Prevent avoidable deaths by making autism/learning disability training mandatory

My son Oliver was only 18 when he died in hospital on 11 Nov 2016. I believe his death could have been prevented if his doctors and nurses had received mandatory training. He had autism and a mild learning disability, and they weren't trained to understand how to make reasonable adjustments for him.

This petition closed on 7 Dec 2018 with 52,148 signatures


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Recent Documents related to Prevent avoidable deaths by making autism/learning disability training mandatory

1. Prevent avoidable deaths by making autism/learning disability training mandatory
30/05/2018 - Petitions

Found: My son Oliver was only 18 when he died in hospital on 11 Nov 2016. I believe his death could have been

2. Closed consultation: Learning disability and autism training for health and care staff
12/04/2019 - Department of Health and Social Care
- View source

Found: Learning disability and autism training for health and care staff A consultation Contents

3. Police Officers to have mandatory training in autism and learning disability
17/02/2019 - Petitions

Found: My son Oliver McGowan was only 18 when he died on 11 Nov 2016. I believe that if all police officers

4. HEALTH INEQUALITIES FOR PEOPLE WITH LEARNING DISABILITIES AND AUTISM
11/06/2018 - Early Day Motions

Found: inequalities that exist for people with learning disabilities and autism, including inequalities in primary

5. Shortage of learning disability nurses
23/09/2020 - Early Day Motions

Found: 134 per cent increase in deaths of people with learning disabilities that happened between 10 April and

Latest Documents
Recent Speeches related to Prevent avoidable deaths by making autism/learning disability training mandatory

1. Autism and Learning Disability Training: Healthcare Professionals
22/10/2018 - Westminster Hall

1: e-petition 221033 relating to autism and learning disability training for healthcare professionals.It - Speech Link
2: had training on learning disability or autism. This is unacceptable. Two thirds want more training, and - Speech Link

2. Health: Learning Disability and Autism Training
10/02/2020 - Lords Chamber

1: steps they are taking to mandate training on learning disability and autism for all health and social care - Speech Link
2: therapeutic resources to empower people with learning disability and autism and to educate those who support them - Speech Link

3. Health Inequality: Autism and Learning Disabilities
10/05/2018 - Grand Committee

1: years ago, Mencap launched a report entitled Death by Indifference. It was part of a campaign made necessary - Speech Link

4. Covid-19: Effect on People with Learning Disabilities
15/12/2020 - Westminster Hall

1: effect of the covid-19 outbreak on people with learning disabilities.It is a great pleasure to - Speech Link

5. Disability: Premature Deaths
17/10/2016 - Lords Chamber

1: Lords, this is our first opportunity since his death in August to celebrate the extraordinary contribution - Speech Link

Latest Speeches
Recent Questions related to Prevent avoidable deaths by making autism/learning disability training mandatory
1. Autism and Learning Disability: Death
asked by: Lord Alton of Liverpool
18/06/2020
... representing a 134 per cent rise compared with the same period in 2019.

2. Learning Disability: Death
asked by: Baroness Hollins
29/06/2020
... compared with the equivalent period last year. [T]

3. Learning Disability: Death
asked by: Tanmanjeet Singh Dhesi
16/01/2019
... whether his Department is taking steps to address the recommendations of that report.

4. Learning Disability: Nurses
asked by: Neil Coyle
22/03/2021
... how many people living in England hold a qualification as a learning disability nurse.

5. Learning Disability: Nurses
asked by: Neil Coyle
23/03/2021
... how many NHS learning disability nurses were employed (a) in total and (b) in each NHS trust in England for the most recent period in which that information is available.

Latest Questions

You may be interested in these active petitions

1. Mandatory Autism awareness training for mainstream schools - 13,453 signatures

1 in 4 healthcare professionals has never had training on learning disability or autism. This is unacceptable. Two thirds want more training, and 1 in 3 think a lack of government leadership is contributing to the problem of avoidable deaths. The Government must ensure all healthcare professionals get mandatory training to address the huge health inequalities facing people with autism and a learning disability. For more information search for: LeDeR report 2018; CIPOLD 2013; Treat me well 2018.


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Government Response

We want all staff to receive the support, training and professional development they need to support people with learning disabilities and autism, in line with employers’ existing responsibilities.


Our deepest sympathies are with Oliver’s family for their loss.

Everyone has the right to high quality, safe health care so it is crucial that all health workers are given the skills and education to confidently deliver care that meets the needs of all their patients. This is a priority for the Government.

All employers have a clear legal responsibility to make sure that staff are competent to perform their role as set out in the Health and Social Care Act 2008 (Regulated Activities) Regulation 2014; regulation 18.

To support a consistent approach to learning disability education and training, the Department for Health and Social Care commissioned Skills for Health and Health Education England to develop a Core Skills Education and Training Framework. Published in July 2016, the Framework, which sets out the essential skills and knowledge needed for all staff working with people with a learning disability in health and social care settings, is structured in three tiers, or levels of training, to reflect the different levels of knowledge specific roles would require.

Tier one, which is relevant to the entire health and care workforce including ancillary staff, concerns general awareness skills and attitudes.

Tier two is aimed at developing the knowledge and skills of staff that are likely to have regular contact with people with a learning disability.

Tier three is aimed at enhancing the knowledge, skills and attitudes of key staff and is relevant to those who are managing care and support services for people with a learning disability.

Employers and/or commissioners of education should use the Framework as guidance for the development and delivery of appropriate and consistent education and training, as well as for identifying the skills needed for particular roles in line with their legal responsibilities. By doing so, this will result in safer and more effective practice.

To ensure that health and care staff also have appropriate knowledge and awareness of autism, the Department of Health and Social Care has commissioned the development of a Core Skills and Competency Framework for Autism, which will be in line with the tiered approach adopted by other core skills frameworks. The development of this framework is expected to improve the availability of general awareness training to all staff across the health and care system and wider public services to equip them to offer appropriate support to autistic people (Tier 1), as well as developing and enhancing the knowledge, skills and attitudes for roles that have regular contact with autistic people (Tiers 2 and 3).

The recent annual report of the Learning Disability Mortality Review (LeDeR) Programme highlighted that people with a learning disability are still dying prematurely due to avoidable factors. We recognise that more is needed to address this profound inequality.

As outlined by Caroline Dinenage, the Minister of State for Care, on 23 July, the Department is working with NHS England and other system partners to agree actions for each of the nine recommendations; the Government’s response will be published after summer recess (House of Commons Written Statement 906, https://www.parliament.uk/business/publications/written-questions-answers-statements/written-statement/Commons/2018-07-23/HCWS906/).

Department of Health


MPs spoken contributions during 22 Oct 2018 petition debate

Conservative Chris Skidmore (View contribution) 2981 words Caroline Dinenage (View contribution) 2394 words Mike Wood (View contribution) 1218 words Cheryl Gillan 195 words
Independent Jared O'Mara 1368 words
Liberal Democrat Wera Hobhouse (View contribution) 856 words
Scottish National Party Hannah Bardell (View contribution) 1357 words Philippa Whitford (View contribution) 264 words