Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what steps his Department is taking to improve access to specialist care and support for people living with motor neurone disease.

NHS England commissions the specialised elements of motor neurone disease (MND) care that patients may receive from 27 specialised neurology centres across England. Within these specialised centres, neurological multidisciplinary teams ensure patients can access a range of health professionals and specialised treatment and support, according to their needs.

At the national level, there are a number of initiatives supporting service improvement and better care for patients with MND, including the Getting It Right First Time Programme for Neurology and the RightCare Progressive Neurological Conditions Toolkit.

In August 2025, NHS England updated its service specification for specialised adult neurology services. It outlines a number of minimum service requirements for key specialties, including neuromuscular disorders like MND.

Baroness Casey has set out that the Government must take immediate action on motor neurone disease. Where someone has a severe, reasonably predictable, and life-limiting condition, it is essential that we provide rapid access to the support they need, and we will take forward immediate work to develop a fast-track process, or “passport”, that speeds up assessments and access to care for people diagnosed with MND. We will consider how best to safely implement a process that expedites assessments and gets people with MND the care and support they need more quickly.