Motor Neurone Disease APPG

First Registered: 30/07/2015 • Last updated on: 08/04/2024

To raise awareness of Motor Neurone Disease (MND) and to provide a forum for discussion of the issues facing people with MND and their families.

Note: All-Party Parliamentary Groups (APPGs) are informal, cross-party groups formed by MPs and Members of the House of Lords who share a common interest in a particular policy area, region or country. APPGs have no official status within Parliament.
View Official Register Entry


Reticulating Splines
APPG Supplied Content

APPGs can register with Parallel Parliament and submit files and articles to be placed here.

Parallel Parliament offers the facility for APPGs to submit written content and files, which are made available through this page.

Submitters can draft and edit publications, and either release them on demand, or schedule release for a future date.

Both text content and attached files submitted through this facility is indexed by our website, and made available through both the search function and relevant e-mail alerts. Any of our users registered for an alert which matches your content, will receive a link making them aware of its publication.

If you wish to register as an authorised representative of the Motor Neurone Disease APPG and use this facility, click below

4 Current APPG Officers
Ian Byrne Portrait
Ian Byrne
Vice Chair
Labour - Liverpool, West Derby
Joined: 17th May 2023
1 APPG Membership
CAFOD
Mary Robinson Portrait
Mary Robinson
Vice Chair
Conservative - Cheadle
Joined: 21st July 2016
2 APPG Memberships
Child of the North , Whistleblowing
Brendan Clarke-Smith Portrait
Brendan Clarke-Smith
Vice Chair
Conservative - Bassetlaw
Joined: 20th May 2020
Contact Details

Registered Contact:

Andrew Lewer MP, House of Commons, London, SW1A 0AA. Tel: 0207 219 3870.

Email: andrew.lewer.mp@parliament.uk

Public Enquiry Point:

Sian Guest, Motor Neurone Disease Association, Francis Crick House, 6 Summerhouse Road, Moulton Park, Northampton NN3 6BJ

Email: sian.guest@mndassociation.org

Group's Website:

https://www.mndassociation.org/get-involved/campaigning-influencing/all-party-parliamentary-group-appg-on-mnd/

Date
12 Feb 2023
Source
Motor Neurone Disease Association
Description
Secretariat   From : 12/02/2023 To : 11/02/2024
Value
£1,501
Date
12 Feb 2022
Source
Motor Neurone Disease Association
Description
Secretariat   From : 12/02/2022 To : 11/02/2023
Value
£1,501
Date
12 Feb 2021
Source
Motor Neurone Disease Association
Description
Secretariat   From : 12/02/2021 To : 11/02/2022
Value
£1,501
Date
12 Feb 2020
Source
Motor Neurone Disease Association
Description
Secretariat   From : 12/02/2020 To : 12/02/2021
Value
£1,501
Date
12 Jul 2019
Source
Motor Neurone Disease Association
Description
Secretariat   From : 12/07/2019 To : 11/07/2020
Value
£1,501
Date
12 Jul 2018
Source
Motor Neurone Disease Association
Description
Secretariat   From : 12/07/2018 To : 11/07/2019
Value
£1,501
Date
17 Oct 2017
Source
MND Association
Description
Design and printing of a report
Value
£3,001
Date
17 Oct 2017
Source
MND Association
Description
Reception
Value
£1,501
Date
12 Jul 2017
Source
Motor Neurone Disease Association
Description
Secretariat   From : 12/07/2017 To : 11/07/2018
Value
£1,501

No direct financial benefits are on record for the Motor Neurone Disease APPG

Former APPG Officers
Barbara Keeley Portrait
Barbara Keeley
Vice Chair
Labour - Worsley and Eccles South
Joined: 21st April 2021
Departed: 6th March 2024
Jessica Morden Portrait
Jessica Morden
Vice Chair
Labour - Newport East
Joined: 6th October 2021
Departed: 6th March 2024
Christine Jardine Portrait
Christine Jardine
Vice Chair
Liberal Democrat - Edinburgh West
Joined: 29th August 2018
Departed: 6th March 2024
3 APPG Memberships
Choice at the End of Life , Hydrogen , Malawi
Christina Rees Portrait
Christina Rees
Vice Chair
Labour (Co-op) - Neath
Joined: 21st April 2021
Departed: 6th March 2024
Louie French Portrait
Louie French
Vice Chair
Conservative - Old Bexley and Sidcup
Joined: 17th May 2023
Departed: 6th March 2024
1 APPG Membership
Rugby League
Mark Tami Portrait
Mark Tami
Vice Chair
Labour - Alyn and Deeside
Joined: 20th May 2020
Departed: 6th March 2024
John Hayes Portrait
John Hayes
Vice Chair
Conservative - South Holland and The Deepings
Joined: 23rd March 2022
Departed: 6th March 2024
Chris Evans Portrait
Chris Evans
Vice Chair
Labour (Co-op) - Islwyn
Joined: 30th July 2015
Departed: 5th April 2023
2 APPG Memberships
Credit Unions , Writers
Steve Baker Portrait
Steve Baker
Vice Chair
Conservative - Wycombe
Joined: 23rd March 2022
Departed: 5th April 2023
No other APPG Memberships
Rosie Duffield Portrait
Rosie Duffield
Treasurer
Labour - Canterbury
Joined: 20th May 2020
Departed: 5th April 2023
Madeleine Moon Portrait
Madeleine Moon
Chair & Registered Contact
Labour - Former Member for Bridgend
Joined: 30th July 2015
Departed: 5th November 2019
No other APPG Memberships
Paul Blomfield Portrait
Paul Blomfield
Vice Chair
Labour - Sheffield Central
Joined: 30th July 2015
Departed: 18th July 2018
3 APPG Memberships
Somaliland , Students , University
James Gray Portrait
James Gray
Treasurer
Conservative - North Wiltshire
Joined: 30th July 2015
Departed: 3rd June 2016
1 APPG Membership
Armed Forces
Karl McCartney Portrait
Karl McCartney
Secretary
Conservative - Lincoln
Joined: 30th July 2015
Departed: 3rd June 2016