Lobular Breast Cancer: Moon Shot Project

John Milne Excerpts

Thursday 9th July 2026 Westminster Hall

[Wera Hobhouse (in the Chair)]

We have quite a lot of members of the public in the Gallery; it is lovely to have you. You have been through the experiences and are affected by the topic of the debate. However, as is convention, I encourage Members to speak into the Chamber and through me as Chair and not turn round to the Gallery. That is not to be impolite; it is a convention of this Chamber, so please understand that.

[John Milne (Horsham) (LD)]

I beg to move,

That this House has considered Government support for the Lobular Moon Shot Project.

It is a pleasure to serve under your chairship, Mrs Hobhouse. MPs from across the House are here today to mark the anniversary of the death of my constituent Dr Susan Michaelis, founder of the Lobular Moon Shot Project. I thank the Backbench Business Committee for finding time at very short notice in the parliamentary schedule for this debate. Unfortunately, that short notice has prevented many MPs who would have liked to have spoken today from joining us. Unfortunately, that was a necessity.

Today is a sad moment because Susan is no longer with us, but it is also a time to celebrate what she has achieved. Susan was a remarkable woman. She was warm but incredibly stoic. At no time was that clearer than on her last trip to Parliament in the summer of last year, oxygen tank in tow. Determined but evidently suffering, Susan stood for 22 minutes in a silent vigil outside No. 10 Downing Street with fellow campaigners and lobular ladies around her. We all understood that Susan was in her last days or weeks, so to watch her husband, campaigners and fellow lobular ladies rallying around her, literally supporting her, was a sight to behold.

In her haste to deliver her petition to No. 10 that day, Susan had forgotten her ID. She was distraught. All that effort would be wasted, as the rules were clear: no ID, no entry. But that, of course, was not Susan’s way. Susan, with our support, blagged her way past security. Susan was never one to take no for an answer. Not long after, Susan died—just days after her meeting with the then Health Secretary.

It might seem odd to say, given that I met Susan when she was already very ill with the lobular cancer that she was campaigning to prevent, but I feel that I met her in her prime. It was immediately clear to me that this was a person with an unparalleled commitment to her cause. Despite her illness, Susan never looked for the sympathy vote. She was always calm and matter of fact. She led by example. It is a reminder that her cause, while not yet complete, is a worthy one, and with a champion to match.

Susan’s first campaign was in fact not lobular breast cancer; it was aviation safety. She flew commercial aircraft in the Australian outback, one of the few female pilots to take up this challenge, and piloted the first all-female crewed Qantas flight. This was before contaminated cabin air ended her flying career in 1997. She spent the following decades building the evidence base on aircraft cabin air contamination, with a PhD, an MSc, peer-reviewed research and a leading role in her home country’s Senate inquiry into cabin air quality. Her focus in her final years was on lobular breast cancer, and it is on this endeavour that I was pleased to support her as her local MP.

Susan was diagnosed with invasive lobular breast cancer in 2013. It was a one millimetre mark—no lump, no pain. Two mammograms and two ultrasounds told her that there was nothing to worry about. An MRI scan found 2.5 cm and surgery then confirmed 7 cm. That gap between what standard imaging can see and what is actually there is the heart of why lobular breast cancer needs its own research programme. It behaves differently. It is missed because it is different and it is currently treated exactly the same as the most common form of the disease, because the underlying biology has never been properly funded.

In May 2023, with her husband Tristan, Susan launched the Lobular Moon Shot Project in Horsham. She built it from nothing into a campaign that has cross-party support in this House, a partnership with the Manchester Breast Centre and a research plan costing £20 million over five years.

In June 2025, Susan travelled to Manchester to help launch the scientific programme that she had spent years fighting for. It was a programme that, of course, she knew she would never benefit from herself. Nine days later, Susan died. She never received a reply from No. 10 and never got a chance to make her case to the then Health Secretary. So today, I will again make the case to the Government on behalf of Susan, the 22 patients a day who are diagnosed with lobular breast cancer, and the 463 MPs who have publicly supported her campaign so far, which I believe is the highest number of MPs to publicly support any individual campaign.

Every day, 22 women in this country are told that they have lobular breast cancer—that is over 8,000 a year. This is not a rare disease; in fact, it is the sixth most prevalent cancer in women.

[Jim Shannon (Strangford) (DUP)]

I commend the hon. Gentleman for securing this debate. He has been very vocal on this subject matter and we all support him. I apologise to him, to you, Mrs Hobhouse, and to the ladies in the Public Gallery today, because I have an early flight home so I cannot be here to make a longer contribution to the debate.

