Healthy Start

Emma Lewell-Buck Excerpts

Wednesday 22nd May 2024 Westminster Hall

[Mrs Emma Lewell-Buck (South Shields) (Lab)]

I beg to move,

That this House has considered the Healthy Start scheme.

It is a pleasure to see you in the Chair, Mr Dowd. What is not a pleasure is that I am here yet again, still trying to get the Government to do something very simple and impactful to help those who need it the most. Auto-enrolment with an opt-out, as opposed to the current opt-in system, would ensure that the Healthy Start scheme operates as it should, so that every single child gets the best start in life.

The last Labour Government introduced the Healthy Start scheme, which provides financial assistance in the form of a prepaid card to all under-18s who are pregnant, families with young children or pregnant women claiming certain benefits. This is to help with the ever-increasing costs of fruit and vegetables, milk, formula milk and vitamins. The scheme is available in pregnancy and until the child’s fourth birthday, yet the scheme is beset with problems—problems that were caused by this Government and can be easily fixed by this Government.

The child of the north all-party parliamentary group has heard evidence that children in the north are more likely to die before reaching their first birthday than those elsewhere in the country. We have heard about desperate mothers who are seeking an abortion because they simply do not know how they will feed their baby. When I raised that with the Prime Minister only two weeks ago, his response was to advise me that he was

“proud that…the Government have overseen a significant fall in poverty, particularly child poverty.”—[Official Report, 8 May 2024; Vol. 749, c. 570.]

Child poverty has not significantly fallen: it stands at more than 4 million. When expectant mothers have had to make these heartbreaking decisions, bragging about the support put in is crass, to say the least. It was followed up with an equally tone-deaf letter from the Secretary of State for Work and Pensions.

It has been widely reported that some parents, in desperation, have resorted to theft of baby milk and formula or are having to water it down, which is not surprising considering that prices of baby formula are at historically high levels and the current Healthy Start payments do not even cover the cost of formula for one week. Despite this, Healthy Start take-up is dropping. The Government’s 75% target—given to the NHS Business Services Authority, which runs the scheme—was missed last year, and take-up continues to decrease: it stands at just 62.5% across England, Wales and Northern Ireland. The comparable scheme in Scotland, however, has reached 92% take-up. Some local councils and organisations have made a dedicated investment to promote the scheme; not only does this create a postcode lottery, but they were left feeling utterly demoralised after the Government provided false, inflated take-up figures and were then unable to provide accurate uptake data.

An opt-out system would ensure proper data and free up organisations to support families instead of having to try to locate them—a point that is supported by research published earlier this month and funded by the Minister’s own Department. In some areas, the take-up is as low as 44%. About 220,000 babies, young children and pregnant women are missing out on the scheme, and Sustain estimates that that leaves £58 million unclaimed.

Despite the Chancellor’s crowing on this morning’s news, low inflation still means rising prices on top of previous high rises. In short, this is just stemming the pain for families. Only last year, UNICEF found that the UK had the worst rise in child poverty, leaving us bottom among 39 of the world’s richest countries. That is why admissions for malnutrition have increased in children and there has been a resurgence of Victorian diseases such as rickets and scurvy. It is no wonder that the Government blocked the United Nations special rapporteur on the right to food from visiting the UK and investigating poverty. When the previous UN special rapporteur on extreme poverty visited the UK, he was very clear that the rise in poverty was the direct result of Government policies.

Food banks, baby banks, faith groups and charities have now become embedded parts of our welfare state. The Key to Life food bank in my constituency reported a 300% increase in demand last year, coupled with a decrease in donations. It is therefore highly unlikely that the £58 million that is going unclaimed is unclaimed because people do not need it. There is a very clear need for the scheme but, as I have been told time and again, awareness is low among the public and professionals. That is why in 2021 the national food strategy recommended that the Government implement a communications plan related to Healthy Start, but they did not.

In 2021, I and others raised concerns about plans to fully digitalise the scheme by 2022, meaning that paper applications and vouchers would no longer be accepted. The result was that, as of October 2023, more than 20,500 households that were previously in receipt of the vouchers were no longer receiving them, 19 months after digitisation. The NHS Business Services Authority then admitted that technical issues meant that applications were being declined, resulting in parents and pregnant women struggling to get through to the helpline and having their payment cards rejected.

As it stands, the application routes are overly complex and varied. When an application is made online, an automated message claims that a response will be given in two days. This very rarely happens. Some mothers report that they have never heard back and that, after multiple attempts, they have given up.

[Mrs Sharon Hodgson (Washington and Sunderland West) (Lab)]

I apologise for missing the first couple of minutes of my hon. Friend’s speech. She is making an excellent speech outlining why the scheme is so needed. She mentions that take-up of the Healthy Start scheme is too low, so proper information about the scheme is needed, along with auto-enrolment. That would cut through the red tape and the hurdles that many families experience. Does she agree that the Government must therefore do more to promote the Healthy Start scheme to families so that people are aware of it, as recommended in the excellent national food strategy?

