Tofersen

(asked on 10th October 2025) - View Source

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, whether his Department plans to publish data on the number of patients receiving Tofersen through NHS services.


Answered by
Zubir Ahmed Portrait
Zubir Ahmed
Parliamentary Under-Secretary (Department of Health and Social Care)
This question was answered on 6th November 2025

I am aware that the marketing authorisation holder has established an early access programme (EAP) through which some NHS patients are currently accessing tofersen. This is a company-led EAP and therefore the Department nor NHS England centrally hold prospective information regarding the exact number of patients receiving tofersen.

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