This debate is not just about the women the hon. Gentleman has referred to. Alongside Northern Ireland’s Health Minister, Mike Nesbitt, I have met women in Northern Ireland who have lobular cancer. Some of them will not have a long time in this world and I was very moved by what they told us. Does the hon. Gentleman feel that now is the time for the Minister and the Government to ensure that the small amount of money that is needed to help to alleviate the health issues for women with lobular breast cancer is made available, as well as the money that is needed for research? If that happens, the ladies who are here today and my constituents in Northern Ireland can get the help they need.

[John Milne]

I thank the hon. Member for his contribution and I very much agree. I also note that the right hon. Member for Makerfield (Andy Burnham), who is potentially our next Prime Minister, comes from Manchester, has visited the clinic and is already familiar with the campaign, so I am hopeful.

As I was saying, lobular breast cancer is the sixth most prevalent cancer in women. That puts it ahead of melanoma cancer, ovarian cancer, brain cancer, kidney cancer and pancreatic cancer combined. Incredibly, there is still no specific treatment.

Breast cancer as a whole costs this country over £3 billion a year. It takes around 11,200 lives annually, or the lives of roughly 31 women a day. Many of these are lobular cases, yet lobular breast cancer receives none of the targeted treatment that drives down mortality for other forms of this disease. Every woman who is diagnosed with lobular breast cancer is given the same drugs, the same protocols and the same guidelines as someone with an entirely different cancer. That is because the basic biology of lobular has never been established.

It is this gap that the Lobular Moon Shot Project exists to close. We need £20 million over five years, which is just £4 million a year to crack the biology of this disease. That is not speculative research; it is a certain outcome. Other researchers in the UK and around the world can then take things forward to find targeted treatments, because this is a world problem and the world can find the solutions. Of course, there are many demands on Government funding and the national budget is always under pressure, but I think we would be hard pushed to find another project with such a relatively small need for such a big reward. This is a precise unfunded gap, and we already have a delivery partner in the shape of the Manchester Breast Centre, which is ready to begin this work.

I will conclude by quoting Susan’s husband, Tristan, who is sitting behind me in the Gallery—it is strange that I have to speak these words rather than him, but that is the procedure of the House. He said:

“The last overseas holiday Susan and I took together was to Easter Island, one of the most remote places on earth. Like so many people, I had always imagined the island’s famous stone statues—the moai—looking out across the Pacific Ocean. But when we arrived, we discovered something rather beautiful. Most of them face inland. We were told that they were positioned that way because they watch over their people rather than looking out to sea. Whether that is history, tradition or simply one interpretation, it touched us both deeply.

Before we left, Susan found a beautifully carved wooden replica of one of the moai. We brought it home together, and today it sits in our house. Every time I look at it, I think of Susan. It reminds me that although she is no longer physically with me, her love, her courage and everything she stood for remain with me every single day. In my heart, I like to think she is still watching over me, just as those remarkable statues have watched over their people for generations.

If Susan could stand in Westminster Hall today, she would not ask Members to remember her. She would instead ask you to remember the thousands of women diagnosed with invasive lobular breast cancer every year who still have no treatments designed specifically for their disease. That is why this debate matters. That is why the Lobular Moon Shot project matters. And that is why Susan’s legacy deserves not only our admiration, but our action.

As Susan’s husband, I know she would have been deeply humbled that Members from every corner of this House have come together today to honour her life. She never sought recognition for herself. She simply wanted to leave the world a little safer, a little fairer and a little kinder than she found it. My sincere hope is that history will remember this debate not simply as a tribute to one remarkable woman, but as the day Parliament chose to transform admiration into action for future generations of women diagnosed with invasive lobular breast cancer. That would have been the greatest tribute we could ever have paid to Dr Susan Michaelis.”

--- Later in debate ---

[John Milne]

I thank all hon. Members here present. Some really powerful points have been made. I particularly thank the Minister for his reply—I find it the most revealing reply of all that I have heard over the past year. Considering it is not even strictly his portfolio, I am very impressed. I hope that he or one of his colleagues will agree to follow up, because he has raised some very interesting points. I would like to consult with colleagues and follow up.

We are getting an understanding of the processes within Government for making these decisions. From the outside, it is very frustrating. I cannot tell when the Government are stalling or when they are really doing something. I mean that in general; I am not talking about this particular subject. I have had a number of meetings with completely different Departments this week, as it happens, with Ministers. It is very hard to tell when we are just being fobbed off and when we are actually on a path to a solution. I have been in politics only a couple of years; forgive my naivety.

I was very interested to hear what the Minister said and I felt he was more honest. I would really appreciate an opportunity to follow up either with him or his colleagues in the coming days.

Finally, I must pay tribute again to Dr Susan Michaelis for all her work. This day is of course the one-year anniversary of her death. I also pay tribute to all the lobular ladies, who are campaigning not just for themselves, but for everybody. This is a worldwide problem; it does not just affect us. I pay tribute to them all and I thank everyone today.