[Mrs Lewell-Buck]

I thank my hon. Friend for that intervention and for all the work that she does in this space. She has tirelessly championed children for as long as I have known her and for as long as she has been in this place. Charities, organisations and local authorities are using what little money they have to promote a Government scheme, and then when they go to the Government for data about how it is working, they get either false figures or no figures at all, so I could not agree more with my hon. Friend.

The Healthy Start phone number is not freephone, and it is fully automated. There is no option at all for callers to speak to anyone unless they need an interpreter or have inquiries relating to their card. The absurdity of an automated system asking whether callers have problems with cards that they do not yet have is not lost on any of us, I am sure. Worse still, if the application is refused, the parent is not told why and is directed to the phone line: again, they cannot speak to anyone. Research by Manchester Central food bank highlights the fact that those on legacy benefits or with no recourse to public funds have to apply via paper or telephone, but that is completely at odds with the Healthy Start phone line and website, which state very clearly that applications must always be made online. The confusion is completely unnecessary.

Repeated questions to the Secretary of State for Health and Social Care about funding for the scheme and future take-up have been equally frustrating. The Government refuse to say how much money they allocate to the scheme each year. They claim it is allocated on a forecast for take-up, but will not say what that forecast is. A cynic would conclude that if the Government forecast low uptake, it is against their interest to do anything to boost it, as they will not have budgeted for that, or that if they forecast higher uptake but do not reach it, millions of pounds that could have been spent on feeding children will be spent elsewhere. Either way, hungry babies and children are once again the ones losing out.

Back in May 2023, a similar debate was held in which the Government were made fully aware of the problems with Healthy Start. The following month, I introduced my Bill on auto-enrolment, the Healthy Start Scheme (Take-Up) (No. 2) Bill. Over the past two years, I have sent the Health Secretary two cross-party letters, signed by MPs and a multitude of outside organisations. This was followed by more questions and speeches in the Chamber and a full report to the Chancellor in advance of the previous Budget. Forty-eight written questions and two well-supported early-day motions later, here we are again.

I am sure that in her response the Minister will reiterate the excuses her colleagues have given for refusing auto-enrolment: that it is not possible because the prepaid card is a financial product that is therefore subject to financial regulations. However, Mastercard has written to me explaining that it is possible, if only the Minister’s Department and the Department for Work and Pensions will work with it. I have been here long enough to know that the Minister will not be able to commit to auto-enrolment today, but at the very least can she give a commitment to working with her colleagues and other organisations to look at piloting auto-enrolment?

Can the Minister assure us that her Department’s uptake data is now accurate and advise us on the progress of her Department’s promise to me to write to all eligible households that are missing out on the scheme? As we debate this today, there will be mothers and fathers who, instead of excitedly preparing for their newborn or enjoying those early years with their little ones, are worried and distressed about how on earth they are going to provide for them.

I know that auto-enrolment is not a panacea. I know that life will continue to be a hard struggle for so many people. But as I did when I presented my Bill, I want to thank all the parents who have shared with me their stories and their pain. They should always be at the forefront of our mind, because nobody should feel such desperation and hopelessness that they can see no other way than stealing to feed their baby or seeking to terminate their pregnancy. I sincerely hope that the Minister agrees with me about that.

--- Later in debate ---

[The Minister for Social Care (Helen Whately)]

It is a pleasure to serve under your chairmanship, Mr Dowd, and to respond to the debate on behalf of the Under-Secretary of State for Public Health, Start for Life and Primary Care, my right hon. Friend the Member for South Northamptonshire (Dame Andrea Leadsom). I am grateful to the hon. Member for South Shields (Mrs Lewell-Buck) for raising this important debate about the Healthy Start scheme, and to other hon. Members who have contributed.

The Government are committed to supporting the next generation of children, who are, of course, our future, and their own will obviously depend on this as well. A child’s early life is critical to their health later in life. We want every family to receive the right support to care for their children. Growing up with a healthy diet and weight is strongly protective against ill health in childhood and adulthood. Eating a healthier diet, as set out in “The Eatwell Guide”, could increase population life expectancy by up to eight years.

We know that fruit and vegetable consumption is lower among more deprived children, and that those children may be at risk of not getting enough micronutrients. More than one in five children start primary school overweight or obese, and the numbers are higher in more deprived areas. That is a major risk factor for long-term diseases including heart disease, type 2 diabetes and many types of cancer.

Against that backdrop, the support for children to eat healthily through the Healthy Start scheme and our provision of free school meals is crucial. The Healthy Start scheme benefits hundreds of thousands of families across the country. The statutory scheme encourages a healthy diet for pregnant women, babies and young children under four from low-income households. Eligibility criteria for the scheme ensure that we target nutritional support on families who need it most.

In April 2021, we increased the value of Healthy Start by 37%, from £3.10 to £4.25 a week, therefore helping families with the increased cost of living. I welcome the support demonstrated by colleagues today for this important scheme and the emphasis placed on its uptake. I fully agree that we need to ensure that eligible families are aware of and able to access Healthy Start. I now turn to how we are doing that.

