Stem Cell Transplant Patients

Debate between Neil O'Brien and Mark Tami

Monday 12th June 2023 Commons Chamber

[The Parliamentary Under-Secretary of State for Health and Social Care (Neil O’Brien)]

I congratulate the right hon. Member for Alyn and Deeside (Mark Tami) on securing this important debate, and I congratulate the other hon. Members on speaking interestingly about their personal experiences in this field. As chair of the all-party parliamentary group on stem cell transplantation and advanced cellular therapies, the right hon. Member for Alyn and Deeside speaks from particular personal experience and I think everyone will have been delighted to hear the wonderful update about Max.

For people living with blood cancers and blood disorders, stem cell transplants are a potentially life-saving treatment. That is why we continue to invest in improving clinical outcomes and access to transplants. Since 2011, Government funding of more than £28 million has made possible the establishment of a unified stem cell registry, a cord stem cell bank, and a strategy to recruit donors to meet the needs of our increasingly diverse population. Over the next three years, we are investing £2.4 million more to increase the resilience of the UK stem cell supply and to address health inequalities with targeted campaigns to recruit donors from ethnic minorities. The right hon. Gentleman mentioned Anthony Nolan, which gives me the opportunity to thank that charity for its tremendous work with the NHS to build up the stem cell register.

As we know, the very nature of these transplants means that patients are among the most vulnerable in society. They are left with seriously weakened immune systems, for all the reasons the right hon. Gentleman has given. To help households and individuals to cope with the rising costs of living, we are providing some of the most generous cost of living support in Europe, worth an average of £3,300 per household this year and last. As well as the action on energy prices, that includes payments to more than 8 million UK households receiving eligible means-tested benefits, and to 6 million people across the UK in receipt of eligible “extra-costs” disability benefits.

For those needing extra support, the Government are providing an additional £1 billion to allow the extension of the household support fund in England this financial year. Our energy price guarantee is helping millions of people to deal with rising energy costs, and, as the Chancellor announced in the spring Budget, it will be extended, at £2,500, for an additional three months from April until the end of June. That means that by the end of June we will have covered nearly half a typical household’s energy bill, with a typical household saving about £1,500.

The right hon. Gentleman rightly raised the importance to patients of keeping warm, and the warm home discount is a key policy in our programme to tackle fuel poverty and help low-income households with the cost of energy, whatever the reason for their low incomes. It gives low-income and vulnerable households throughout Great Britain an annual £150 energy bill rebate every winter, and since it began in 2011 we have provided more than £3.5 billion in direct assistance for households. The scheme obliges participating suppliers to provide rebates for eligible low-income and vulnerable households.

In order to target fuel poverty better and provide the vast majority of rebates automatically, we have expanded and reformed that scheme for England and Wales from 2022-23 onwards. That includes those receiving universal credit, for which stem cell transplant patients may well be eligible. Depending on their specific needs, stem cell transplant patients may be entitled to financial support to contribute towards their extra costs, which may include the personal independence payment. PIP can be paid in addition to the other financial and practical support that may be available through universal credit.

The Government are committed to ensuring that people can access this financial support in a timely manner. While waits are still too long, they are coming down dramatically and we are constantly improving the service. Claimants are kept informed and are updated at each stage of the process—for instance, through a text message service—and in most instances any awards can be backdated to the date of the claim.

I know—not least because of the right hon. Gentleman’s comments this evening—that rising travel costs represent a significant burden for stem cell transplant patients and their families. Recipients of certain benefits, including the personal independence payment, can apply for extra help with travel costs, such as a disabled person’s railcard, a blue badge or a vehicle tax reduction. NHS trusts can also exercise discretion to provide accommodation and other support, including transport, depending on local and individual patient circumstances. Depending on their financial circumstances, patients may be able to access extra help with travel costs, such as the NHS low-income scheme and healthcare travel costs scheme.

[Mark Tami]

Does the Minister accept that if we require patients to attend specialist centres—which I fully support; indeed, perhaps we need to go further in that regard within the NHS—we should think about how we can help those who have to travel long distances to cover their costs, given that they cannot receive that treatment at the hospital down the road?