Question put and agreed to.

Resolved,

That this House has considered Government support for the Lobular Moon Shot Project.

Community Hospitals

John Milne Excerpts

Tuesday 16th June 2026 Westminster Hall

[Dr Savage]

I thank the hon. Gentleman for his perceptive intervention. Community hospitals often do feel more like a home from home. They are more accessible for a patient’s friends and family to visit, and they deliver better outcomes for patients and clinicians alike.

In the south-west, ambulance handovers at acute hospitals took more than 30 minutes in more than half of cases in January 2025—nearly 30% above the England average. A few months ago, I had the privilege to ride in an ambulance for a day. In what ended up being a 13-hour shift we attended only three call-outs. Maybe it was a quiet day—I am definitely not saying I wish there had been more grief out there—but we spent much of the day on the road and/or waiting outside hospitals, which did not seem the best use of a highly qualified ambulance crew and an expensive resource.

It will not be news to anybody in this room that our NHS is under pressure, yet, against the odds, community hospitals continue to perform. The Care Quality Commission reports that between 75% and 92% of community hospitals are rated good or outstanding, which is remarkable given that the number of district nurses working in them fell by around 55% between 2009 and 2024, with underinvestment and the loss of EU staff after Brexit cited as key causes.

[John Milne (Horsham) (LD)]

I recently met the chief executive officer of the newly combined Surrey and Sussex integrated care board, and urged her to consider the potential for expanding Horsham community hospital on Hurst Road into a neighbourhood hub, including a women’s health unit, to mitigate the lack of a general hospital in the area. Sadly, her first task has been to reduce her staff by more than half. Does my hon. Friend wonder, like me, what happened to the extra £29 billion that the Government invested into the NHS? It does not seem to have got anywhere near Horsham.

[Dr Savage]

That is a very good question that I hope the Minister will be able to answer. I pay tribute to the absolute heroism of the people who staff our community hospitals; they are delivering an incredible return on investment.

Access to Dental Services: West Sussex

John Milne Excerpts

Tuesday 16th June 2026 Westminster Hall

[John Milne (Horsham) (LD)]

It is a pleasure to serve under your chairmanship, Sir Desmond. I thank my hon. Friend the Member for Chichester (Jess Brown-Fuller) for shining a light on this important subject, which causes such distress for residents of West Sussex.

The Department for Health, like many Government Departments, has promised a consultation, as well as extensive reform of the dental contract. I appreciate that the Minister wants to get this right. He has said that the dental system is complex. He has also made it clear in the past that these changes will not be rushed. Speaking to dentists across my constituency and beyond, very few people would say that taking two years just to start a consultation could be called rushing.

The Government need to be clear with both dentists and patients. Dentists were told that the consultation would come last year; then they were told that it would come before the start of summer—but summer is more or less upon us, and we are still waiting. At this rate, the Government risk making no meaningful reforms to dentistry within this Parliament. This sense of political inertia is, of course, not confined to one Department, and we do not have to look far to imagine the reason for that.

Alongside those delays sits an equally serious issue: funding. The Government have been clear that no new funding is available for dental reform; I imagine that the Minister himself finds that deeply frustrating. Only about 40% of adults are effectively provided for within the current NHS dental budget, and even that is propped up by an estimated £1 billion cross-subsidy from private provision. The Public Accounts Committee was clear in its assessment: without frontloaded investment, meaningful reform has no chance of success.

What does this mean for residents in my constituency of Horsham? The honest answer is that we do not fully know, which is frustrating to say the least. Under the previous Conservative administration, West Sussex county council had not carried out a comprehensive oral health survey since before 2019. I have written to the new Lib Dem-led council asking it to ensure that West Sussex is included in the next survey, because without reliable data, we simply cannot design effective or targeted reforms.

The data that we do have is deeply concerning. A quarter of children in West Sussex are at high risk of tooth decay compared with a national average of roughly half that level. From an early age, we are sending out the message that oral health is not a priority. At the same time, we are seeing a growing reliance on urgent dental care, but as a substitute for routine check-ups. Preventive dentistry—the very foundation of a sustainable system—simply cannot function under those conditions. We risk raising a generation that engages with dental services only at a moment of crisis, and that will have profound long-term health consequences.

I am very much seeing the impact of this in my Horsham casework. One of my constituents, Gail, was recently removed, along with her daughter, from the dental register. It was not from any fault of her own, but simply because there are not enough dentists left who are willing to operate on NHS contracts. That is distressing enough for patients, but it is also deeply frustrating for dental professionals, who find themselves forced to turn away patients who they can see are in urgent need.

