Usher Syndrome APPG

First Registered: 29/12/2021 • Last updated on: 24/01/2024

Note: This APPG was last registered on 24th January 2024. The APPG was not registered in the latest release of the 8th April 2024 and may be defunct. Perhaps you are looking for the Down Syndrome APPG?

To raise issues relating to the challenges faced by those living with Usher Syndrome and their families and for connected purposes.

Note: All-Party Parliamentary Groups (APPGs) are informal, cross-party groups formed by MPs and Members of the House of Lords who share a common interest in a particular policy area, region or country. APPGs have no official status within Parliament.

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Former Members - Contact Details - Benefits in Kind - Financial Benefits

Reticulating Splines

Former APPG Members

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Alex Norris

Chair & Registered Contact

Labour (Co-op) - Nottingham North

Joined: 29th December 2021
Departed: 24th January 2024

2 APPG Memberships
Bingo , Child Contact Centres and Services

Liz Twist

Vice Chair

Labour - Blaydon

Joined: 29th December 2021
Departed: 24th January 2024

10 APPG Memberships
Acquired Brain Injury , Carbon Monoxide , Child Contact Centres and Services , Deafness , Genetic Haemochromatosis , Muscular Dystrophy , Respiratory Health , Sleep , Suicide and Self-Harm Prevention , Water

Sharon Hodgson

Vice Chair

Labour - Washington and Sunderland West

Joined: 29th December 2021
Departed: 24th January 2024

10 APPG Memberships
Art, Craft and Design in Education , Breast Cancer , Conception to Age Two - First 1001 Days , Dyslexia and Other Specific Learning Difficulties , First Do No Harm , Food and Drink , Leamside Line , Music Education , School Food , Ticket Abuse