[Neil O’Brien]

I would agree with the hon. Gentleman. I was talking about one scheme, the healthcare travel costs scheme, but patients might also be eligible for non-emergency patient transport, on which we spend about £500 million a year across England. We will continue to look closely at the future of that, not least because of the hon. Gentleman’s comments this evening.

British Library Board (Power to Borrow) Bill

Debate between Neil O'Brien and Mark Tami

Friday 13th March 2020 Commons Chamber

[Neil O’Brien (Harborough) (Con)]

This is an excellent Bill, and I pay warm tribute to my hon. Friend the Member for Hitchin and Harpenden (Bim Afolami), whose constituency I zoom through every morning on my way here, for bringing it to the House. He has spotted an important lacuna in the law and an opportunity, at no cost to the taxpayer, to get more value out of one of our most important public institutions. I congratulate him on bringing the Bill forward and I hope it makes progress.

Like my hon. Friend, I want to pay tribute to the important role of books and public libraries in our community life, and in my own life. Like him, I probably would not be here if it were not for libraries and books, whether it was Kirklees library, which we have already heard about, which used to drive its little van around Dalton when I was a child, or Huddersfield public library—the children’s bit in the basement where I enjoyed much of my childhood. At university, I was lucky to be able to use the Bodleian, an incredible library, and to stand outside the Radcliffe Camera—for bibliophiles, it is this wonderful vent where the smell of old books is wafted at you on an industrial scale. I am not sure I ever really benefited from the intellectual resources of the library, but at least I enjoyed the smell.

In my own constituency, there is the wonderful work done by places such as Kibworth community library and Fleckney library, which is not just a great library; it also has a wonderful café and is a hub for the community where all kinds of other things happen.

[Mark Tami (Alyn and Deeside) (Lab)]

I wonder whether the hon. Gentleman has been to St Deiniol’s library in Hawarden in my constituency, which is the home of Gladstone. What is interesting about that library is that Gladstone had a habit of crossing out the things he disagreed with and writing in what he thought was appropriate, and it is fascinating to see those books.

[Neil O’Brien]

I thank the right hon. Gentleman for drawing that to my attention. It seems a typically Gladstonian move. I would love to visit that library at some point; perhaps we should have a library exchange.

It should be a great source of pride for this country that the British Library is literally, by catalogue size, the largest library anywhere in the world. It currently holds between 170 million and 200 million items and, frankly, I love the uncertainty of that. I have often wondered, “How do you know if you have too many books?” I think if one is unable to number them except within a range of plus or minus 15 million, it is possible that one has too many books. That is slightly unfair on the British Library, because it knows how many books it has; the uncertainty comes from the fact that there are so many other things in there, and my hon. Friend the Member for Hitchin and Harpenden already mentioned the gravestone and the possibility that the “Edstone” may reside there.

As well as 30,950,000 books, there are 824,101 serial titles, 351,116 manuscripts, 8,266,000 philatelic items or stamps, 4,347,000 cartographic items or maps, and 1.6 million music scores. As has been mentioned, the British Library grows its collection by 3 million items every year and currently requires 625 km of shelf space, which is growing by 12 km a year. To put that into context, that is enough for roughly three speeches by my hon. Friend the Member for Witney (Robert Courts)—[Laughter.] In the virtual space, the library harvested over 70 terabytes of web content for the UK web archive in 2016. We are not sure at present how many of the 70 terabytes consist mainly of cat gifs, but we do know that the library is cataloguing everything with a .uk domain, so we are in a slightly meta position here in that, as we speak, our words are being catalogued by the very institution that we are discussing.

The British library also contains a huge amount of recorded music and sound, much of which is available on British Library Sounds. I will return to this point about digital content, but someone can go on to the site, as I did in preparation for this speech, and listen to Dinka songs from South Sudan, endangered Micronesian recordings, which are sort of like mid-1980s rave music, or someone from the Edwardian era singing “Seventeen come Sunday” on to a wax cylinder. It is difficult to think of a more consequential library in history than the British Library.