Another constituent, Medi, does have access to a dentist, but not locally, and we have heard the same from other Members. She has to travel three hours for her appointments in another part of the country completely. She suffers from arthritis, so the journey is not just inconvenient, but very painful. However, she cannot find anyone closer, and even the waiting lists are vague about when a place may eventually be available.

I have also heard directly from dentists in Horsham. One practitioner, who has worked in the NHS for over 15 years and has trained NHS dental graduates, told me that, each year, funding has become more constrained and the administrative burden continues to grow. Without proper support for preventive care, he warned, dentists simply “don’t stand a chance”.

[Carla Lockhart (Upper Bann) (DUP)]

The hon. Member is making a powerful point for his constituents. Similarly, in Northern Ireland only 50% of adults are registered with NHS dentists. Almost 400,000 registrations have been lost since 2023, and ultimately practices are leaving NHS dentistry because it is financially unsustainable. Would he agree with me that there needs to be a UK-wide look at this? While health is a devolved issue in Northern Ireland, there needs to be learning from the UK, because this is not just about waiting times, but about people finding a dentist who will actually take them on. Does he agree with me that we need a UK-wide resolution?

[John Milne]

I very much agree that this is a national crisis. Some local authorities or local ICBs are better than others, but this is basically a national problem and needs national action.

The dentist I mentioned has told me that many of his peers have already stopped offering NHS services, and the ones left are increasingly considering doing exactly the same. That tells us that the entire dental system is slipping into freefall. The broader figures reinforce the local picture. Only 40% of adults in West Sussex have seen a dentist in the past two years, which is a fall of 7%. Among children, the figure has dropped from 63% to 58%. Over the past five years, the number of residents per dentist in West Sussex has increased by a fifth. That is a huge jump, and further evidence that the system is heading for collapse.

From my conversations with the chief executive officer of the newly merged Surrey and Sussex ICB, I know that dentistry is a priority area for her and that the team are doing their best to introduce flexibility where possible. However, they face cuts of up 50% in budgets and staffing, which are enormous challenges not just for the leadership, but for the NHS teams on the ground. There is real concern that, unless we change now, dentistry risks becoming an expensive luxury, rather than a universally accessible service.

To conclude, the combination of delayed reforms and reduced funding is leaving patients without access to care and professionals without the support they need to provide it. Oral health inequalities continue to widen. I appreciate that this Government are once again picking up the pieces from their Conservative predecessors, but the obligation now falls on today’s Ministers. Unless we see a change in trajectory, we will be left with exactly what the Public Accounts Committee warned us about—no money, no reform, no teeth.

Secondary Breast Cancer

John Milne Excerpts

Thursday 11th June 2026 Westminster Hall

[John Milne (Horsham) (LD)]

It is a pleasure to serve under your chairmanship, Mr Betts. I want to focus on something that sits at the heart of improving outcomes for people living with secondary breast cancer: data, research and recognition. That especially applies to people suffering from lobular breast cancer.

Last year, my office asked the Government whether the new national audit of metastatic breast cancer would provide a breakdown by breast cancer subtype and hormone receptor status. The response from the Department of Health and Social Care was striking. The Government have effectively admitted that the data is simply not there in any complete or meaningful form. There is still no clear national picture of how many people are living with different forms of secondary breast cancer, what treatments they receive or the outcomes they face. That matters because, if we cannot accurately count metastatic breast cancer patients, we cannot properly plan services, understand needs, target research funding or develop treatments. We cannot fix what we do not measure.

That is especially true for lobular breast cancer. Invasive lobular carcinoma is the second most common form of breast cancer. Twenty-two people are diagnosed with it every day in the UK, yet it remains chronically under-researched and poorly understood. Unlike ductal breast cancer, lobular cancer often does not form a distinct lump. It grows in thin, single-file patterns, making it much harder to detect on standard mammograms and often leading to delayed diagnosis.

Secondary lobular breast cancer also presents further challenges because it tends to be found in untypical places, such as the liver, lungs, brain, bladder and even the eyes, whereas other types of breast cancer spread mostly to the bones. Despite those key biological differences, there is still no specific treatment pathway designed for lobular breast cancer patients. That is extraordinary, considering how many women are affected.

For too long, secondary and metastatic lobular breast cancer has existed in a blind spot. Historically, cancer registries have focused on primary diagnoses and have often failed to track recurrence or progression properly. Mandatory reporting has improved matters somewhat over the last decade, but huge gaps remain. That is why the work of campaigners and researchers has been so important.

I especially want to recognise and pay tribute to Dr Susan Michaelis, founder of the Lobular Moon Shot Project. She was one of my Horsham constituents, and she sadly died of lobular breast cancer almost a year ago. Susan was relentless in pushing this issue into public view. She understood that, without data, dedicated research and recognition that lobular breast cancer is different, progress would remain unacceptably slow. Her work has already helped encourage NHS England to release the first dedicated statistics on lobular breast cancer, but much more needs to happen.