Healthy Start is delivered by the NHS Business Services Authority, on behalf of the Department. Following user research and testing by both the Department and the NHSBSA, the scheme switched from being paper based to a digitised service in 2021. An online application and prepaid card replaced the previous paper form and vouchers. The number of families being supported by Healthy Start has grown following the introduction of the prepaid card. Since September 2021, of the more than 600,000 successful applications, 45% have come from new families and the scheme now supports more than 360,000 beneficiaries on lower incomes. The uptake is 62% of people who are eligible, which is higher than in the previous paper scheme and shows the benefits of the transition to a digital scheme.

Hon. Members have raised the question of auto-enrolling eligible families on Healthy Start. Moving to auto-enrolment would require a substantial redesign of the scheme. In contrast to what I heard the hon. Member for South Shields say, such a move, unfortunately, is not a simple thing to do. I am told that the prepaid card would need to be removed because it is a financial product that, under financial services legislation, requires applicants to accept the terms and conditions on an opt-in basis, so we cannot have it as an opt-out. Creating a new delivery method and process is therefore far from straightforward and would come at an additional cost to Government, with disruption for the beneficiaries.

[Mrs Lewell-Buck]

As the Minister heard in my opening comments, Mastercard completely refutes that argument. It and Allpay, which administers the scheme, have been clear that it is entirely possible to do auto-enrolment; they just need the Department for Health and the DWP to talk to them about it. It is not a difficult thing to do. They have outlined it to me in a letter, and I am happy to share that with her Department, yet again.

[Helen Whately]

I hear the hon. Member’s point, but as I set out clearly, I understand that this is not a simple thing to do, and not straightforward. As she has offered, however, I suggest that she writes to the Under-Secretary of State for Public Health, Start for Life and Primary Care with that suggestion and the proposal from Mastercard. I have no doubt that my right hon. Friend will look into it and respond to the hon. Member.

I have been saying that it is complicated to shift to an auto-enrolment scheme under existing legislation. By contrast, the current scheme has seen increased take-up, with the switch to the prepayment card. We would not want to jeopardise that progress of increasing numbers of families enrolling on what is an important scheme. That is why the Government’s focus is on increasing the uptake and effectiveness of the existing scheme, so that more children can benefit from Healthy Start. I also assure the hon. Member for South Shields that the substantial level of investment in the scheme is in the order of £78 million per annum.

I was sorry to hear about the problems in getting access and responses to phone calls for people calling up for help with access to the scheme. It is clearly important for people to be able to get help, if needed, to access Healthy Start. I understand that the average speed of answer for calls between 1 April and 10 May was 19 seconds, but I have asked officials to look further into the problems raised by the hon. Member for Stretford and Urmston (Andrew Western) regarding accessing the phoneline and accessing help.

Multiple channels of communication are used to raise awareness and encourage take-up of Healthy Start. NHSBSA actively promotes Healthy Start through its digital channels and has created free toolkits for use by healthcare professionals, local authorities and public health teams. NHSBSA uses a range of communications to raise awareness among parents and pregnant women. For example, it has attended maternity and midwifery forum events and placed advertisements in You and Your Pregnancy magazine, which is given to pregnant women in the first trimester, and the Bounty and Badger Notes apps. As officials confirmed to the House of Lords Food, Diet and Obesity Committee on 7 May, we also have plans to write to everyone eligible for Healthy Start to ensure they are aware of the scheme and to encourage them to apply.

As I said before, the Government are committed to promoting a healthy diet for our children. Healthy Start is an important part of the support provided by Government but it is only one aspect of how we are doing that. For our youngest children, the Government are investing £50 million in infant feeding support as part of the family hubs and the Start for Life programme. We support childcare providers with the cost of milk through the nursery milk scheme. We are also working with industry to improve the healthiness, marketing and labelling of commercially available baby food and drink aimed at those aged up to 36 months. Children of all ages also benefit from restrictions on the placement of less healthy products in key selling locations, calorie labelling on menus and upcoming landmark restrictions on multi-buy offers and the advertising of less healthy products on TV and online.

For school-aged children, we have the school fruit and vegetable scheme and free school meals. The Government have expanded free school meals to more groups of children than any Government over the past 50 years. We have introduced universal infant free school meals for all children in reception, year 1 and year 2. Under the benefits-based criteria, more than 2 million of the most disadvantaged pupils are provided with free school meals; in fact, the greatest ever proportion of children are receiving free school meals, with more than a third receiving free lunches compared with one in six in 2010. Furthermore, a crucial backdrop to this debate is the latest fall in inflation—because we know that the best way to help people with the cost of living is to bring inflation down.

Infancy and early childhood is a crucial time for establishing food preferences and dietary patterns. Giving children a healthy start in life is critical to health outcomes throughout childhood and adulthood. The Healthy Start scheme is one of the essential ways in which the Government support our most vulnerable families to give their children the best start for a healthy life. I welcome colleagues’ interest in the Healthy Start scheme and assure them that although our approach may be different from the one that the hon. Member for South Shields argues for, we are committed to making sure that the children who most need help get it.

