Usher Syndrome APPG

First Registered: 29/12/2021 • Last updated on: 15/06/2022

To raise issues relating to the challenges faced by those living with Usher Syndrome and their families and for connected purposes.

Note: All-Party Parliamentary Groups (APPGs) are informal, cross-party groups formed by MPs and Members of the House of Lords who share a common interest in a particular policy area, region or country. APPGs have no official status within Parliament.
View Official Register Entry

Current Members - Contact Details - Benefits in Kind - Financial Benefits

Reticulating Splines
APPG Supplied Content

APPGs can register with Parallel Parliament and submit files and articles to be placed here.

Parallel Parliament offers the facility for APPGs to submit written content and files, which are made available through this page.

Submitters can draft and edit publications, and either release them on demand, or schedule release for a future date.

Both text content and attached files submitted through this facility is indexed by our website, and made available through both the search function and relevant e-mail alerts. Any of our users registered for an alert which matches your content, will receive a link making them aware of its publication.

If you wish to register as an authorised representative of the Usher Syndrome APPG and use this facility, click below

5 Current APPG Officers
Ben Bradley Portrait
Ben Bradley
Vice Chair
Conservative - Mansfield
Joined: 29th December 2021
Contact Details

Registered Contact:

Alex Norris MP, House of Commons, London, SW1A 0AA. Tel: 0207 219 3899.

Email: alex.norris.mp@parliament.uk

Public Enquiry Point:

Sylvia Wilson, CUREUsher, Dalmar House, Barras Lane Estate, Carlisle CA5 7NY

Email: contact@cureusher.org

Secretariat:

CUREUsher acts as the group's secretariat. https://www.cureusher.org/

No benefits in kind are on record for the Usher Syndrome APPG

No direct financial benefits are on record for the Usher Syndrome APPG