Asked by: Al Pinkerton (Liberal Democrat - Surrey Heath)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps he is taking to ensure timely access to NHS services for people with myalgic encephalomyelitis in Surrey Heath constituency.
Answered by Ashley Dalton - Parliamentary Under-Secretary (Department of Health and Social Care)
We published the myalgic encephalomyelitis, also known as chronic fatigue syndrome (ME/CFS), final delivery plan on 22 July 2025. The plan focusses on boosting research, improving attitudes and education, and bettering the lives of people with this debilitating disease, including those in the Surrey Heath constituency.
The ME/CFS final delivery plan includes an action for the Department and NHS England to explore whether a specialised service should be prescribed by my Rt Hon. Friend, the Secretary of State for Health and Social Care, for people with very severe ME/CFS across England. Officials from the Department have commenced discussions with NHS England on how best to take forward this action.
NHS England has also started its work on co-designing resources for systems to improve services for mild and moderate ME/CFS, including for patients in the Surrey Heath constituency. It will meet a group of key stakeholders to progress this in the coming weeks.
To support healthcare professionals in the diagnosis and management of ME/CFS, as set out in the final delivery plan, the Department has worked with NHS England to develop an e-learning programme on ME/CFS for healthcare professionals, with the aim of supporting staff to be able to provide better care and improve patient outcomes. All three sessions of the e-learning programme, with sessions one and two having universal access, whilst the third session is only available to healthcare professionals, are now available at the following link:
https://learninghub.nhs.uk/catalogue/mecfselearning?nodeId=7288
Asked by: Al Pinkerton (Liberal Democrat - Surrey Heath)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what assessment he has made of the potential merits of increasing specialist support services for people with myalgic encephalomyelitis in Surrey Heath constituency.
Answered by Ashley Dalton - Parliamentary Under-Secretary (Department of Health and Social Care)
We published the myalgic encephalomyelitis, also known as chronic fatigue syndrome (ME/CFS), final delivery plan on 22 July 2025. The plan focusses on boosting research, improving attitudes and education, and bettering the lives of people with this debilitating disease, including those in the Surrey Heath constituency.
The ME/CFS final delivery plan includes an action for the Department and NHS England to explore whether a specialised service should be prescribed by my Rt Hon. Friend, the Secretary of State for Health and Social Care, for people with very severe ME/CFS across England. Officials from the Department have commenced discussions with NHS England on how best to take forward this action.
NHS England has also started its work on co-designing resources for systems to improve services for mild and moderate ME/CFS, including for patients in the Surrey Heath constituency. It will meet a group of key stakeholders to progress this in the coming weeks.
To support healthcare professionals in the diagnosis and management of ME/CFS, as set out in the final delivery plan, the Department has worked with NHS England to develop an e-learning programme on ME/CFS for healthcare professionals, with the aim of supporting staff to be able to provide better care and improve patient outcomes. All three sessions of the e-learning programme, with sessions one and two having universal access, whilst the third session is only available to healthcare professionals, are now available at the following link:
https://learninghub.nhs.uk/catalogue/mecfselearning?nodeId=7288
Asked by: Lee Anderson (Reform UK - Ashfield)
Question to the Department for Education:
To ask the Secretary of State for Education, what discussions she has had with (a) primary and (b) secondary schools on support for pupils living with ME.
Answered by Georgia Gould - Minister of State (Education)
The department engages regularly with schools on a range of issues.
Schools should ensure they are aware of any pupils with medical conditions and have policies and processes in place to ensure these can be well managed. Governing bodies must ensure that the arrangements they put in place are sufficient to meet their statutory responsibilities and that policies, plans, procedures and systems are properly and effectively implemented. This includes the duty under Section 100 of the Children and Families Act 2014 to make arrangements for supporting pupils with medical conditions and the duties under the Equality Act 2010.
Policies should set out how staff will be supported in carrying out their role to support pupils, including how training needs are assessed and how training is commissioned and provided. Any member of school staff providing support to a pupil with medical needs should have received suitable training.
Asked by: Lee Anderson (Reform UK - Ashfield)
Question to the Department for Education:
To ask the Secretary of State for Education, what steps she is taking to ensure teachers receive the necessary training to support pupils with ME/CFS.
Answered by Georgia Gould - Minister of State (Education)
The department engages regularly with schools on a range of issues.
Schools should ensure they are aware of any pupils with medical conditions and have policies and processes in place to ensure these can be well managed. Governing bodies must ensure that the arrangements they put in place are sufficient to meet their statutory responsibilities and that policies, plans, procedures and systems are properly and effectively implemented. This includes the duty under Section 100 of the Children and Families Act 2014 to make arrangements for supporting pupils with medical conditions and the duties under the Equality Act 2010.