[Mrs Lewell-Buck]

I thank all hon. Members who have spoken today, in particular my hon. Friend the Member for Stretford and Urmston (Andrew Western), who has long championed a reduction in the price of baby formula. He rightly pointed out that auto-enrolment is not the only issue with Healthy Start; there is also the value of payments and the eligibility criteria. I thank my hon. Friend the Member for Birmingham, Edgbaston (Preet Kaur Gill) for her kind words and support.

I also thank the Minister for her comments. However, it will come as no surprise that I completely disagree with her analysis of the entire situation. The one thing I will take from her speech is that at least she has reiterated the promise to once again write to all eligible households missing out on the scheme. We have been promised that for some time now and it has not yet been delivered.

If the rumours about an imminent general election are true, I must tell the Minister to please get a move on, because we do not have long left. In the interim, before we have a new Government, I will, as I have always done, use my time in this place to try anything at all that the Government might accept. I will keep pushing for them to at least explore trying a pilot for auto-enrolment for Healthy Start.

People should not have to put up with the daily grind and struggle. Eradicating child poverty was a central plank of the last Labour Government, and I know for a fact that it will be a key plank of the next one. I just cannot wait until we get there.

Question put and agreed to.

Resolved,

That this House has considered the Healthy Start Scheme.

Oral Answers to Questions

Emma Lewell-Buck Excerpts

Tuesday 5th December 2023 Commons Chamber

[Madam Deputy Speaker (Dame Eleanor Laing)]

Excellent—that is how to do it.

[Mrs Emma Lewell-Buck (South Shields) (Lab)]

Cancer remains the leading cause of death by disease in children and young people, with nearly 500 dying every single year, yet the Government continue to reject calls for a dedicated children’s cancer plan. Why is that?

[Andrew Stephenson]

As the hon. Member knows, cancer will be part of the Government’s long-term strategy for diseases. Improving cancer treatment wait times is a top priority for the Government, with a key focus on the elective care recovery plan backed by an additional £8 billion in revenue funding across the spending review period.

Childhood Cancer Outcomes

Emma Lewell-Buck Excerpts

Tuesday 17th October 2023 Commons Chamber

[Mrs Emma Lewell-Buck (South Shields) (Lab)]

Thank you, Sir Roger, for granting me this important Adjournment debate following September’s Childhood Cancer Awareness Month.

I know that many of us have experienced the suffering of a loved one with cancer, but there are very few of us who have had to endure the unimaginable pain of seeing your child suffer with cancer and, worse, losing a child to cancer. Yet cancer remains the leading cause of death by disease in children and young people, with 490 cancer deaths in the UK each year. That is 490 lives lost and families forever changed. The lack of a bespoke, stand-alone children’s cancer strategy leaves those children with aggressive cancers even more vulnerable.

In the short time I have this evening, I want to focus my comments on a little boy, a “tough cookie” from South Shields called Ethan Adams. Ethan attended the dentist with toothache in November 2020. The dentist treated him for a tooth infection, but Ethan was still not right, so he and his family returned to the dentist and Ethan was given some antibiotics. A week later, he developed a lump on the roof of his mouth. The dentist thought that this was an abscess because of infection and removed his tooth, but Ethan continued to be unwell. He was referred to an oral specialist at Sunderland Royal Hospital and, after an emergency MRI, the family were told that it was a benign tumour and to expect a follow-up call in a few weeks from the Royal Victoria Infirmary in Newcastle.

The very next day, the family received an urgent call asking them to head to the accident and emergency department as soon as possible. That is when the worlds of his mam and dad, Tracey and Mark, crashed. They were told that Ethan had an aggressive cancer and that it was eating up through his skull and pressing against his brain. Ethan was diagnosed with rhabdomyosarcoma, often referred to as RMS. A large tumour was present in his face, pushing through on to his brain. A large tumour was also found attached to his spine and traces were visible in his lungs and bone marrow.

His family were given a glimmer of hope when they were told that Ethan’s diagnosis was embryonal RMS, the lesser of two evils, and that the medics could shrink the tumours, but they were not sure that they could stop it coming back due to the aggressive nature of the cancer. Little Ethan had 32 days solid of chemotherapy and radiotherapy. He did not complain once. After going through so much, the family felt hopeful for a good result, but after an MRI they received the heart-breaking news that the cancer was buried in layers of his brain and it was terminal.

The family made sure that Ethan spent his final days carrying out his bucket list of all the places that he wanted to see and all the things that he wanted to do. This very determined independent little boy, even at his weakest and when losing his sight, would insist on climbing the stairs at home instead of being carried. On 5 August 2021, just a week after his ninth birthday, Ethan passed away at home, with his mam Tracey, his dad Mark, his sister Ellie and his brother Evan.

Ethan loved Yoda, Sunderland football club and the colour gold. He loved entertaining people and was a mischievous and funny kid with a big heart. Even when unwell in hospital, he was found sharing his toys and helping another little boy. He was all about friends and family, and talked about being a daddy himself one day. His school, Harton Primary, has named a sports hall after him and has buddy benches in each yard. His grave, which his brother calls his forever home, has on it “Ethan, a friend to all”. Ethan left a hole not just in his family’s and friends’ lives, but in our community. South Shields will never forget him.

