To raise awareness of Motor Neurone Disease (MND) and to provide a forum for discussion of the issues facing people with MND and their families.
1. Spennylympics event 2021
22/07/2021 - Early Day Motions
Found: that the Spennylympics are doing with the Motor Neurone Disease Association (MNDA) in memory of Stuart’s
2. Neurodegenerative disease in professional sportspersons
10/03/2020 - Industrial Injuries Advisory Council
- View source
tion, Alzheimer™s disease, Parkinson™s
disease and motor neurone disease.
The Council is seeking
3. Have Kevin Sinfield MBE and Rob Burrow recognised in the New Year Honours list
06/12/2020 - Petitions
Found: their charity work to raise awareness for Motor Neurone Disease (MND)
4. Issue Blue Badges, for degenerative disease, with open end date
01/07/2021 - Petitions
Found: conditions ie: Multiple Sclerosis, Parkinson’s, Motor Neurone Disease, Muscular Dystrophy to name just a few,
5. The Government should explore options to make NurOwn available for MND
09/12/2020 - Petitions
Found: available on the NHS as a treatment for Motor Neuron Disease (MND). The provision of stem cell treatment
1. Motor Neurone Disease (Research)
12/07/2021 - Westminster Hall
1: relating to research into motor neurone disease.Motor neurone disease is a rare disease that is sadly all too - Speech Link
2. Welfare (Terminal Illness)
22/07/2020 - Commons Chamber
1: consequences of terminal illnesses such as motor neurone disease, terminal cancers, advanced lung and heart - Speech Link
3. ESA: People with Motor Neurone Disease
11/07/2018 - Westminster Hall
1: employment support allowance for people with motor neurone disease.It is a great pleasure to serve under - Speech Link
2: systems just are not suitable for people with motor neurone disease. Will he join me in congratulating those - Speech Link
3: That local voice is absolutely crucial.Motor neurone disease is the umbrella term for several neurodegenerative - Speech Link
4. Terminally Ill People: Access to Benefits
22/02/2021 - Commons Chamber
1: campaigning by charities Marie Curie, the Motor Neurone Disease Association and others. I pay tribute to - Speech Link
2: conversations with claimants with cancer and motor neurone disease. We also held extensive stakeholder workshops - Speech Link
5. Covid-19: Vaccination Prioritisation
25/11/2020 - Lords Chamber
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Andrew Lewer MP, House of Commons, London, SW1A 0AA. Tel: 0207 219 3870.
Public Enquiry Point:
Lana Ghafoor, Motor Neurone Disease Association, Francis Crick House, 6 Summerhouse Road, Moulton Park, Norhtampton NN3 6BJ. Tel: 0203 875 8911
Motor Neurone Disease Association acts as the group's secretariat. https://www.mndassociation.org/
No direct financial benefits are on record for the Motor Neurone Disease APPG