This is about more than statistics. It is about people living for years with secondary breast cancer while feeling invisible within the system. Better subtype data would help us understand metastatic disease properly. Better research would improve diagnosis and, ultimately, dedicated treatment pathways for lobular breast cancer could help us move closer to what patients want to hear most of all: that their cancer is not just treatable, but curable.

The Lobular Moon Shot Project is looking for just £20 million over five years to fund research into the basic biology of lobular breast cancer. Researchers at the Manchester Breast Centre are ready and willing to take on the mission—they could start tomorrow. The Lobular Moon Shot Project is supported by more than 460 sitting MPs, more than can be found on any other single issue. All it needs now is for the Government to press the button. While we wait for that, women face poorer outcomes and require medications that were actually designed for other types of cancer, which cost upwards of £3,000 per month. Now is the time for the Government to commit to front-loaded funding to save lives, save money for the NHS and, most of all, demonstrate to those women that they matter. I ask the Minister for her support in finding the modest investment required to find answers for this very common but, sadly, much-neglected disease.

[Mr Clive Betts (in the Chair)]

I am supposed to be neutral in the Chair, but I think I am allowed to give a particularly warm welcome to Ashley Dalton.

Disability Equipment Provision

John Milne Excerpts

Wednesday 11th March 2026 Westminster Hall

[Alison Bennett (Mid Sussex) (LD)]

It is a pleasure to serve under your chairmanship, Mr Betts. I am grateful to the hon. Member for Aberdeenshire North and Moray East (Seamus Logan) for securing this debate, which is timely because I want to highlight the case of a constituent and ask the Minister to work collaboratively with colleagues in the Department for Work and Pensions to intervene urgently in what has become a deeply troubling example of administrative failure in the DWP’s Access to Work scheme.

My constituent lives with cerebral palsy and ME. She wants to do exactly what Government policy encourages people to do: work, contribute and maintain her independence. To do that, she requires a wheelchair through the Access to Work programme—an essential piece of equipment that enables her to remain in employment. My constituent has done everything asked of her ever since her first application in July 2024. Her assessment was completed, quotes for a suitable chair were submitted and the case had progressed to the point of an award. Then, the system failed her. In September 2025, her case manager informed her that he was retiring, and that the case had been passed to a colleague, who would contact her. That contact never came.

Despite my constituent’s repeated attempts to follow up, no one in the Access to Work scheme took ownership of the case or progressed the order. Instead, months later, she was told that her case had been closed due to “no contact” since July, which was demonstrably untrue. When my office intervened, the Department acknowledged the issue, and stated that it would contact my constituent within 10 working days. That deadline then passed. When she attempted to chase the matter herself, she spent nearly an hour on hold, only to be told that the manager was unavailable. What is perhaps most concerning is the reason now being given: the Department would prefer my constituent to submit a completely new application for the wheelchair, rather than reopen the existing case, purely because reopening it would affect its management information.

[John Milne (Horsham) (LD)]

Last year saw the first fall in Access to Work approvals in more than a decade, including a 16% drop in approvals for aids and equipment, despite the alleged surge in disability claims overall. That suggests that, behind the scenes, the Government have instructed the DWP to get tougher on approval criteria, but without announcing any formal change to policy in public. Does my hon. Friend agree that that is a strange way to go about improving employment prospects for the disabled?

[Alison Bennett]

My hon. Friend makes an important and interesting point, and I very much want to get underneath the detail of why that change has happened.

Returning to my constituent’s case, I want to ask the Minister three questions to which I believe my constituent deserves a response; if he is not able to answer them, perhaps he can write and raise these matters with the correct Minister. First, does the Minister agree, as I hope he does, that the case should urgently be reopened? Secondly, does he disagree with the DWP’s apparent position that the integrity of its management information is more important than ensuring that a disabled person has the equipment that they need to work? Thirdly, will he ask his colleagues in the DWP to review the so-called integrity of the Department’s management information, given the serious concern that cases may be closed and replaced with new ones in a way that creates the appearance of efficiency, when the reality for constituents like mine is repeated failure?

At its best, Access to Work is a transformative scheme, but when the system fails and the metrics appear to matter more than the people who the scheme exists to support, confidence is undermined. My constituent is not asking for special treatment; she is simply asking for the Department to finish the job it started. I hope the Minister will help me to swiftly put that right.