Policies should set out how staff will be supported in carrying out their role to support pupils, including how training needs are assessed and how training is commissioned and provided. Any member of school staff providing support to a pupil with medical needs should have received suitable training.
Asked by: Rosena Allin-Khan (Labour - Tooting)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, if he will make an assessment of the adequacy of myalgic encephalomyelitis treatment in South West London.
Answered by Ashley Dalton - Parliamentary Under-Secretary (Department of Health and Social Care)
We published the myalgic encephalomyelitis, also known as chronic fatigue syndrome (ME/CFS), final delivery plan on 22 July 2025. The plan focusses on boosting research, improving attitudes and education, and bettering the lives of people with this debilitating disease, including those in South West London.
The ME/CFS final delivery plan includes an action for the Department and NHS England to explore whether a specialised service should be prescribed by my Rt Hon. Friend, the Secretary of State for Health and Social Care, for people with very severe ME/CFS across England. Officials from the Department have commenced discussions with NHS England on how best to take forward this action.
NHS England has also started its work on co-designing resources for systems to improve services for mild and moderate ME/CFS, including for patients in South West London. It will meet a group of key stakeholders to progress this in the coming weeks.
To support healthcare professionals in the diagnosis and management of ME/CFS, as set out in the final delivery plan, the Department has worked with NHS England to develop an e-learning programme on ME/CFS for healthcare professionals, with the aim of supporting staff to be able to provide better care and improve patient outcomes. All three sessions of the e-learning programme, with sessions one and two having universal access, whilst the third session is only available to healthcare professionals, are now available at the following link:
https://learninghub.nhs.uk/catalogue/mecfselearning?nodeId=7288
Asked by: Rosena Allin-Khan (Labour - Tooting)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps he is taking to support people with myalgic encephalomyelitis in South West London.
Answered by Ashley Dalton - Parliamentary Under-Secretary (Department of Health and Social Care)
We published the myalgic encephalomyelitis, also known as chronic fatigue syndrome (ME/CFS), final delivery plan on 22 July 2025. The plan focusses on boosting research, improving attitudes and education, and bettering the lives of people with this debilitating disease, including those in South West London.
The ME/CFS final delivery plan includes an action for the Department and NHS England to explore whether a specialised service should be prescribed by my Rt Hon. Friend, the Secretary of State for Health and Social Care, for people with very severe ME/CFS across England. Officials from the Department have commenced discussions with NHS England on how best to take forward this action.
NHS England has also started its work on co-designing resources for systems to improve services for mild and moderate ME/CFS, including for patients in South West London. It will meet a group of key stakeholders to progress this in the coming weeks.
To support healthcare professionals in the diagnosis and management of ME/CFS, as set out in the final delivery plan, the Department has worked with NHS England to develop an e-learning programme on ME/CFS for healthcare professionals, with the aim of supporting staff to be able to provide better care and improve patient outcomes. All three sessions of the e-learning programme, with sessions one and two having universal access, whilst the third session is only available to healthcare professionals, are now available at the following link:
https://learninghub.nhs.uk/catalogue/mecfselearning?nodeId=7288
Asked by: Baroness Scott of Needham Market (Liberal Democrat - Life peer)
Question to the Department of Health and Social Care:
To ask His Majesty's Government what steps they are taking to ensure that hospital and community services effectively prevent and manage malnutrition among people with severe and very severe myalgic encephalomyelitis in England.
Answered by Baroness Merron - Parliamentary Under-Secretary (Department of Health and Social Care)
We published the final delivery plan for myalgic encephalomyelitis, also known as chronic fatigue syndrome (ME/CFS), on 22 July, which focuses on boosting research, improving attitudes and education, and bettering the lives of people with this debilitating disease.
The commissioning of ME/CFS services is the responsibility of local integrated care boards based on the needs of their local population. The ME/CFS Final Delivery Plan includes an action for the Department and NHS England to explore whether a specialised service should be prescribed by my Rt Hon. Friend, the Secretary of State for Health and Social Care, for very severe ME/CFS. Officials from the Department have commenced discussions with NHS England on how best to take forward this action.
To support healthcare professionals in the diagnosis and management of conditions like ME/CFS, the National Institute for Health and Care Excellence (NICE) published guidance for ME/CFS in October 2021, a copy of which is attached.
It recommends that people with ME/CFS should be referred for a dietetic assessment by a dietitian with a special interest in ME/CFS if they are losing weight and at risk of malnutrition. The guidance also states that clinicians should recognise that symptoms of severe and very severe ME/CFS may mean that people are unable to eat and digest food easily and may need support with hydration and nutrition, and that the support provided could include oral nutrition and enteral feeding.
