ADHD Diagnosis

Kerry McCarthy Excerpts

Tuesday 20th January 2026 Westminster Hall

[Olivia Blake (Sheffield Hallam) (Lab)]

It is a pleasure to serve under your chairship, Ms Vaz. I thank my hon. Friend the Member for Sefton Central (Bill Esterson) for securing this debate and for raising awareness of the case of Matty Lock.

I declare an interest as the chair of the all-party parliamentary group for special educational needs and disabilities, and as one of the openly neurodiverse Members of this House: I have dyspraxia, dyslexia and—surprise, surprise—ADHD.

As someone with personal experience, I know how transformative a timely diagnosis and the right support can be—something I unfortunately did not receive as a little girl. I was often considered disruptive and described as having little focus, lazy and not meeting my potential. I was moved to the “naughty boys table”, aged seven, away from my friends. Even though my handwriting was atrocious, I struggled to read and I had very difficult emotional dysregulation, a lack of attention and fidgeting, no one would ever have considered back then that I was neurodiverse.

It has been many years since I was at primary school, but I would have hoped that the situation would have progressed. Unfortunately, it is hard to hear, again and again, about parents and children battling a system to get their needs recognised. It is troubling to hear from constituents who are in similar situations to what I experienced in the early 1990s, and about the barriers they are currently facing in accessing ADHD assessments, medication and therapeutic input. Those are not isolated cases, as we have heard. For both children and adults, waiting several years has become routine.

[Kerry McCarthy (Bristol East) (Lab)]

In the last few weeks, I have visited two alternative learning projects in my constituency. One is the Wheels Project, which gets children working on restoring cars. The other is Enemy of Boredom, which is a brilliant thing, getting children video gaming while learning at the same time. What is amazing is that they do only half a day a week there, but it transforms their experience of mainstream education. They are much better when they get back to the classroom, because they have had focused attention on something they love doing. Does my hon. Friend agree that we ought to do more of that?

[Olivia Blake]

Absolutely. Just to go back to myself again, in a very ADHD way, I did art and drama alongside sciences. I became a scientist before I came here, but without the art and drama I would never have succeeded in science. I think it is really important that we work with people’s strengths, because the alternative to not doing that is huge. We have heard about suicide rates, prisons and unemployment among young people, and young people being blamed for being unemployed even though they have ADHD and have gone through a system where they are not getting the support they need. The ADHD taskforce has all the answers and should be looked at urgently by the Government.

Myalgic Encephalomyelitis

Kerry McCarthy Excerpts

Wednesday 19th November 2025 Westminster Hall

[Sir Jeremy Hunt (Godalming and Ash) (Con)]

It is a privilege to speak under your chairship, Mr Mundell. I thank the hon. Member for Wells and Mendip Hills (Tessa Munt) for calling this debate.

I would like to use my short time to tell the story of a young man who made me understand the tragedy of ME six years ago. He was a very promising first-year student at Durham University called Tom. He was on track to get a first in maths. He was a big hockey player, but in his second year, he started struggling, first to walk upstairs and to climb hills, and eventually he found that he could not wash himself, eat by himself or even read. Then, to his enormous frustration, he dropped out in his third year. When all his friends were starting a new life with their first job, he had to stay at home and go through the nightmare of first trying to get a diagnosis and get someone to agree that he had a problem, and then trying to get treatment for it.

Tom felt that he was going in circles: doctors were not really persuaded and he was not getting any answers. He was very lucky because he had two remarkable parents, Alex and Denise, who could afford to go to America. In fact, they moved to America and they got him enrolled on clinical trials. This story has a positive ending, because six years on, he is doing incredibly well. He is actually thriving; he has a job and a partner, and his life is back on track—except, sadly, in America rather than here.

As the hon. Member for Wells and Mendip Hills said, there are 400,000 people with ME or with long covid symptoms that are like severe ME. For some of them, it is already too late. Maeve Boothby O’Neill and Sarah Lewis tragically lost their lives, and coroners issued prevention of future deaths notices.

[Kerry McCarthy (Bristol East) (Lab)]

Sarah Lewis was my constituent. I have here the prevention of future deaths report that was issued after the inquest. She took her own life, but was severely ill with ME. One thing that comes through very strongly is that she did not feel she was believed or taken seriously, or that her symptoms were recognised by the medical profession. It is so important that we challenge the medical profession to take this more seriously.

[Sir Jeremy Hunt]

I thank the hon. Lady for talking about that very sad case. I actually think that the NHS is better than it was because of long covid.

The real cause for hope is Edinburgh University’s DecodeME study, which the chief executive of Action for ME, Sonya Chowdhury, described to me as being like a treasure hunt map with eight crosses where there is a genetic code that matches ME, but where we then have to go and dig up that treasure. That is what is now waiting to happen, and why funding is so important.

Ultimately, with the quality of research in this country, there should be no need for anyone to have to go to the United States or Germany for their treatment. During the pandemic, more lives were saved through treatments and vaccines discovered in this country than any other country in the world. We have amazing research happening here.

My plea to the Government is this: the last Government started the process by ignoring some of the scepticism in the medical community about whether ME was really a serious condition. It would be fantastic, and it would give so much hope, if this Government could now finish the job and invest in research that will transform the lives of so many people like Tom.