Usher Syndrome APPG

First Registered: 29/12/2021 • Last updated on: 09/09/2025

Note: This APPG was last registered on 9th September 2025. The APPG was not registered in the latest release of the 20th October 2025 and may be defunct. Perhaps you are looking for the Down Syndrome APPG?

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To raise awareness of Usher Syndrome in Parliament and the broader public, campaign for better support for people and their families living with this condition, and help to develop a cure.

Note: All-Party Parliamentary Groups (APPGs) are informal, cross-party groups formed by MPs and Members of the House of Lords who share a common interest in a particular policy area, region or country. APPGs have no official status within Parliament.
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Former Officers - Contact Details - Benefits in Kind - Financial Benefits
Reticulating Splines
Former APPG Officers
Mark Ferguson Portrait
Mark Ferguson
Chair & Registered Contact
Labour - Gateshead Central and Whickham
Joined: 2nd January 2025
Departed: 9th September 2025
1 APPG Officer Position
Grid Networks

No other APPG Memberships

Baroness Nicholson of Winterbourne Portrait
Baroness Nicholson of Winterbourne
Officer
Conservative - Life peer
Joined: 2nd January 2025
Departed: 9th September 2025
3 APPG Officer Positions
Black Health , Lebanon , Switzerland and Liechtenstein

No other APPG Memberships

Katrina Murray Portrait
Katrina Murray
Officer
Labour - Cumbernauld and Kirkintilloch
Joined: 2nd January 2025
Departed: 9th September 2025
3 APPG Officer Positions
Debt and Financial Inclusion , New Towns , Night Time Economy

No other APPG Memberships

Anna Gelderd Portrait
Anna Gelderd
Officer
Labour - South East Cornwall
Joined: 2nd January 2025
Departed: 9th September 2025
4 APPG Officer Positions
Global Deforestation , Nordic Countries , Sustainable Finance , United Nations Global Goals

No other APPG Memberships

Alex Norris Portrait
Alex Norris
Chair & Registered Contact
Labour (Co-op) - Nottingham North and Kimberley
Joined: 29th December 2021
Departed: 24th January 2024
No other APPG Officer Positions

No other APPG Memberships

Liz Twist Portrait
Liz Twist
Vice Chair
Labour - Blaydon and Consett
Joined: 29th December 2021
Departed: 24th January 2024
2 APPG Officer Positions
Respiratory Health , Suicide and Self-Harm Prevention

No other APPG Memberships

Sharon Hodgson Portrait
Sharon Hodgson
Vice Chair
Labour - Washington and Gateshead South
Joined: 29th December 2021
Departed: 24th January 2024
6 APPG Officer Positions
Art, Craft and Design in Education , First Do No Harm - Mesh, Primodos, Valproate , Leamside Line , Parents , School Food , Ticket Abuse

No other APPG Memberships

Ben Bradley Portrait
Ben Bradley
Vice Chair
Conservative - Former Member for Mansfield
Joined: 29th December 2021
Departed: 24th January 2024
No other APPG Officer Positions

No other APPG Memberships

Marie Rimmer Portrait
Marie Rimmer
Vice Chair
Labour - St Helens South and Whiston
Joined: 29th December 2021
Departed: 24th January 2024
3 APPG Officer Positions
Industrialised Construction , Magnitsky Sanctions and Reparation , Rugby Football League

No other APPG Memberships

Contact Details

Registered Contact:

Mark Ferguson MP, House of Commons, London, SW1A 0AA.

Email: mark.ferguson.mp@parliament.uk

No benefits in kind are on record for the Usher Syndrome APPG

No direct financial benefits are on record for the Usher Syndrome APPG