Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what steps they are taking to support children living with (a) Crohn's and (b) Colitis.

The Government is committed to improving care for people living with Crohn’s disease and ulcerative colitis, including those in the Ashfield constituency. NHS England supports local integrated care boards to deliver high-quality, timely services through initiatives such as the Getting It Right First Time (GIRFT) programme. GIRFT promotes earlier diagnosis, proactive management of flare-ups, and consistent adoption of best practice. Its gastroenterology report and updated inflammatory bowel disease (IBD) pathway recommend measures such as rapid access to specialist review within four weeks, personalised care plans, and expanded endoscopy capacity. These changes aim to cut emergency admissions, improve quality of life, and ensure equitable access to specialist nurses and multidisciplinary support across the country. The GIRFT programme has recently published a new handbook pulling together examples of innovative practice, proven solutions, and practical actions to help optimise the care of National Health Service patients with IBD. The GIRFT IBD pathway and associated handbook include specific guidance for paediatric care and the transition to adult services, recognising the unique needs of children and young people with Crohn’s disease and ulcerative colitis. The handbook is available at the following link:

https://gettingitrightfirsttime.co.uk/practical-advice-and-key-actions-in-new-girft-handbook-for-optimising-the-care-of-patients-with-ibd/

The 10-Year Health Plan will further improve care and support for people with IBD by expanding community diagnostic centres, reducing waiting times for endoscopy and imaging, and integrating digital tools to streamline referrals and follow-up care. It prioritises early diagnosis, personalised treatment plans, and better coordination between primary and specialist services. Investment in multidisciplinary teams will ensure patients receive timely, high-quality care. In addition, initiatives such as Diagnosis Connect will, from 2026, provide newly diagnosed patients with tailored information and support, empowering them to manage their condition confidently.

The NHS website provides comprehensive, accessible information on Crohn’s disease and ulcerative colitis, helping to raise public awareness and understanding of these conditions. The site explains what Crohn’s and colitis are, outlines common symptoms, and gives clear guidance on when to seek medical advice. It also details how these conditions are diagnosed and managed, including available treatments and support services.

To raise awareness of IBD among general practitioners and other primary care staff, the Royal College of General Practitioners has produced an Inflammatory Bowel Disease Toolkit. The toolkit outlines when to suspect IBD, the appropriate investigative tests and diagnostic tools for IBD, how to manage a flare-up of symptoms, and how to support patients with IBD.