ADHD Diagnosis

John Milne Excerpts

Tuesday 20th January 2026 Westminster Hall

[Bill Esterson]

My hon. Friend is absolutely right, and he has made a very good point. My son has been diagnosed with ADHD—belatedly, like so many—but we were told early on that having a diagnosis would not help him. How wrong that was, because the diagnosis was the key to getting support and understanding what we were dealing with, both for him and for us as his carers. There is a lot of misinformation around, and getting that right is key, but yes—

[John Milne (Horsham) (LD)]

I am sorry for interrupting the hon. Member. Education, health and care plans are not supposed to depend on or require a formal diagnosis of ADHD but, in practice, that is how local authorities apply them. Families are far more likely to be challenged by the local authority if they do not have that diagnosis but, in my own area of West Sussex, the predicted waiting time for assessments has now risen to four and a half years, which is virtually an entire secondary education. Does the hon. Member agree that that Catch-22 situation requires urgent action from the Government?

[Bill Esterson]

The hon. Member is making the same point, which is that we need to clarify and have consistency across the country. That is, again, something that I hope will come out of the work that the Department is doing. I know that it is carrying out its own review and drawing on the work of the independent taskforce.

Suicide: Reducing the Stigma

John Milne Excerpts

Wednesday 19th November 2025 Westminster Hall

[Sarah Olney]

I am grateful to my hon. Friend for that encouraging example of how taking steps to reduce the stigma around suicide can have a positive impact, and how we need a community approach to help reach out to all those people who might be struggling.

Although talking about mental health is becoming more socially acceptable, to what extent are we asking the challenging questions? To what extent do we really want to know how other people are getting on, and to what extent do people who are suffering feel comfortable in talking honestly about how serious their struggles are? For those reasons, I want to echo my constituent Philip Pirie’s calls for the Government to launch a public health campaign to truly tackle the stigma associated with suicide.

As we have seen today, the Secretary of State for Health and Social Care has launched his men’s health strategy. He promised the Samaritans that

“mental health and suicide prevention”

would be at the “heart of it”. Everyone in the House will welcome these words and the recognition that the men’s mental health crisis needs serious attention. I would like the Secretary of State to go one step further and consider a public health campaign with posters and adverts on TV and radio, and to hold regular open discussions with the public on the topic of suicide.

[John Milne (Horsham) (LD)]

As chair of the all-party parliamentary group for rural business and the rural powerhouse, all too often I hear devastating stories of suicide in the farming community. Campaigns such as the Farm Safety Foundation’s Mind Your Head play an important role in encouraging frank and honest conversations. We know that 95% of young farmers say that mental health is the biggest hidden danger in the sector. I fully support my hon. Friend’s call for a national awareness campaign; does she also agree that cuts to the rural England prosperity fund should be reconsidered, given the vital support it provides to rural-focused services, including those for mental health?

[Sarah Olney]

My hon. Friend makes an important point about how specific groups and particular sectors can be impacted. Just under an hour ago I was having a conversation with my friend Diana Chrouch, who is the adviser to the APPG for ethnic minority business owners, of which I have been a co-chair for many years. She pointed out that there is a high risk of suicide for people working in the construction sector. I think it would be valuable to identify particular risk areas, and design a strategy that could reach out to them, but I also fully support my hon. Friend’s call on the subject of the rural England prosperity fund.

In the late 1980s, the UK launched a public health crisis to raise awareness of the AIDS epidemic. That was hugely successful: it not only raised awareness of safe sex practices, but served to reduce the stigma and falsehoods associated with the illness. At the peak of the AIDS epidemic in the UK in 1994, just over 1,500 people died from the illness. In the UK last year, more than 7,000 people died from suicide. That figure is growing, and the suicide rate for young women under 24 saw the steepest increase since records began.

As the Secretary of State identified in his men’s health strategy, underlying addictions, such as gambling and drug addiction, often cause or exacerbate mental health conditions. Those addictions can cause isolation and financial difficulties and destroy relationships. As the Government strategy identifies, 12% of participants in the gambling survey for Great Britain reported that they had thought about, or attempted, taking their own life. Many betting stores are positioned on high streets of deprived areas in the UK. We must acknowledge the link between gambling addiction, poverty and suicide.

The statutory levy imposed on gambling firms is a positive step, and I am pleased that the funds raised will be directly invested into gambling harm prevention, research and treatment, but what steps are the Government taking to engage those who treat, or provide support to, people with a gambling addiction to directly address the risk of suicide among their patients? What more can be done to integrate the identification of suicide risk into our approach to treating addictions of all sorts? What more can the gambling industry in particular do to mitigate the impact that its activities have on vulnerable people, particularly in the light of the enormous profits that it makes as a result?

Exercise can be a positive outlet for many people who are struggling with mental health difficulties, enabling them to set targets, grow their confidence and involve themselves in sociable activities. However, there can be a reductive narrative about the relationship between exercise and mental health, and that can be dangerous. Some influential, outspoken figures have dismissed the real and serious issues that people are struggling with by instructing people that going to the gym is the simple answer. For most people, a workout in the gym will encourage body positivity and self-confidence, but for some, the constant need to achieve a perfect body can lead to obsessions and eating disorders.