Ethan’s family, in an effort to ensure that no one else ever has to go through what Ethan did, have become part of the charity Alice’s Arc, founded in memory of Alice Wakeling, who lost her life to RMS aged seven. The charity has created a community of families through Arcs. Alice’s Arc, Ethan’s Arc and all the other Arcs represent children who have had or are fighting RMS. The Arcs exist to find a cure, to find kinder treatments for RMS and to raise awareness. However, I gently say to the Minister that they should not need to exist; such charities exist because the state has failed them, and it continues at times to fail these children. As Mark said, it should not be left to charities to fund research.

The hon. Member for Gosport (Dame Caroline Dinenage) held the first ever debate on childhood cancer in this Chamber back in April 2022. I pay tribute to her and all hon. Friends and Members who took part in that debate. It was a rare moment of this House coming together, regardless of politics, in unanimous agreement that there needs to be a children’s cancer strategy combining early diagnosis, research funding and increased training for GPs and healthcare professionals.

[Mark Tami (Alyn and Deeside) (Lab)]

rose—

[Jim Shannon (Strangford) (DUP)]

rose—

[Mrs Lewell-Buck]

I will give way to my right hon. Friend first.

[Mark Tami]

I am a parent who was told the devastating news that my son had leukaemia, and he subsequently had to have a stem cell transplant. It is devastating news. Fortunately, we were lucky, but something I have campaigned strongly on is the fact that we address the physical side of the illness, but not the psychological support that those children need, and that they might need in later life as well. We need a more rounded approach. People should not have to go out there and seek that support as something extra; it should be part of the overall treatment path.

[Mrs Lewell-Buck]

I thank my right hon. Friend. I know he has spoken movingly before in this Chamber about his son Max. He is right that, for those who are lucky enough to recover from cancer, there is always an after-effect; it remains with them for life and there should be more support. I give way to my other hon. Friend.

[Jim Shannon]

I commend the hon. Lady on bringing this debate forward. Her constituents should be very proud of their MP and how she has illustrated and put forward the case on behalf of one of her constituents. She has referred to others having big hearts, but I think she has a heart the size of an elephant, if that is possible.

Estimates suggest that around 75% of children diagnosed with cancer survive. However, that statistic has not seen an increase in many years. Does the hon. Lady agree that the 25% who do not survive must never be accepted as a statistic, but must be fought for with more funding and greater research resources, exactly as the right hon. Member for Alyn and Deeside (Mark Tami) has said, and that those must be put in place as a matter of form and not just granted for one or two years? I know that the Minister will respond in a positive fashion, and I commend the hon. Lady on what she is doing.

[Mrs Lewell-Buck]

I thank the hon. Gentleman for that very kind intervention. He has pre-empted what I will talk about later in my speech.

The Under-Secretary of State for Health and Social Care, the hon. Member for Lewes (Maria Caulfield), in responding to the debate last year, said that GPs had access to training and that National Institute for Health and Care Excellence

“guidelines are trying to support GPs”.—[Official Report, 26 April 2022; Vol. 712, c. 656.]

However, having access to training is not the same as mandated training, and NICE guidelines are for all cancers. It is widely known that many signs and symptoms of childhood cancer are the same as those for many common childhood illnesses, and that the types of cancer diagnosed in children are different from those seen in adults. In short, those guidelines are not enough.

The Under-Secretary of State also said that, despite some progress in treatment for childhood cancers, for

“conditions, such as rhabdomyosarcoma, that is not yet the case. Research is crucial to how we deal with it in the long term.”—[Official Report, 26 April 2022; Vol. 712, c. 658.]

Yet no breakdown is available for how much funding is directly linked to childhood cancer research, let alone RMS. What we do know is that funding for research of all cancers has dropped from £132 million in 2018-19 to £101 million in 2021-22, and that Great Ormond Street hospital has found that, on average, only 2p of every £1 spent each year on cancer research goes towards dedicated research projects for childhood cancers.

So here we are, over a year later, and it appears that nothing has improved. The Government’s change in approach to their cancer plan has not been welcome either. In February 2022, the Government launched their call for evidence for a standalone 10-year cancer plan for England, which was intended to be a new vision for how we will lead the world in cancer care. Yet in January this year, they announced that cancer would be incorporated into a new major conditions strategy, effectively scrapping the dedicated 10-year cancer plan. As Cancer Research UK said:

“by bundling in cancer alongside other conditions via a short-term strategy, ministers will fail to give cancer the due care and attention it requires… Cancer isn’t a single disease…in medicine it’s one of the hardest problems to solve and scientific discovery takes time… Ultimately, beating cancer requires a long-term approach.”

The Children’s Cancer and Leukaemia Group and Young Lives vs Cancer rightly note that this strategy will not give sufficient attention to children with cancer, and are asking the Government to commit to a children and young people’s 10-year cancer plan addressing diagnosis, treatment, patient experience, research, psychosocial support and living beyond cancer. The Royal College of Radiologists, which represents specialist paediatric radiologists and clinical oncologists, has said that after years of under-investment, the workforce is stretched and shortages are causing backlog and delay.

