Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, whether his Department plans to publish data on the number of patients receiving Tofersen through NHS services.
I am aware that the marketing authorisation holder has established an early access programme (EAP) through which some NHS patients are currently accessing tofersen. This is a company-led EAP and therefore the Department nor NHS England centrally hold prospective information regarding the exact number of patients receiving tofersen.