Question to the Department of Health and Social Care:

To ask Her Majesty's Government what support they are giving to families who are caring for family members  suffering from fibrodysplasia ossificans progressiva.

For patients with rare diseases such as fibrodysplasia ossificans progressiva, expert centres provide clinical guidance, support and advice to patients, their families and carers. The NHS Long Term Plan set out ambitions to improve the identification and support of unpaid carers. These ambitions include providing timely information and support for contingency planning; developing more integrated support systems within primary care; support for young carers; and work to ensure that carers from frequently excluded communities are engaged and enabled to use services.