Motor Neurone Disease APPG

First Registered: 30/07/2015 • Last updated on: 07/05/2025

To increase awareness and understanding of motor neurone disease (MND) amongst parliamentarians, to provide a forum for discussion of the challenges facing people living with and affected by MND and to campaign for better access to high quality services for people affected by MND..

Note: All-Party Parliamentary Groups (APPGs) are informal, cross-party groups formed by MPs and Members of the House of Lords who share a common interest in a particular policy area, region or country. APPGs have no official status within Parliament.
View Official Register Entry


Reticulating Splines
4 Current APPG Officers
Michael Payne Portrait
Michael Payne
Vice Chair
Labour - Gedling
Joined: 2nd January 2025
Olly Glover Portrait
Olly Glover
Vice Chair
Liberal Democrat - Didcot and Wantage
Joined: 2nd January 2025
1 APPG Officer Position
Cycling and Walking
2 APPG Memberships
Gaps in Covid-19 Financial Support , Transport Safety
Aphra Brandreth Portrait
Aphra Brandreth
Vice Chair
Conservative - Chester South and Eddisbury
Joined: 2nd January 2025
Contact Details

Registered Contact:

Ian Byrne MP, House of Commons, London, SW1A 0AA. Tel: 0207 219 3000.

Email: ian.byrne.mp@parliament.uk

Public Enquiry Point:

Sian Guest, Motor Neurone Disease Association. Tel: 02922 404709

Email: mndappg@mndassociation.org

Secretariat:

Motor Neurone Disease Association acts as the group's secretariat. https://www.mndassociation.org/

Group's Website:

https://www.mndassociation.org/get-involved/campaigning/all-party-parliamentary-group-appg-on-mnd

Date
12 Feb 2023
Source
Motor Neurone Disease Association
Description
Secretariat   From : 12/02/2023 To : 11/02/2024
Value
£1,501
Date
12 Feb 2022
Source
Motor Neurone Disease Association
Description
Secretariat   From : 12/02/2022 To : 11/02/2023
Value
£1,501
Date
12 Feb 2021
Source
Motor Neurone Disease Association
Description
Secretariat   From : 12/02/2021 To : 11/02/2022
Value
£1,501
Date
12 Feb 2020
Source
Motor Neurone Disease Association
Description
Secretariat   From : 12/02/2020 To : 12/02/2021
Value
£1,501
Date
12 Jul 2019
Source
Motor Neurone Disease Association
Description
Secretariat   From : 12/07/2019 To : 11/07/2020
Value
£1,501
Date
12 Jul 2018
Source
Motor Neurone Disease Association
Description
Secretariat   From : 12/07/2018 To : 11/07/2019
Value
£1,501
Date
17 Oct 2017
Source
MND Association
Description
Design and printing of a report
Value
£3,001
Date
17 Oct 2017
Source
MND Association
Description
Reception
Value
£1,501
Date
12 Jul 2017
Source
Motor Neurone Disease Association
Description
Secretariat   From : 12/07/2017 To : 11/07/2018
Value
£1,501

No direct financial benefits are on record for the Motor Neurone Disease APPG

Former APPG Officers
Brendan Clarke-Smith Portrait
Brendan Clarke-Smith
Vice Chair
Conservative - Former Member for Bassetlaw
Joined: 20th May 2020
Departed: 30th May 2024
No other APPG Officer Positions

No other APPG Memberships

Mary Robinson Portrait
Mary Robinson
Vice Chair
Conservative - Former Member for Cheadle
Joined: 21st July 2016
Departed: 30th May 2024
No other APPG Officer Positions

No other APPG Memberships

Andrew Lewer Portrait
Andrew Lewer
Chair & Registered Contact
Conservative - Former Member for Northampton South
Joined: 29th August 2018
Departed: 30th May 2024
No other APPG Officer Positions

No other APPG Memberships

Jessica Morden Portrait
Jessica Morden
Vice Chair
Labour - Newport East
Joined: 6th October 2021
Departed: 6th March 2024
3 APPG Officer Positions
Armenia , Georgia , Hospitality, Events, Major Food and Drink Businesses in Wales

No other APPG Memberships

John Hayes Portrait
John Hayes
Vice Chair
Conservative - South Holland and The Deepings
Joined: 23rd March 2022
Departed: 6th March 2024
Mark Tami Portrait
Mark Tami
Vice Chair
Labour - Alyn and Deeside
Joined: 20th May 2020
Departed: 6th March 2024
No other APPG Officer Positions

No other APPG Memberships

Louie French Portrait
Louie French
Vice Chair
Conservative - Old Bexley and Sidcup
Joined: 17th May 2023
Departed: 6th March 2024
No other APPG Officer Positions

No other APPG Memberships

Christina Rees Portrait
Christina Rees
Vice Chair
Labour (Co-op) - Former Member for Neath
Joined: 21st April 2021
Departed: 6th March 2024
No other APPG Officer Positions

No other APPG Memberships

Christine Jardine Portrait
Christine Jardine
Vice Chair
Liberal Democrat - Edinburgh West
Joined: 29th August 2018
Departed: 6th March 2024
Baroness Keeley Portrait
Baroness Keeley
Vice Chair
Labour - Life peer
Joined: 21st April 2021
Departed: 6th March 2024
Rosie Duffield Portrait
Rosie Duffield
Treasurer
Independent - Canterbury
Joined: 20th May 2020
Departed: 5th April 2023
1 APPG Officer Position
Dog Advisory Welfare

No other APPG Memberships

Steve Baker Portrait
Steve Baker
Vice Chair
Conservative - Former Member for Wycombe
Joined: 23rd March 2022
Departed: 5th April 2023
No other APPG Officer Positions

No other APPG Memberships

Chris Evans Portrait
Chris Evans
Vice Chair
Labour (Co-op) - Caerphilly
Joined: 30th July 2015
Departed: 5th April 2023
2 APPG Officer Positions
Archives and History , Writers

No other APPG Memberships

Madeleine Moon Portrait
Madeleine Moon
Chair & Registered Contact
Labour - Former Member for Bridgend
Joined: 30th July 2015
Departed: 5th November 2019
No other APPG Officer Positions

No other APPG Memberships

Paul Blomfield Portrait
Paul Blomfield
Vice Chair
Labour - Former Member for Sheffield Central
Joined: 30th July 2015
Departed: 18th July 2018
No other APPG Officer Positions

No other APPG Memberships

James Gray Portrait
James Gray
Treasurer
Conservative - Former Member for North Wiltshire
Joined: 30th July 2015
Departed: 3rd June 2016
No other APPG Officer Positions

No other APPG Memberships

Karl McCartney Portrait
Karl McCartney
Secretary
Conservative - Former Member for Lincoln
Joined: 30th July 2015
Departed: 3rd June 2016
No other APPG Officer Positions

No other APPG Memberships