Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps he is taking to increase the number of specialist Parkinson’s nurses.
We recognise the importance of a timely diagnosis of Parkinson’s disease and remain committed to delivering the National Health Service constitutional standard for 92% of patients to wait no longer than 18 weeks from Referral to Treatment by March 2029. We are investing in additional capacity to deliver appointments to help bring lists and waiting times down. Our Elective Reform Plan, published in January 2025, sets out the specific productivity and reform efforts needed to return to the constitutional standard.
By expanding community-based services for routine monitoring and follow-up, employing artificial intelligence for productivity and investing in digital tools and data, as outlined in the 10-Year Health Plan, we can ensure that consultants’ time is reserved for complex cases, including specialist diagnostic assessments, which are critical for people with suspected Parkinson’s.
Integrated care boards (ICBs) are responsible for commissioning services that meet the needs of their population, including for Parkinson’s. In doing so, the Government expects ICBs to take account of the relevant guidelines and best practice in designing their local services. The National Institute for Health and Care Excellence guideline on Parkinson’s disease (NG71) states that people with Parkinson’s should have an accessible point of contact with specialist services, which can be provided by a Parkinson’s nurse specialist, and that all individuals should be offered access to the services provided by these specialist nurses to support ongoing care and advice.
The guideline is available at the following link:
https://www.nice.org.uk/guidance/ng71
We acknowledge the significant neurology workforce challenges across the country, including the need for more specialist nurses. The forthcoming 10 Year Workforce Plan will set out how we will we train and provide the staff, technology, and infrastructure the NHS needs to make it more accessible, proactive, and tailored for all patients, including those with Parkinson’s.