Access to paediatric radiologists already depends on postcode. In the north-east, there are 0.2 consultants per 100,000 people, compared with 0.7 per 100,000 in London. It takes seven years to train in this specialty, and as a percentage of specialists are due to retire, I am not sure that the Government’s workforce plan will sufficiently address the shortfall in those paediatric specialties. International comparisons show that the countries with the biggest improvements in cancer survival are those with long-term, adequately funded cancer plans. Every single parent who has lived in this painful cancer bubble knows what works, too: proper training, early diagnosis, research and access to treatment.

[Carla Lockhart (Upper Bann) (DUP)]

I commend the hon. Lady for her speech. Ethan really sounds like an amazing little boy whose memory will live on, as we have heard tonight. He reminds me of a little boy called Adam in my constituency, who will also be forever in our memory after losing his battle to childhood cancer. His mum and dad, Sara and David, are fighting not only for what the hon. Lady is fighting for, but for financial support for families in the initial weeks after diagnosis—currently, children have to wait three months to receive disability living allowance. Does she not think that the Government should introduce immediate payment for families whose children’s care needs start immediately?

[Mrs Lewell-Buck]

I thank the hon. Member for her intervention. My heart goes out to her constituents, and I could not agree more with what she suggests.

This remarkable little boy had his future taken from him, and without a robust and long-term plan from the Government, other children’s lives will be lost to this terrible disease. I know that the Minister is a decent man and that he does care and will want to give some words of comfort to my constituents, but we would like to know from him what progress, if any, has been made since last year’s debate and how, against the backdrop of decreased funding for research, a dwindling workforce and limited training, he believes cancer outcomes for children will improve. As Ethan’s parents said,

“We shouldn’t be putting children through this… Children deserve to be invested in, they deserve a future”.

I am sure we can all agree that little Ethan definitely did deserve a future.

[The Minister for Health and Secondary Care (Will Quince)]

I thank the hon. Member for South Shields (Mrs Lewell-Buck) for securing this important debate. I begin by sending my sincerest support and sympathy to Ethan’s family and every family involved in the work of Alice’s Arc. Their mission to find a cure and kinder treatment for rhabdomyosarcoma is one that I am sure the whole House can support.

As the hon. Lady rightly mentioned, September was Childhood Cancer Awareness Month, and I think I speak for the whole House when I say that our thoughts are with every family touched by childhood cancer, particularly those who have felt the bitter grief of losing a child. I commend the efforts of so many to bring light to the darkest of situations and support families in need, including the hon. Lady, who made such a powerful and emotive speech. I also join her in paying tribute to my hon. Friend the Member for Gosport (Dame Caroline Dinenage) for her tireless efforts to improve childhood cancer care.

I want to assure the House and all families affected that cancer services for children are an absolute priority for this Government. Working alongside the NHS, we have three priorities to improve childhood cancer outcomes: improving early diagnosis, delivering more research and driving progress in genomic medicine. Let me take each one in turn.

First, improving early diagnosis will give more children the best chance of beating cancer. The NHS is working to deliver the ambition it set in its long-term plan to diagnose 75% of cancers at stages 1 and 2 by 2028. Achieving that will mean 55,000 more people surviving cancer for five years or more. That is why the Government are investing more than £2.3 billion to transform diagnostics services. Thanks to that investment, we have opened 123 new community diagnostic centres, giving millions of patients the chance to access quicker, more convenient checks outside of hospitals, and we are on track to open 160 CDCs by March 2025.

In this year’s operational planning guidance, NHS England announced £390 million of funding to cancer alliances in each of the next two years to support the operational priorities for cancer treatment capacity. That includes commissioning key services in early diagnosis and supporting systems to develop local cancer plans. We are now expanding direct access to diagnostic scans across all GP practices, helping GPs to recognise cancer symptoms, cutting waiting times and speeding up diagnosis.

Secondly, as the hon. Member for South Shields rightly pointed out, delivering more research is key to understanding the causes of cancer and increasing survival rates further. Over the past five years, the National Institute for Health and Care Research has invested almost £14 million in 38 research projects into childhood cancers. Alongside Cancer Research UK, health Departments across the UK are jointly funding a network of 18 experimental cancer medicine centres, collectively investing more than £35 million between 2017 and 2022.

Our world-leading scientists and clinicians are driving the discovery, development and testing of new treatments. That includes the paediatric network that the National Institute for Health and Care Research co-funds with the Little Princess Trust, which is dedicated to early-phase research on childhood cancers. NHS children’s cancer services are provided by highly specialist principal treatment centres that manage care through multidisciplinary teams across diagnosis, treatment and research, making research breakthroughs available to every child.

Turning to our work to drive progress in genomic medicine, the UK is a world leader in that sector, and cutting-edge research already benefits children with cancer. However, the Government are committed to going further: our priority is ensuring that all children with cancer get access to genomic medicine. The NHS now offers all children with cancer whole-genome sequencing to enable comprehensive and precise diagnosis, along with personalised treatments. In July this year, the Government announced a multi-year partnership agreement with the pharmaceutical giant BioNTech, which will accelerate that company’s clinical trials here in the UK and could provide up to 10,000 patients with personalised cancer immunotherapies by 2030. It will work with NHS England’s new cancer vaccine launchpad to improve access to treatments and trials. This Government will continue to support groundbreaking genomic medicine to give children with cancer the high-quality personalised treatments they deserve.