I support the Government’s recently announced work with the Premier League. Conversations about mental health also need to start in gyms and sports clubs, so I encourage the Government to target local sporting hubs to widen awareness of mental health, and to encourage those struggling to speak with friends, families or mental health professionals. Can the Minister tell me whether the engagement of sports bodies and mental health initiatives includes a specific recognition of suicide risk, and the ways in which sports clubs and coaches can assist in identifying and responding to suicidal intentions among the young men, in particular, with whom they work?

More also needs to be done to encourage support for employees in the workplace. Whether they are a new or experienced member of staff, reaching out to their line manager or boss to let them know about the difficulties they are facing, and to request additional consideration—whether that means an adjustment to working hours or time off to see a mental health professional, or just letting them know the stress that they are experiencing at work or in everyday life—can be daunting. I encourage the Minister to increase awareness of best practices to support employees’ mental health in the workplace, and ensure that those who are struggling receive the support that they need. What more can be done to assist employers with training on how to respond if they recognise that one of their employees is struggling with a mental health issue? How can workplaces support some of those difficult conversations that might make all the difference in saving a young life from suicide?

Myalgic Encephalomyelitis

John Milne Excerpts

Wednesday 19th November 2025 Westminster Hall

[Ashley Dalton]

While NHSE is in the process of being dismantled, all its functions continue, and the new Department of Health and Social Care will continue all its work. None of that is being got rid of; it is simply being brought together into a more efficient, new Department of Health and Social Care. The Department will continue to meet a group of key stakeholders to move the work forward on mild and moderate ME/CFS in the coming weeks. Additionally, I confirm that the DHSC has already started conversations with NHS England to explore a specialised service prescribed by the Secretary of State for Health and Social Care for severe ME/CFS. That work will continue.

Changing attitudes is as important as changing services to many people with ME/CFS who have faced disbelief or stigma. As outlined in the plan, we will address that by launching a public awareness initiative to improve understanding of the condition and the support available. We will work with schools, employers and social care providers to ensure that children and adults with ME/CFS receive the information and support that they need.

[John Milne (Horsham) (LD)]

Will the Minister give way?

[Ashley Dalton]

I will not, as time is short.

To support healthcare professionals in diagnosis, as set out in the final delivery plan, the Department has worked with NHS England to develop an e-learning programme on ME/CFS for all healthcare professionals. The aim is to support staff so that they can provide better care and improve patient outcomes.

The plan was not developed in isolation. It reflects thousands of consultation responses and the input of the cross-sector task and finish groups. We repurposed the task and finish groups into a new post-publication stakeholder engagement group, and we look forward to working closely with it during the all-important implementation phase.

I recognise that some stakeholders feel that the plan does not go far enough, but let me be clear: this is not the end of the journey; this is simply the foundations. Our work does not stand alone; it stands on the broader ambition to transform the NHS from a sickness service into a health service. We are working with the DWP and the Department for Education to ensure that all the issues raised are considered, in particular during the Timms review.

ME/CFS has been overlooked for far too long. We are determined to change that. To everyone living with ME/CFS and to your families and carers, I say this: we hear you; we value you; we believe you; and we are committed to making the system work better for you and with you. Together, we can build a future where everyone receives the care, respect and support that they deserve.

Baby Loss

John Milne Excerpts

Monday 13th October 2025 Commons Chamber

[John Milne (Horsham) (LD)]

I pay tribute to all the moving speeches we have heard so far tonight.

There are few losses in life more devastating than that of a child—it is every parent’s greatest fear—but when a baby dies just as life is beginning, at the very moment when joy and expectation are at their highest, the pain is all the harder to bear. Chloe and Toby from my constituency of Horsham, along with nine other Sussex families, have gone through this unimaginable experience. Their babies died in the care of the University Hospitals Sussex NHS trust between 2021 and 2023. Chloe and Toby are not natural campaigners; it is not something they ever expected or wanted to do. They are simply grieving parents looking for truth, accountability and, above all, change.

University Hospitals Sussex, like public services in general, is under immense pressure. Staff are working in a system stretched beyond capacity. I want to acknowledge the efforts of the countless clinicians, midwives and support staff who show up day in, day out. They, too, have been let down by the system; it is not just the families. Nevertheless, the fact remains that something has gone seriously wrong. Nine babies have died in circumstances that the families believe were avoidable, and thus far they have not had satisfactory answers.

