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Tweet
Wendy Chamberlain (Liberal Democrat - North East Fife) - @wendychambLD
Liberal Democrat Chief Whip
29 Mar 2023, 1:25 p.m.

Today at Prime Minister's Questions, I called on the government to recognise the serious and distressing conditions, PANS PANDAS which triggered by a misdirected immune response to an often mild viral infection. https://t.co/JR19Znz3yz

Link to Original Tweet

Written Question
Paediatric Acute-onset Neuropsychiatric Syndrome: Children
Friday 24th March 2023

Asked by: Luke Evans (Conservative - Bosworth)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, whether he (a) has had and (b) plans to have discussions with NHS England on ensuring the (i) adequacy and (ii) consistency of treatment pathways for children living with (A) PANS and (B) PANDAS; and what steps he is taking to ensure that children living with (1) PANS and (2) PANDAS and their parents receive adequate (x) information and (y) support to take informed decisions on care pathway options.

Answered by Maria Caulfield - Parliamentary Under Secretary of State (Department for Business and Trade) (Minister for Women)

No such discussions with NHS England have taken place or are planned at present. Should the evidence base develop further, clinical policy may be updated by relevant organisations such as the National Institute for Health and Care Excellence. NHS England would then consider the development of care pathways for those living with PANS and PANDAS. In the meantime, integrated care systems are responsible for planning care for their populations.

Early Day Motion
PANS PANDAS UK Working Group Statement, 24 February 2023 (6 Signatures)
8 Mar 2023
Tabled by: Wendy Chamberlain (Liberal Democrat - North East Fife)
That this House notes the statement dated 24 February 2023 from the PANS PANDAS Working Group aiming at improving standards of care for patients with symptoms of Paediatric Acute-onset Neuropsychiatric Syndrome (PANS) and Paediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections (PANDAS); recognises that the working group included representatives of …
Written Question
Paediatric Acute-onset Neuropsychiatric Syndrome
Thursday 2nd March 2023

Asked by: Wendy Chamberlain (Liberal Democrat - North East Fife)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what assessment he has made of the implications for his policies of the PANS/PANDAS Working Group statement on medical guidelines published 24 February 2023; and whether it is his policy to endorse those guidelines for use in NHS settings.

Answered by Maria Caulfield - Parliamentary Under Secretary of State (Department for Business and Trade) (Minister for Women)

We are aware of the recent guidance published by PANS PANDA UK. No assessment of existing policies against the new guidance has been made currently.

Early Day Motion
Diagnosis and support for PANS and PANDAS (7 Signatures)
14 Dec 2022
Tabled by: Sarah Green (Liberal Democrat - Chesham and Amersham)
That this House notes that Pediatric Acute-onset Neuropsychiatric Syndrome (PANS) and Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections (PANDAS) are conditions caused by misdirected immune responses and brain inflammation following common infections; acknowledges that these conditions can lead to a range of physical and psychiatric symptoms including anxiety, tics, …
Commons Chamber
Business of the House - Thu 24 Nov 2022
Leader of the House

Mentions:
1: Penny Mordaunt (CON - Portsmouth North) I think the public, when they are asked, will look at Labour and see it has no clue and no plan, and - Speech Link
2: Deidre Brock (SNP - Edinburgh North and Leith) bereaved widows and partners. - Speech Link
3: Penny Mordaunt (CON - Portsmouth North) Political parties, the Scottish and UK Governments and civil society agreed with one another. - Speech Link
4: Gavin Newlands (SNP - Paisley and Renfrewshire North) against women and girls. - Speech Link
5: Thangam Debbonaire (LAB - Bristol West) against women and girls. - Speech Link
6: Ian Lavery (LAB - Wansbeck) Last week, representatives of PANS PANDAS UK met a multidisciplinary group of medical professionals to - Speech Link

Tweet
Kim Leadbeater (Labour - Batley and Spen) - @kimleadbeater
Opposition Whip (Commons)
9 Oct 2021, 1:34 p.m.

I am supporting #PansPandasAwarenessDay to raise awareness of this important condition which is causing real trauma for families and individuals across the UK #PANS #Pandas https://t.co/gn4oZu2PbI

Link to Original Tweet

All Party Parliamentary Group
PANS and PANDAS APPG
To raise awareness about PANS (Pediatric Acute-onset Neuropsychiatric Syndrome) and PANDAS (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections) and provide a forum in Parliament with a focus on current legislation, policy and evidence on treatment in order to improve detection, diagnosis and provision of treatment.

Found: PANS and PANDAS

Tweet
Ruth Cadbury (Labour - Brentford and Isleworth) - @RuthCadbury
Shadow Minister (Justice)
3 Mar 2020, 6:44 p.m.

Today we launched the APPG on PANS/PANDAS. It was a very powerful session with testimony and evidence from parents & medical professionals. Thank you to all those who attended; especially those who told us about how it had impacted them and their families. https://t.co/0CICFG5DdY

Link to Original Tweet