Children with cancer also deserve a supportive experience in hospital, as do their families. That is why I am pleased that NHS England is working with the Starlight Children’s Foundation charity to review and improve play facilities and guidance to hospital trusts, and we will learn from the first under-16 cancer patient experience survey. More than three quarters of children with cancer said they are looked after very well by healthcare staff, and almost 90% of parents or carers rated the care their child received as eight or more out of 10. That shows what our brilliant cancer workforce does so well, and also where we have more work to do.

Once again, I thank the hon. Member for South Shields for tabling this vitally important debate.

[Mrs Lewell-Buck]

I sense that the Minister is coming to the end of his comments. I have listened carefully to him, but he has largely referred to funding and research into cancers overall. He knows full well that childhood cancers are distinct from adult cancer, so could he offer us any clarity on how much money goes into childhood cancer research, and what the workforce plan is for those specialists working in paediatric cancer?

[Will Quince]

I am very happy to take both those questions. First, in relation to childhood cancer research specifically, my officials in the Department are working really closely with the National Institute for Health and Care Research to set up an expert roundtable on childhood cancer research. Many trials will be applicable to both adults and children, but by their nature, some will need to be childhood cancer-specific. I welcome that important initiative, which is designed to encourage more research into cancers affecting children.

The Government do not, in effect, commission research directly. Bids are made to NIHR; around £1 billion a year is spent directly on research through NIHR, but it is reliant on those bids. That is why it is so important that we get more bids for research into childhood cancer coming forward.

Covid Pandemic: Testing of Care Home Residents

Emma Lewell-Buck Excerpts

Wednesday 1st March 2023 Commons Chamber

[Helen Whately]

My hon. Friend is absolutely right to point out the extraordinary things that were done during the pandemic. I do not think that the Government should seek to take credit for that; so many people worked incredibly hard, whether in local authorities, social care or the NHS, or through their involvement in supply chains and the huge efforts to secure personal protective equipment when that was incredibly hard to get hold of across the world. I am glad that he draws attention to some of those things. He is absolutely right that, in the context of the public inquiry, we should reflect overall.

[Mrs Emma Lewell-Buck (South Shields) (Lab)]

In April 2020, now-disappeared Government guidance in relation to hospital discharges stated:

“Negative tests are not required prior to transfers/admissions into the care home.”

It was later reported that the Minister then leaned on Public Health England to alter its proposed advice to care homes from ensuring that those discharged from hospitals tested negative to not requiring any testing at all. Why, at every stage, were the Government content to send people to their deaths in our care homes?

[Helen Whately]

I do not recognise the hon. Lady’s account at all. If she looks back at one of the legal cases that has looked into this question, she may find more accurate information about some of the conversations that went on behind the scenes. I can assure her that, as she would expect, in my capacity as social care Minister, I fought the corner for people receiving care—both home care and in care homes—throughout the pandemic.

Oral Answers to Questions

Emma Lewell-Buck Excerpts

Tuesday 6th December 2022 Commons Chamber

[Steve Barclay]

I am not aware of any proposal on those lines. On my hon. Friend’s earlier point, as I said, I am happy to meet him to discuss the issue of step-down care and I am sure that there will be an opportunity to discuss any other concerns that he has at the same time.

[Mrs Emma Lewell-Buck (South Shields) (Lab)]

My constituent Margaret Cramman is a full-time carer for her daughter. Throughout the pandemic, she was denied respite care. Now the care setting insists on testing for visitors and mask wearing for staff, which causes distress to some of the young people being cared for, who rely on vital facial recognition. Nearly all the other covid guidance has been reviewed, but the guidance for respite care remains the same. Why are carers and those they care for always an afterthought for the Government?

[Helen Whately]

I point the hon. Member to the answer that I gave to my hon. Friend the Member for Southend West (Anna Firth) a moment ago specifically about face masks. I have asked for updated guidance for the social care sector on the use of face masks. I recognise the difficulties they cause—for instance, in communication—and I am looking forward to being able to give an update to hon. Members and the sector on that shortly.

Oral Answers to Questions

Emma Lewell-Buck Excerpts

Tuesday 14th June 2022 Commons Chamber

[Maria Caulfield]

I met the responsible Scottish Minister in April to discuss this issue. There is not a lack of funding. The National Institute for Health and Care Research has funding available but we are not seeing bids, so this is a plea to the clinicians, researchers and groups for those to come forward. The NHRA is also happy to meet any groups considering undertaking clinical research to ensure that it is the type of research that will provide the evidence they need to licence these products.

[Mrs Emma Lewell-Buck (South Shields) (Lab)]

10. What recent assessment he has made of the availability of maternity services.

[The Parliamentary Under-Secretary of State for Health and Social Care (Maria Caulfield)]

NHS England is making £127 million of investment in maternity systems in the next year to go specifically towards the workforce. This is on top of the £95 million already promised for the recruitment of 1,200 midwives and 100 more consultant obstetricians.

