To raise awareness of Usher Syndrome in Parliament and the broader public, campaign for better support for people and their families living with this condition, and help to develop a cure.
Note: All-Party Parliamentary Groups (APPGs) are informal, cross-party groups formed by MPs and Members of the House of Lords who share a common interest in a particular policy area, region or country. APPGs have no official status within Parliament.
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4 Current Officers
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Contact Details
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Benefits in Kind
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Financial Benefits
Reticulating Splines
4 Current APPG Officers
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Mark Ferguson
Chair & Registered Contact
Labour - Gateshead Central and Whickham
Joined: 2nd January 2025
1 APPG Officer Position
Grid Networks
7 APPG Memberships
British Jews , Environment , Football Supporters , Hadrian's Wall , North East , Suicide and Self-Harm Prevention , War Crimes
Grid Networks
7 APPG Memberships
British Jews , Environment , Football Supporters , Hadrian's Wall , North East , Suicide and Self-Harm Prevention , War Crimes
3 APPG Officer Positions
Black Health , Lebanon , Switzerland and Liechtenstein
7 APPG Memberships
Australia and New Zealand (ANZAC) and the Pacific Islands , Christians in Parliament , Classics , Commonwealth , Internet, Communications and Technology , Ireland and the Irish in Britain , United Nations Global Goals
Black Health , Lebanon , Switzerland and Liechtenstein
7 APPG Memberships
Australia and New Zealand (ANZAC) and the Pacific Islands , Christians in Parliament , Classics , Commonwealth , Internet, Communications and Technology , Ireland and the Irish in Britain , United Nations Global Goals
3 APPG Officer Positions
Debt and Financial Inclusion , New Towns , Night Time Economy
8 APPG Memberships
Australia and New Zealand (ANZAC) and the Pacific Islands , Beauty and Wellbeing , British Buses , Healthcare Workers , Ireland and the Irish in Britain , Less Survivable Cancers , Parkrun , Theatre
Debt and Financial Inclusion , New Towns , Night Time Economy
8 APPG Memberships
Australia and New Zealand (ANZAC) and the Pacific Islands , Beauty and Wellbeing , British Buses , Healthcare Workers , Ireland and the Irish in Britain , Less Survivable Cancers , Parkrun , Theatre
5 APPG Officer Positions
Defence Technology , Global Deforestation , Nordic Countries , Sustainable Finance , United Nations Global Goals
8 APPG Memberships
Climate Change , Environment , Financial Technology , Global Education , International Conservation , Ocean , Renewable and Sustainable Energy , Tennis
Defence Technology , Global Deforestation , Nordic Countries , Sustainable Finance , United Nations Global Goals
8 APPG Memberships
Climate Change , Environment , Financial Technology , Global Education , International Conservation , Ocean , Renewable and Sustainable Energy , Tennis
Contact Details
Show/HideRegistered Contact:
Mark Ferguson MP, House of Commons, London, SW1A 0AA.
No benefits in kind are on record for the Usher Syndrome APPG
No direct financial benefits are on record for the Usher Syndrome APPG
Former APPG Officers
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Alex Norris
Chair & Registered Contact
Labour (Co-op) - Nottingham North and Kimberley
Joined: 29th December 2021Departed: 24th January 2024
No other APPG Officer Positions
No other APPG Memberships
Liz Twist
Vice Chair
Labour - Blaydon and Consett
Joined: 29th December 2021Departed: 24th January 2024
2 APPG Officer Positions
Respiratory Health , Suicide and Self-Harm Prevention
Respiratory Health , Suicide and Self-Harm Prevention
No other APPG Memberships
Sharon Hodgson
Vice Chair
Labour - Washington and Gateshead South
Joined: 29th December 2021Departed: 24th January 2024
6 APPG Officer Positions
Art, Craft and Design in Education , First Do No Harm - Mesh, Primodos, Valproate , Leamside Line , Parents , School Food , Ticket Abuse
Art, Craft and Design in Education , First Do No Harm - Mesh, Primodos, Valproate , Leamside Line , Parents , School Food , Ticket Abuse
No other APPG Memberships
Ben Bradley
Vice Chair
Conservative - Former Member for Mansfield
Joined: 29th December 2021Departed: 24th January 2024
No other APPG Officer Positions
No other APPG Memberships
Marie Rimmer
Vice Chair
Labour - St Helens South and Whiston
Joined: 29th December 2021Departed: 24th January 2024
3 APPG Officer Positions
Industrialised Construction , Magnitsky Sanctions and Reparation , Rugby Football League
Industrialised Construction , Magnitsky Sanctions and Reparation , Rugby Football League
No other APPG Memberships