Fundamentally, this is about trust. Trust needs to be restored. For that to happen, we first need to fully understand what went wrong. I understand that things can go wrong in any profession—and my own father was an obstetrician—but, unfortunately, in obstetrics the consequences can be devastating. I very much support the words of the right hon. Member for Godalming and Ash (Sir Jeremy Hunt), who said that this is not about launching some kind of witch hunt, which could actually get in the way of preventing further tragedies in the future, because the key thing, and what we need to focus on, is avoiding blame and openly sharing and fixing problems. However, we must shine a light on past mistakes.

In Sussex, Members of Parliament from across the House are working together on this issue, and I look forward to continuing those conversations with my colleagues locally later this week. However, the trust itself acknowledges that improvements are needed, and I welcome the work already under way to make maternity care safer. However, if this review is to succeed and to carry the confidence of the very people it is meant to serve, it must be guided by the right person. The Government have appointed Baroness Amos to lead the review. She commands great respect, and I have no question about her personal abilities or integrity. However, as I have said, the key issue here is trust, and in that respect she is not the right choice for Sussex. I ask the Secretary of State for Health to listen to what the families are saying in Sussex, which is that Donna Ockenden be appointed to oversee the review at University Hospitals Sussex.

[Jess Brown-Fuller (Chichester) (LD)]

I thank my hon. Friend for highlighting the trust that Donna Ockenden has built through the work she has done, with those Sussex families, and indeed families in Nottingham, Shrewsbury and Telford. Her report in 2022 laid out immediate and essential actions. She deliberately did not call them recommendations; they were actions that needed to be taken. They must be delivered in full, so does my hon. Friend agree with me that we cannot lose any more time and that those actions need to happen alongside the inquiry that is now taking place? We cannot afford to delay, and these families deserve to see those actions implemented now.

[John Milne]

I thank my hon. Friend and fellow Sussex MP for her intervention, and I very much agree with her. Donna is a midwife herself, and she has been personally involved with the families in Sussex.

[Richard Burgon (Leeds East) (Lab)]

The points that the hon. Member is making about the choice of people to oversee the review or inquiry reflect the points made to me by two of my constituents, Amarjit and Mandip, who would have their daughter with them today were it not for failures at the Leeds general infirmary. The point they made to me is that they want any review or inquiry to be clearly and demonstrably independent from the people who had a role in running the Leeds teaching hospitals NHS trust in the past. Does he agree with me and my constituents on this point, and does he share my hope and trust that the Secretary of State will weigh that request very heavily before he meets the families?

[John Milne]

I thank the hon. Member for his intervention, and yes, that sounds like a very similar situation. As I have said, this is all about trust.

I understand that concerns have been raised about Donna’s workload and the risk of relying too heavily on one person, but Donna has indicated that she is willing to participate. I am sure that she would not say so unless she were confident that she could give this task the care and attention it needs. Unless we restore trust, we risk further harm, further delays and further grief, which none of us wishes to see.

Access to NHS Dentistry

John Milne Excerpts

Thursday 22nd May 2025 Commons Chamber

[John Milne (Horsham) (LD)]

Since being elected to represent Horsham, I have been approached by many residents facing impossible prices for urgent dental treatment. Annie is 67 and caring for a husband with terminal bowel cancer. You would think that she has enough things to worry about, but given the state of dental services in the Horsham area, she has been unable to find an NHS dentist within a 20-mile radius. Forced to go private, she paid £80 for an assessment and was then quoted £150 for an extraction. She asks simply:

“When will an alternative to private dentistry be available?”

I also heard from Sally. Her family were denied NHS root canal treatment, with an £800 private option as the only alternative. She asks:

“How can we trust their advice when it feels like it’s all about the money?”

Of course, this is a crisis not of dentists, but of dentistry. The NHS contract—based as it is on units of dental activity—is simply no longer fit for purpose, if it ever was. The conflict of interest between public and private is the result of more and more dentists being forced to subsidise their NHS contracts through private work. The Government have committed to providing more support and more urgent appointments, but it is hard to get enough new employees through the front door when so many continue to leave by the back door.

In the area covered by my local integrated care board, there are more people leaving than joining across many key dental roles. Over a six-month period to the end of March last year, there were 41 general dentists in and 43 out; one orthodontist in and two out; 48 dental nurses in and 60 out; and 48 receptionists in and 54 out. In fact, five out of nine roles in dentists’ clinics have been losing staff faster than they can get new ones. The result is ever-declining access to NHS dental services, with children losing their teeth before they even reach the age of 10 and the horror stories of do-it-yourself dental treatment.

I will leave the House with the words of the West Sussex local dental committee, which contacted me just weeks after my election last year regarding the NHS dental contract. Its warning was simple:

“If we don’t act quickly, there may be very little NHS left to adopt a new NHS contract.”

I accept that the present Government were not responsible for causing this problem, but they are responsible for fixing it.