Mentions:
1: David Davis (Con - Haltemprice and Howden) material.And then, only a few months ago, one of my constituents talked to me about her father, who had motor - Speech Link
2: Kit Malthouse (Con - North West Hampshire) When Esther Rantzen stepped forward and talked about the impact that her disease was having on her, as - Speech Link
3: Christine Jardine (LD - Edinburgh West) suddenly from a heart attack when very young, and my mother very slowly of a horrible asbestos-related disease - Speech Link
4: Matt Hancock (Ind - West Suffolk) David, who has now died, was in the awful situation of having a disease that he had watched his own daughter - Speech Link
Mentions:
1: Justin Madders (Lab - Ellesmere Port and Neston) After visiting my local Motor Neurone Disease Association support group, I can tell him that those with - Speech Link
Mentions:
1: Damian Collins (Con - Folkestone and Hythe) The study discovered that former footballers have a fivefold increase in Alzheimer’s disease, a fourfold - Speech Link
2: Stuart Andrew (Con - Pudsey) Last September’s Backbench Business debate on the links between football and neurodegenerative disease - Speech Link
Mentions:
1: Laurence Robertson (Con - Tewkesbury) amends the definition of terminal illness and the period of life expectancy in relation to progressive disease - Speech Link
2: Paul Maynard (Con - Blackpool North and Cleveleys) I imagine that the provisions would certainly include illnesses such as advanced cancer, dementia, motor - Speech Link
Oral Evidence Apr. 23 2024
Committee: Health and Social Care Committee (Department: Department of Health and Social Care)Found: People who are living with non-cancer conditions such as dementia, motor neurone disease, heart failure
Mentions:
1: Christina Rees (LAB - Neath) both of them to do things such as social activities and hobbies.Katy cares for her husband who has motor - Speech Link
2: Debbie Abrahams (Lab - Oldham East and Saddleworth) It really is appalling.I had a glimpse of being a carer: my mother had Alzheimer’s disease for 10 years - Speech Link
Asked by: Andrew Lewer (Conservative - Northampton South)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps her Department is taking to support effective routes to market for precision medicines for (a) motor neurone disease and (b) other rare diseases in the UK.
Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care)
Should the Medicines and Healthcare products Regulatory Agency (MHRA) receive a marketing authorisation application (MAA) or applications, the MHRA will consider the drug with regards to quality, safety, and efficacy. The MHRA has procedures in place to consider drugs as part of an accelerated pathway. This is possible as part of national access collaboration, and international recognition. The MHRA would be able to consider motor neurone disease and other rare disease treatment products, under any of the procedures for the benefit of patients.
Apr. 12 2024
Source Page: Non-technical summaries granted in 2024Found: Cerebellar contributions to motor and non - motor behaviour 27 5.
Apr. 09 2024
Source Page: MHRA FOI performance dataFound: , furthermore, if a patient becomes ill with same symptoms of the disease the vaccine is designed to
Report Feb. 29 2024
Committee: Health and Social Care Committee (Department: Department of Health and Social Care)Found: their mother to Dignitas told the Committee: [ … ] as soon as she [the mother] found out that she had motor