NICE guidelines are evidence-based, informed by clinical expertise, and represent best practice. Although NICE guidelines are not mandatory, healthcare professionals are expected to take them fully into account.
Asked by: Baroness Scott of Needham Market (Liberal Democrat - Life peer)
Question to the Department of Health and Social Care:
To ask His Majesty's Government what assessment they have made of the adequacy of NHS care for patients in England with severe and very severe myalgic encephalomyelitis; and what steps they are taking to improve it.
Answered by Baroness Merron - Parliamentary Under-Secretary (Department of Health and Social Care)
We published the final delivery plan for myalgic encephalomyelitis, also known as chronic fatigue syndrome (ME/CFS), on 22 July, which focuses on boosting research, improving attitudes and education, and bettering the lives of people with this debilitating disease.
The commissioning of ME/CFS services is the responsibility of local integrated care boards based on the needs of their local population. The ME/CFS Final Delivery Plan includes an action for the Department and NHS England to explore whether a specialised service should be prescribed by my Rt Hon. Friend, the Secretary of State for Health and Social Care, for very severe ME/CFS. Officials from the Department have commenced discussions with NHS England on how best to take forward this action.
To support healthcare professionals in the diagnosis and management of conditions like ME/CFS, the National Institute for Health and Care Excellence (NICE) published guidance for ME/CFS in October 2021, a copy of which is attached.
It recommends that people with ME/CFS should be referred for a dietetic assessment by a dietitian with a special interest in ME/CFS if they are losing weight and at risk of malnutrition. The guidance also states that clinicians should recognise that symptoms of severe and very severe ME/CFS may mean that people are unable to eat and digest food easily and may need support with hydration and nutrition, and that the support provided could include oral nutrition and enteral feeding.
NICE guidelines are evidence-based, informed by clinical expertise, and represent best practice. Although NICE guidelines are not mandatory, healthcare professionals are expected to take them fully into account.
Asked by: John Hayes (Conservative - South Holland and The Deepings)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps he is taking to support people with ME in Lincolnshire.
Answered by Ashley Dalton - Parliamentary Under-Secretary (Department of Health and Social Care)
The Lincolnshire Partnership NHS Foundation Trust’s Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Service is a specialist service which provides assessment and advice on myalgic encephalomyelitis, also known as chronic fatigue syndrome (ME/CFS), management strategies.
This service is available to adults and children. The ME/CFS service team consists of a wide range of skilled staff, including consultant clinical psychologists, assistant psychologists, specialist occupational therapists, and rehabilitation staff.
At a national level, the ME/CFS Final Delivery Plan, which the Department published in July, includes an action for the Department and NHS England to explore whether a specialised service should be prescribed by my Rt Hon. Friend, the Secretary of State for Health and Social Care, for very severe ME/CFS. Officials from the Department have commenced discussions with NHS England on how best to take forward this action.
NHS England has also started its work on co-designing resources for systems to improve services for mild and moderate ME/CFS. It will meet a group of key stakeholders to progress this in the coming weeks.
Asked by: Navendu Mishra (Labour - Stockport)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps his Department is taking to improve the (a) training and (b) awareness of healthcare professionals in (i) diagnosing and (ii) supporting people with (A) myalgic encephalomyelitis or chronic fatigue syndrome and (B) long COVID.
Answered by Ashley Dalton - Parliamentary Under-Secretary (Department of Health and Social Care)
The Department published the final myalgic encephalomyelitis, also known as chronic fatigue syndrome (ME/CFS), delivery plan on 22 July. The plan focusses on boosting research, improving education and attitudes, and bettering the lives of people with this debilitating disease.
To support healthcare professionals in the diagnosis and management of ME/CFS, as set out in the ME/CFS Final Delivery Plan, the Department has worked with NHS England to develop an e-learning programme on ME/CFS for healthcare professionals, with the aim of supporting staff to be able to provide better care and improve patient outcomes. All three sessions of the e-learning programme are now available on the NHS.UK website, with sessions one and two having universal access whilst the third session is only available to healthcare professionals, at the following link:
https://learninghub.nhs.uk/catalogue/mecfselearning?nodeId=7288.
The Medical Schools Council will promote the NHS England e-learning programme on ME/CFS to all United Kingdom medical schools and will encourage those medical schools to provide undergraduates with direct patient experience of ME/CFS. The General Medical Council (GMC) is the regulator of medical schools, and it is important that education is reenforced at different stages of medical training. Royal colleges play an important role in this. The GMC has included ME/CFS in the content map for the new national exam, so all medical schools will need to teach it as a subject.
There is also targeted advice for healthcare professionals to manage long COVID. Patients should be managed according to current clinical guidance, such as that published and updated by the National Institute for Health and Care Excellence, which is available at the following link:
https://www.nice.org.uk/guidance/NG188