paternity leave offer, which is so narrow and tight that only some of the wealthiest in society can really take it up, should not be good enough for us. We have to do far better. I really hope that we will make the most of the upcoming paternity and parental leave review to put that right.

As so many have already said, that is not the only issue failing men today. As was identified in yesterday’s landmark announcement, men’s mental health, its issues and strategies have not been forensically focused on in this place for far too long. I know about that from my own challenges, after a bad concussion left me out of work for the best part of six months. I was unable to comprehend and struggled to read at times—some Members might be wondering what has changed. While I can joke about it now, it was no laughing matter at the time.

I was lucky that I had friends who pointed out the fact that my symptoms went well beyond concussion; I was getting quite deeply depressed. They ensured that I got the right support and guidance to get back to work and feel comfortable and confident in myself again. While all I can do to thank Joe, George and Alex is put their names on the record and forever associate them with me—a dubious privilege I am not sure they will be so grateful for—I want to highlight the importance of making sure that no man should ever be in the position of having to go through such a challenge alone.

I am lucky to have great groups in my constituency such as For Men to Talk in Hitchin, Stotfold’s men’s health walking group, and the great group in Shefford, where I live, run by Steve Coxon. They are there to ensure that men have spaces where they can reach out. That is why it is so important to see investment in these groups and a wider community approach to men’s health front and centre in the strategy.

We know that we need to do far more. The fact that this strategy was the first of its kind speaks to a wider problem in our politics—that at times we shy away from being confident in speaking to the challenges that affect men particularly and specifically. As progressives, this should be our fight. We should be making sure that society is there for vulnerable lads at school and dads and mums going through vulnerable births. We should make sure that we are there for men at the darkest moments of their lives. These are big progressive causes, and we should be comfortable taking them on and being loud and proud about speaking to them.

At the end of the day, men’s issues are issues not just for men but for everyone. We all have men and women in our lives, and we should all be passionate about policies that tackle the challenges they face. We should be full-throated and proud in not shying away from them.

Oral Answers to Questions

Alistair Strathern Excerpts

Tuesday 25th March 2025 Commons Chamber

[Wes Streeting]

Phase 1 of the Casey commission reports next year and the final Casey report is due by 2028, but the Chancellor has already announced an increase in funding for social care in the Budget, through means that the hon. Lady’s party regrettably seems to oppose.

[Alistair Strathern (Hitchin) (Lab)]

T3.   It is impossible not to be inspired by my constituent Hayley and the bravery of her daughter, Lily, after Lily was diagnosed with an optic pathway glioma at the age of just one. Hayley stepped back from work not just to look after Lily but to make sure she was able to campaign for change. The Government’s commitment to a national cancer plan is welcome, but with brain tumours not typically being staged or screenable, how can we ensure that they are not overlooked as part of the plan’s development?

Oral Answers to Questions

Alistair Strathern Excerpts

Tuesday 11th February 2025 Commons Chamber

[Stephen Kinnock]

Our commitment to improving SEND conditions is universal. We are looking at this from the point of view of improving provision right across the country. I am very pleased that the PINS programme is making progress. I draw the hon. Lady’s attention to the early language support for every child—ELSEC—programme, in which nine pathfinder sites over two years will provide early identification, and targeted and universal support for children with speech, language and communication needs in early years and primary school settings. We are working very closely with colleagues across the Department for Education and NHS England on that.

[Alistair Strathern (Hitchin) (Lab)]

Local authority resources are a big driver of some challenges in the SEND system, but it is clear to anyone working in it that a systemic under-prioritisation of children’s health, all too often by local NHS trusts, is a big contributing factor. Young people right across my constituency waiting for assessment and lacking support are paying the price. As part of our 10-year plan to reform the NHS, how will we ensure that children’s health is front and centre again, with much more support for people with additional needs?

Health and Social Care: Winter Update

Alistair Strathern Excerpts

Wednesday 15th January 2025 Commons Chamber

[Wes Streeting]

I am grateful to the hon. Member for her question and for showing off her constituents’ uptake—that is exactly what we want. Perhaps ahead of next winter, we should launch a parliamentary competition: who can boost uptake most in their constituencies? We will think about the prize.

More seriously, I am always glad when the pressure is to expand access to vaccines—that is exactly the sort of pressure that we want. We follow advice from the Joint Committee on Vaccination and Immunisation. We will review the experience this winter, and the JCVI will review evidence and data this winter and make recommendations, which we will take into account.

[Alistair Strathern (Hitchin) (Lab)]

The dire state that the last Government left the NHS in was all too apparent, tragically, to many of my constituents who needed it last winter. My 85-year-old constituent admitted with breathing difficulties had to wait over 30 hours in a chair because there were no beds available, and they were far from alone in that indignity and prolonged suffering. They should not have to tolerate it, and I certainly will not as their MP. I welcome this Government’s action and leadership on ending the doctors’ strike and investing in more appointments, but what more will the Secretary of State do to ensure that, next winter, many more of my constituents are not suffering from the same challenges?

[Wes Streeting]

I am extremely grateful to my hon. Friend for the spirit of his question. That is exactly how this Government are approaching planning for next winter. I want year-on-year improvement in NHS performance, particularly our response to winter pressures. Of course, there are seasonal variations in infectious diseases, inclement weather and all sorts of other pressures that can impact on NHS services, but the system should be resilient enough to withstand pressures in any given winter. It will take time to get back there, but that is why the Government are already planning for next winter, learning from experience—what has worked well and what has not—so that we can continue to deliver for the people of this country and improve the national health service and social care services.

Oral Answers to Questions

Alistair Strathern Excerpts

Tuesday 7th January 2025 Commons Chamber

[Nesil Caliskan (Barking) (Lab)]

3. What assessment his Department has made of the adequacy of patient access to primary care services.

[Alistair Strathern (Hitchin) (Lab)]

9. What assessment his Department has made of the adequacy of patient access to primary care services.

[Calum Miller (Bicester and Woodstock) (LD)]

10. What recent steps he has taken to increase access to GP appointments.

--- Later in debate ---

[Wes Streeting]

Thank you, Mr Speaker. I would be delighted for my hon. Friend to meet me or the relevant Minister. The NHS has a statutory duty to ensure sufficient services in each local area, including general practice, and it is vital that we also take into account population growth and demographic changes. I strongly support the Deputy Prime Minister’s commitment to delivering 1.5 million new homes, and she and I know that that must be accompanied by local healthcare facilities. We are working together to achieve just that.

[Alistair Strathern]

I really welcome this Government’s focus on making sure everyone can see a GP when they need one. The crisis in GP provision nationally has been exacerbated by the failure under the last Government to ensure that primary care investment has kept pace with housing growth. With such a low share of integrated care board capital funding allocated to primary care by the last Government, how can we make sure we do much better in ensuring that GP capacity expands at the same time as local growth?

[Wes Streeting]

My hon. Friend has been raising these issues with me since before he was elected to this place on behalf of the communities he represents. As I said to my hon. Friend the Member for Barking (Nesil Caliskan), we must make sure that additional housing—which is desperately needed—is accompanied by health and care services. The Deputy Prime Minister and I are working together to achieve just that, and thanks to the decisions taken by the Chancellor in the Budget, we are able to invest in the health and care services that this country needs and deserves.