[Mrs Lewell-Buck]

South Tyneside District Hospital’s maternity unit was award winning. In 2019, despite widespread opposition, it changed to a midwife-led birthing centre. It has since been closed, since January. Recently, a whistleblower explained that midwives and expectant mums are being kept in the dark about the future of the unit, staffing levels and bed capacity across the trust. These changes are a direct result of this Government’s forced cuts, so what is the Minister going to do to make sure that babies can be born in south Tyneside?

[Maria Caulfield]

I have just been very clear that we are investing about £200 million in that workforce. In the hon. Lady’s area, there were staffing pressures during the omicron variant, with high levels of staff sickness, which meant that South Tyneside District Hospital had to make that difficult decision. My understanding is that those staffing numbers are much better, particularly for sickness absence. If she is struggling to find out from the trust when it hopes to reopen the unit, I am very happy to meet her and members of the trust.

Oral Answers to Questions

Emma Lewell-Buck Excerpts

Tuesday 1st March 2022 Commons Chamber

[Sajid Javid]

The hon. Gentleman will know that for medicines to be generally available on the NHS, they have to be deemed safe and effective by the independent medical regulator. That requires trials to take place and that is where the focus should be. Those who want those medicines to be more easily available should encourage the companies that produce them to have trials and the NHS will support them in doing so.

[Mrs Emma Lewell-Buck (South Shields) (Lab)]

Chloe Rutherford and Liam Curry from South Shields were tragically murdered in the Manchester Arena terror attack. Their parents’ pain is unimaginable and constant. After sitting through hours of the inquiry, they have been told that, in just two days’ time, the registration of their precious children’s deaths will be done not by them, but by a stranger. Apparently that is standard practice for mass casualty events. These grieving parents are being denied this final act for their children. Please can the Secretary of State explain why, and urgently intervene?

[Sajid Javid]

Of course I would be very happy to meet the hon. Lady. It is a very important issue that she has raised. I also send my condolences to the parents of Chloe and Liam.

Covid-19 Update

Emma Lewell-Buck Excerpts

Monday 6th December 2021 Commons Chamber

[Sajid Javid]

We are reviewing that scheme, for reasons that my hon. Friend has brought up in the past in the House. I agree that it is important to have confidence in vaccines, and that scheme has a role to play.

[Mrs Emma Lewell-Buck (South Shields) (Lab)]

Throughout this pandemic, while we have all made sacrifices, we have been watching those imposing the rules repeatedly breaking them. The final straw is that last Christmas, as families spent time apart and their loved ones died alone, No. 10 was in full party mode. Will the Secretary of State therefore confirm that the upcoming covid inquiry will include a thorough examination of any misconduct in public office?

Covid-19 Update

Emma Lewell-Buck Excerpts

Tuesday 14th September 2021 Commons Chamber

[Sajid Javid]

I join my hon. Friend in condemning anyone who gives abuse to our fantastic GPs up and down the country. If someone cannot get through to their GP, they should try their clinical commissioning group. If for any reason that does not work, they should please come to the Department and consult Ministers.

[Mrs Emma Lewell-Buck (South Shields) (Lab)]

The Secretary of State has not delivered a concrete plan today, and there is no real clarity on thresholds for further lockdowns, or details of what draconian and unnecessary powers in the Coronavirus Act 2020 he wants to hold on to. Will he at least say when that soon-to-expire Act will be back before the House for a vote?

[Sajid Javid]

May I suggest that the hon. Lady reads the plan before she comments on it?

Covid-19 Update

Emma Lewell-Buck Excerpts

Thursday 22nd July 2021 Commons Chamber

[Nadhim Zahawi]

I thank my hon. Friend, who always asks important yet challenging questions. The 18-year-olds can now look forward to travelling to 33 countries that have accepted double-jabbed Brits who can demonstrate that. If they have their jab now, they can go to those countries from mid-September. They can look forward to clubbing by the end of September as well—enjoying the Winchester nightlife. I hope I have made it clear to the House that giving ourselves that additional few weeks, given that self-isolation is probably the second most effective tool after vaccines, makes a huge difference as we transition this virus. It is not easy, but I certainly think we are doing the right thing by giving ourselves the space and time to transition this virus from pandemic to endemic status.

[Mrs Emma Lewell-Buck (South Shields) (Lab)]

The app forcing self-isolation is making our country grind to a halt. Delivery drivers, shops, transport, hospitality, factories, and essential public and blue-light services are at breaking point. The Minister has said that there will be no more exemptions to self-isolating. The Business Secretary said the same just this morning. Then, just over an hour ago, he told the press—not this House—that he had changed his mind. Who are we to believe—this Minister or the Business Secretary?

[Nadhim Zahawi]

I think the hon. Lady has just demonstrated how difficult these decisions are. I would just say to her that we are working flat out, in the Department of Health and Social Care and the Department for Business, Energy and Industrial Strategy, to work with business—whether it is the critical infrastructure that the Business Secretary spoke about, or any other part of the economy—so that we can safely return to a place where we open up, and open up permanently.