To increase awareness and understanding of motor neurone disease (MND) amongst parliamentarians, to provide a forum for discussion of the challenges facing people living with and affected by MND and to campaign for better access to high quality services for people affected by MND..
Note: All-Party Parliamentary Groups (APPGs) are informal, cross-party groups formed by MPs and Members of the House of Lords who share a common interest in a particular policy area, region or country. APPGs have no official status within Parliament.
View Official Register Entry
Reticulating Splines
18 Additional APPG Publications
4 Current APPG Officers
Show/Hide
2 APPG Officer Positions
Acquired Brain Injury , Holy See
17 APPG Memberships
Autism , Carbon Monoxide , Carers , Child of the North , Dementia , Football Supporters , Gaps in Covid-19 Financial Support , Gypsies, Travellers and Roma , Healthcare Workers , Liverpool City Region , Miscarriages of Justice , Myalgic Encephalomyelitis (ME) , Occupational Safety and Health , Prostate Cancer , Schools, Learning and Assessment , United Nations Global Goals , Women affected by the Criminal Justice System
Acquired Brain Injury , Holy See
17 APPG Memberships
Autism , Carbon Monoxide , Carers , Child of the North , Dementia , Football Supporters , Gaps in Covid-19 Financial Support , Gypsies, Travellers and Roma , Healthcare Workers , Liverpool City Region , Miscarriages of Justice , Myalgic Encephalomyelitis (ME) , Occupational Safety and Health , Prostate Cancer , Schools, Learning and Assessment , United Nations Global Goals , Women affected by the Criminal Justice System
1 APPG Officer Position
HIV, AIDS and Sexual Health
2 APPG Memberships
Australia and New Zealand (ANZAC) and the Pacific Islands , Ireland and the Irish in Britain
HIV, AIDS and Sexual Health
2 APPG Memberships
Australia and New Zealand (ANZAC) and the Pacific Islands , Ireland and the Irish in Britain
1 APPG Officer Position
Cycling and Walking
2 APPG Memberships
Gaps in Covid-19 Financial Support , Transport Safety
Cycling and Walking
2 APPG Memberships
Gaps in Covid-19 Financial Support , Transport Safety
2 APPG Officer Positions
Transport Safety , Women and Enterprise
6 APPG Memberships
Australia and New Zealand (ANZAC) and the Pacific Islands , Aviation , Carbon Monoxide , Creative Health , Obesity , Women in Parliament
Transport Safety , Women and Enterprise
6 APPG Memberships
Australia and New Zealand (ANZAC) and the Pacific Islands , Aviation , Carbon Monoxide , Creative Health , Obesity , Women in Parliament
Contact Details
Show/HideRegistered Contact:
Ian Byrne MP, House of Commons, London, SW1A 0AA. Tel: 0207 219 3000.
Email: ian.byrne.mp@parliament.uk
Public Enquiry Point:
Sian Guest, Motor Neurone Disease Association. Tel: 02922 404709
Email: mndappg@mndassociation.org
Secretariat:
Motor Neurone Disease Association acts as the group's secretariat. https://www.mndassociation.org/
Group's Website:
https://www.mndassociation.org/get-involved/campaigning/all-party-parliamentary-group-appg-on-mnd
Benefits in Kind
Show/Hide
Date
12 Feb 2023
12 Feb 2023
Source
Motor Neurone Disease Association
Motor Neurone Disease Association
Description
Secretariat From : 12/02/2023 To : 11/02/2024
Secretariat From : 12/02/2023 To : 11/02/2024
Value
£1,501
£1,501
Date
12 Feb 2022
12 Feb 2022
Source
Motor Neurone Disease Association
Motor Neurone Disease Association
Description
Secretariat From : 12/02/2022 To : 11/02/2023
Secretariat From : 12/02/2022 To : 11/02/2023
Value
£1,501
£1,501
Date
12 Feb 2021
12 Feb 2021
Source
Motor Neurone Disease Association
Motor Neurone Disease Association
Description
Secretariat From : 12/02/2021 To : 11/02/2022
Secretariat From : 12/02/2021 To : 11/02/2022
Value
£1,501
£1,501
Date
12 Feb 2020
12 Feb 2020
Source
Motor Neurone Disease Association
Motor Neurone Disease Association
Description
Secretariat From : 12/02/2020 To : 12/02/2021
Secretariat From : 12/02/2020 To : 12/02/2021
Value
£1,501
£1,501
Date
12 Jul 2019
12 Jul 2019
Source
Motor Neurone Disease Association
Motor Neurone Disease Association
Description
Secretariat From : 12/07/2019 To : 11/07/2020
Secretariat From : 12/07/2019 To : 11/07/2020
Value
£1,501
£1,501
