Terminal Illness APPG

First Registered: 18/07/2018 • Last updated on: 25/08/2021

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Raises awareness of issues around terminal illness in parliament. Promotes links between parliament, individuals and families affected, charities, scientists, health professionals and decision makers. Includes MPs from across the political spectrum who are keen to discuss, improve and share knowledge of end of life care.

Note: All-Party Parliamentary Groups (APPGs) are informal, cross-party groups formed by MPs and Members of the House of Lords who share a common interest in a particular policy area, region or country. APPGs have no official status within Parliament.


This content was generated for your convenience by Parallel Parliament and does not form part of the official record.
Recent Documents related to Terminal Illness

1. Marie Curie - written evidence
09/09/2019 - Inquiry: Welfare policy in Scotland - Scottish Affairs Committee
- View source

Found: Attendance Allowance. People living with a terminal illness can access these benefits under a system of

2. Marie Curie Northern Ireland - written evidence
05/06/2019 - Inquiry: Welfare policy in Northern Ireland - Work and Pensions Committee
- View source

Found: in the provision of care to people with a terminal illness in Northern Ireland. We provide a range of

3. Findings from the evaluation of the Special Rules for Terminal Illness process
20/07/2021 - Department for Work and Pensions
- View source

Found: from the evaluation of the Special Rules for Terminal Illness process This report represents the findings

4. Together for Short Lives - written evidence
09/09/2019 - Inquiry: Welfare policy in Scotland - Scottish Affairs Committee
- View source

Found: that the misalignment between definitions of terminal illness, for the sake of ‘fast-track’ access to certain

5. Bill 253 2017-19 (as introduced)
16/11/2018 - Bill Documents

Found: Bill 253 57/1Access to Welfare (Terminal Illness Definition) BillCONTENTS1Amendment of the Welfare Reform

Latest Documents
Recent Speeches related to Terminal Illness

1. Terminally Ill People: Access to Benefits
22/02/2021 - Commons Chamber

1: forward my ten-minute rule Bill, the Welfare (Terminal Illness) Bill, last summer. I also thank individual - Speech Link
2: their review, more people are diagnosed with a terminal illness and risk being unable to get fast-track support - Speech Link

2. Employment: Terminal Illness
17/12/2018 - Grand Committee

1: she informed her employer of her diagnosis of terminal breast cancer. Ms Woodcock is not alone, and therefore - Speech Link
2: accommodation they occupy by virtue of their office. A terminal illness for one of those clergy, as for anybody else - Speech Link

3. Welfare (Terminal Illness)
22/07/2020 - Commons Chamber

1: address the failures of the special rules for terminal illness, which do not fast-track some terminally ill - Speech Link

4. Access to Welfare (Terminal Illness Definition)
18/07/2018 - Commons Chamber

1: bring in a Bill to amend the definition of terminal illness in the Welfare Reform Act 2012; and for connected - Speech Link

5. Universal Credit and Terminal Illness
09/05/2018 - Commons Chamber

1: acutely aware of every second as it passes. Terminal illness deeply affects families in our communities - Speech Link
2: universal credit is having on people with terminal illness, I ask the Minister not to follow the same - Speech Link

Latest Speeches
Recent Questions related to Terminal Illness
1. Terminal Illnesses
asked by: Preet Kaur Gill
12/07/2018
... what assessment his Department has made of the merits of allowing clinicians to to determine if someone is terminally ill instead of requiring a reasonable expectation of death within six months.

2. Terminal Illnesses: Coronavirus
asked by: Julian Sturdy
13/01/2021
... whether visiting a person who is terminally ill is a permissible reason for staying away from home overnight under the January 2021 lockdown restrictions.

3. Children: Terminal Illnesses
asked by: Charlotte Nichols
08/12/2020
... if he will make it his policy to provide funding for short breaks and holidays for children who are seriously ill.

4. Terminal Illnesses: Coronavirus
asked by: Jessica Morden
19/05/2020
... what the Government's guidance is on people (a) travelling and (b) travelling a distance of over 10 miles to visit someone who is dying at home from a non-covid-19 terminal illness.

5. Terminal Illnesses: Suicide
asked by: Baroness Watkins of Tavistock
19/11/2020
... suicide in each of the past three years.

Latest Questions
11 Current APPG Officers
Drew Hendry Portrait
Drew Hendry
Chair & Registered Contact
Scottish National Party - Inverness, Nairn, Badenoch and Strathspey
Joined: 18th July 2018
Lord Dykes Portrait
Lord Dykes
Vice Chair
Crossbench - Life peer
Joined: 20th May 2020
Contact Details

Registered Contact:

Drew Hendry MP, House of Commons, London, SW1A 0AA. Tel: 020 7219 6118.

Email: drew.hendry.mp@parliament.uk

Public Enquiry Point:

Marine Paclet, Marie Curie, 89 Albert Embankment, London SE1 7TP. Tel: 020 7599 7256

Email: marine.paclet@mariecurie.org.uk

Secretariat:

Marie Curie acts as the group's secretariat. https://www.mariecurie.org.uk/

Group's Website:

https://www.mariecurie.org.uk/policy/appg-for-terminal-illness

Benefits in Kind
Date
11 Feb 2021
Source
Marie Curie
Description
Secretariat   From : 11/02/2021 To : 10/02/2022
Value
£3,001
Date
11 Feb 2020
Source
Marie Curie
Description
Secretariat   From : 11/02/2020 To : 10/02/2021
Value
£3,001
Date
28 Feb 2019
Source
Marie Curie
Description
Secretariat   From : 28/02/2019 To : 27/02/2020
Value
£1,501
Date
28 Feb 2018
Source
Marie Curie
Description
Secretariat   From : 28/02/2018 To : 27/02/2019
Value
£1,501

No direct financial benefits are on record for the Terminal Illness APPG

Former APPG Officers
Valerie Vaz Portrait
Valerie Vaz
Vice Chair
Labour - Walsall South
Joined: 20th May 2020
Departed: 21st April 2021
Philippa Whitford Portrait
Philippa Whitford
Vice Chair
Scottish National Party - Central Ayrshire
Joined: 20th May 2020
Departed: 21st April 2021
Tom Tugendhat Portrait
Tom Tugendhat
Officer
Conservative - Tonbridge and Malling
Joined: 18th July 2018
Departed: 21st April 2021
Greg Clark Portrait
Greg Clark
Officer
Conservative - Tunbridge Wells
Joined: 20th May 2020
Departed: 21st April 2021
4 APPG Memberships
Chemical Industry , Colombia , Italy , Motor
Nia Griffith Portrait
Nia Griffith
Officer
Labour - Llanelli
Joined: 20th May 2020
Departed: 21st April 2021
1 APPG Membership
Modern Languages
John Hayes Portrait
John Hayes
Officer
Conservative - South Holland and The Deepings
Joined: 27th March 2019
Departed: 5th November 2019
Hugh Gaffney Portrait
Hugh Gaffney
Vice Chair
Labour - Former Member for Coatbridge, Chryston and Bellshill
Joined: 18th July 2018
Departed: 5th November 2019
No other APPG Memberships
Chris Law Portrait
Chris Law
Vice Chair
Scottish National Party - Dundee West
Joined: 18th July 2018
Departed: 13th February 2019