Less Survivable Cancers

Clive Efford Excerpts
Tuesday 6th January 2026

(2 days, 18 hours ago)

Westminster Hall
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Clive Efford Portrait Clive Efford (in the Chair)
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I am told that the Minister is on her way, but we will proceed because so many people want to speak. I remind Members to bob if they intend to make a speech, to give me a fighting chance of working out how long each Member will have to speak. It looks like Back Benchers will have an average of three minutes each, once we start.

Clive Jones Portrait Clive Jones (Wokingham) (LD) [R]
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I beg to move,

That this House has considered less survivable cancers.

It is a pleasure to serve under your chairship, Mr Efford. I declare an interest as a governor of the Royal Berkshire hospital; also, a family member has shares in a medical company. I am grateful to the Backbench Business Committee for allowing this debate, which I first asked for six months ago—[Interruption.]

Clive Jones Portrait Clive Jones
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I apologise.

Clive Efford Portrait Clive Efford (in the Chair)
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Is that the Minister calling?

Clive Jones Portrait Clive Jones
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Yes, that was the Minister calling me to apologise. [Laughter.]

I asked the Committee for the debate six months ago, but having it one month before the probable publication of a national cancer plan is not a bad date for it. I also thank the less survivable cancers taskforce, Cancer Research UK and Myeloma UK for their help and guidance in securing and preparing for this debate.

As I have mentioned many times here and in the main Chamber, I am a cancer survivor. The experience has shown me how important early diagnosis and effective treatment are to our outcomes. My diagnosis was delayed, because I was sent away by the first GP I saw and had to wait several months again before being diagnosed with breast cancer. Fortunately, my treatment was successful, but many others are not so lucky, especially those with less survivable cancers.

Every year in the UK, 90,000 people are diagnosed with a less survivable cancer—cancers of the brain, liver, lungs, pancreas, oesophagus and stomach. Together, they represent 40% of all cancer deaths and account for 67,000 deaths every year. The less survivable cancers have been overlooked for far too long. While many other cancers have seen major advancements in survival, survival rates for those six cancers have remained staggeringly low for the past 25 years. The collective five-year survival rate for those cancers is just 16%. The sad reality for the 90,000 people diagnosed with one of the cancers is that 75,000 will not survive more than five years. That is a school play someone will not see, a set of exam results that they will miss, or a first day at university, a graduation, a significant birthday of their own or of a loved one, or the birth of a grandchild that someone will not see.

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Chris Coghlan Portrait Chris Coghlan (Dorking and Horley) (LD)
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I commend my hon. Friend for securing this invaluable debate. My constituent Billy was just four years old when he passed away due to DIPG—diffuse intrinsic pontine glioma—which is an incurable child brain tumour cancer. Every nine days a child is diagnosed with it. At the request of Billy’s parents I asked the Government whether there was any more they could do for brain cancer research. I am delighted that the Government have since announced that they have allocated £13.7 million in funding to the National Institute for Health and Care Research brain tumour research consortium. Does my hon. Friend agree that allocating research into rarer cancers not only benefits the children who suffer from these horrific diseases but enhances our research and development capability more broadly, clinically, which is also a vital industry for the UK?

Clive Efford Portrait Clive Efford (in the Chair)
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Order. Interventions have to be a lot shorter. If Members are on the list to speak, it would be helpful if they saved their points for their speeches so that we can fit everyone in.

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None Portrait Several hon. Members rose—
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Clive Efford Portrait Clive Efford (in the Chair)
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Order. Before I call Paulette Hamilton, I want to say that we will stick to a three-minute limit, but it is very tight. I may have to shave a minute or two off the Front-Bench speeches at the end so that I can get everyone in. We will see how it goes.

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Monica Harding Portrait Monica Harding (Esher and Walton) (LD)
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It is a pleasure to serve under your chairship, Mr Efford. I congratulate my hon. Friend the Member for Wokingham (Clive Jones) on securing this vital debate on less survivable cancers.

As it is for many people across Parliament and the country, less survivable cancer is a personal fight for me. My brother-in-law, Group Captain Pip Harding, was diagnosed two years ago with glioblastoma, a devastating and aggressive brain tumour. His story illustrates both hope and what is still profoundly broken. Pip received pioneering oncothermia treatment from Dr Paul Mulholland, who has been mentioned by the hon. Member for Mitcham and Morden (Dame Siobhain McDonagh). The treatment shrank his tumour significantly; he had a prognosis of only six months to live with his five children and wife, but two years on he is still alive and well. But that treatment remains inaccessible on the NHS: he obtained it through his family and friends crowdfunding the treatment, which illustrates how those with the means and community support can access innovation while others cannot.