Date
12 Jul 2018
12 Jul 2018
Source
Motor Neurone Disease Association
Motor Neurone Disease Association
Description
Secretariat From : 12/07/2018 To : 11/07/2019
Secretariat From : 12/07/2018 To : 11/07/2019
Value
£1,501
£1,501
Date
17 Oct 2017
17 Oct 2017
Source
MND Association
MND Association
Description
Design and printing of a report
Design and printing of a report
Value
£3,001
£3,001
Date
17 Oct 2017
17 Oct 2017
Source
MND Association
MND Association
Description
Reception
Reception
Value
£1,501
£1,501
Date
12 Jul 2017
12 Jul 2017
Source
Motor Neurone Disease Association
Motor Neurone Disease Association
Description
Secretariat From : 12/07/2017 To : 11/07/2018
Secretariat From : 12/07/2017 To : 11/07/2018
Value
£1,501
£1,501
No direct financial benefits are on record for the Motor Neurone Disease APPG
Former APPG Officers
Show/Hide
Brendan Clarke-Smith
Vice Chair
Conservative - Former Member for Bassetlaw
Joined: 20th May 2020Departed: 30th May 2024
No other APPG Officer Positions
No other APPG Memberships
Mary Robinson
Vice Chair
Conservative - Former Member for Cheadle
Joined: 21st July 2016Departed: 30th May 2024
No other APPG Officer Positions
No other APPG Memberships
Andrew Lewer
Chair & Registered Contact
Conservative - Former Member for Northampton South
Joined: 29th August 2018Departed: 30th May 2024
No other APPG Officer Positions
No other APPG Memberships
3 APPG Officer Positions
Armenia , Georgia , Hospitality, Events, Major Food and Drink Businesses in Wales
Armenia , Georgia , Hospitality, Events, Major Food and Drink Businesses in Wales
No other APPG Memberships
John Hayes
Vice Chair
Conservative - South Holland and The Deepings
Joined: 23rd March 2022Departed: 6th March 2024
6 APPG Officer Positions
Acquired Brain Injury , Craft , Genetic Haemochromatosis , Lebanon , Skills, Careers and Employment , UK Fresh Produce Network
Acquired Brain Injury , Craft , Genetic Haemochromatosis , Lebanon , Skills, Careers and Employment , UK Fresh Produce Network
No other APPG Memberships
No other APPG Officer Positions
No other APPG Memberships
Louie French
Vice Chair
Conservative - Old Bexley and Sidcup
Joined: 17th May 2023Departed: 6th March 2024
No other APPG Officer Positions
No other APPG Memberships
Christina Rees
Vice Chair
Labour (Co-op) - Former Member for Neath
Joined: 21st April 2021Departed: 6th March 2024
No other APPG Officer Positions
No other APPG Memberships
Christine Jardine
Vice Chair
Liberal Democrat - Edinburgh West
Joined: 29th August 2018Departed: 6th March 2024
5 APPG Officer Positions
Antisemitism , Choice at the End of Life , Grief Support and the Impact of Death on Society , Portugal , Switzerland and Liechtenstein
Antisemitism , Choice at the End of Life , Grief Support and the Impact of Death on Society , Portugal , Switzerland and Liechtenstein
No other APPG Memberships
7 APPG Officer Positions
Classical Music , Film and Broader Screen , Music Education , Tennis , Theatre , Ticket Abuse , Young Carers and Young Adult Carers
Classical Music , Film and Broader Screen , Music Education , Tennis , Theatre , Ticket Abuse , Young Carers and Young Adult Carers
No other APPG Memberships
4 APPG Officer Positions
Birth Trauma , Dog Advisory Welfare , Tigray , Women's Rights
Birth Trauma , Dog Advisory Welfare , Tigray , Women's Rights
No other APPG Memberships
Steve Baker
Vice Chair
Conservative - Former Member for Wycombe
Joined: 23rd March 2022Departed: 5th April 2023
No other APPG Officer Positions
No other APPG Memberships
Madeleine Moon
Chair & Registered Contact
Labour - Former Member for Bridgend
Joined: 30th July 2015Departed: 5th November 2019
No other APPG Officer Positions
No other APPG Memberships
Paul Blomfield
Vice Chair
Labour - Former Member for Sheffield Central
Joined: 30th July 2015Departed: 18th July 2018
No other APPG Officer Positions
No other APPG Memberships
James Gray
Treasurer
Conservative - Former Member for North Wiltshire
Joined: 30th July 2015Departed: 3rd June 2016
No other APPG Officer Positions
No other APPG Memberships
Karl McCartney
Secretary
Conservative - Former Member for Lincoln
Joined: 30th July 2015Departed: 3rd June 2016
No other APPG Officer Positions
No other APPG Memberships