Glioblastoma remains one of the hardest cancers to treat, with little improvement in survival rates compared with many other cancers. We know that research funding for brain tumours has historically lagged behind need, and it receives a tiny fraction of overall cancer research pounds, which is a scandal when the disease disproportionately affects younger adults. I support the sterling work of the hon. Member for Mitcham and Morden on trials, and I echo her ask.

I have heard from many families in my constituency of Esher and Walton whose lives have been turned upside down by rare cancers. One constituent shared the anguish of watching their partner struggle with a less common blood cancer that had no clear trial available in the UK, even though promising research was under way abroad. These stories are not isolated. They reflect systemic issues, including diagnostic delays. Here, I will bring in my lovely sister Mary, who died just before Christmas. She waited for a diagnosis, but was misdiagnosed and died from bowel cancer. Trial access is limited and specialist expertise across regions is patchy. Just 82.5% of cancer patients in Esher and Walton began treatment within 62 days of an urgent referral, below the operational standard of 85%. Every per cent represents the heartbreak that my family felt this Christmas.

I also want to raise lobular breast cancer. It is the second most common form of breast cancer, yet it remains under-researched and under-supported. In collaboration with the lobular moonshot project, my constituent Kate Ford has been campaigning for the Government to commit £20 million for a dedicated research programme. However, after Kate had a meeting with the Secretary of State in July, the Government chose not to commit to that. Instead, they supported a broader research base, but that largely misses the point, because the status quo of research programmes means that rare cancers such as lobular breast cancer are effectively left behind.

Finally, I want to return to brain cancer and Owain’s law, which addresses issues where patients lose access to cutting edge therapies due to improper tissue preservation—

Clive Efford Portrait Clive Efford (in the Chair)
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Order. I call Dr Peter Prinsley.

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Rachel Taylor Portrait Rachel Taylor (North Warwickshire and Bedworth) (Lab)
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It is a pleasure to serve under your chairmanship, Mr Efford. I thank the hon. Member for Wokingham (Clive Jones) for securing this debate. I pay tribute to my hon. Friend the Member for Birmingham Erdington (Paulette Hamilton) for all the valuable work she does in this space, and to everyone who has shared very personal stories today, particularly my hon. Friend the Member for Southport (Patrick Hurley).

Pancreatic cancer is one of the least survivable cancers. Sadly, a number of constituents have written to me about the devastating impact this disease has had on their lives. One lost her stepmother to pancreatic cancer. For months, her stepmother’s symptoms were repeatedly misdiagnosed—she was even sent home from A&E on several occasions with painkillers or antibiotics—before she was finally diagnosed with stage 4 pancreatic cancer. She died just three months later, only three days after my constituent’s son was born. My constituent told me that she feels her son was robbed of a grandma.

Similarly, Jacqui wrote to tell me about the close friend she lost to pancreatic cancer and the profound effect it has had on her. Tracey, Irene and Janice also wrote to tell me about the loved ones they have tragically lost, and to advocate for better research and treatment for this cruel cancer. Each story is different, but every constituent who has written to me about pancreatic cancer has called for improved screening, earlier diagnosis and greater investment in research.

Kelly and Jennifer both wrote to me while a loved one was undergoing treatment for pancreatic cancer and was forced to deal with shortages of the medication they desperately needed. It is unacceptable that patients and their families must tackle medicine shortages on top of battling cancer.

I truly believe that this Government’s 10-year health plan will support patients fighting less survivable cancers by ensuring that they have access to new treatments and technologies that can diagnose cancer earlier. We must ensure that these cancers are detected sooner and treated more effectively, so that fewer families endure the heartbreak of supporting a loved one with a less survivable cancer. Also, as the Minister has done so well, we must continue to speak out so that people become more aware of symptoms early and seek help and diagnosis.

In my remaining seconds, I pay tribute to my local hospice, the Mary Ann Evans hospice, which provides care at home for many people across my constituency and neighbouring constituencies.

Clive Efford Portrait Clive Efford (in the Chair)
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I want Mr Jones to have a couple of minutes at the end, which means the Front Benchers have about eight minutes each.