Sickle Cell and Thalassaemia APPG
First Registered: 28/09/2017 • Last updated on: 30/05/2024
Note: This APPG was last registered on 30th May 2024. The APPG was not registered in the latest release of the 7th May 2025 and may be defunct.
To reduce the inequalities faced by sickle cell and thalassaemia patients in the UK. To improve standards of care and address other critical issues, as recommended by the key stakeholders.
Note: All-Party Parliamentary Groups (APPGs) are informal, cross-party groups formed by MPs and Members of the House of Lords who share a common interest in a particular policy area, region or country. APPGs have no official status within Parliament.
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Reticulating Splines
Former APPG Officers
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4 APPG Officer Positions
Artificial Intelligence , Governance and Inclusive Leadership , Jamaica , Women in Parliament
Artificial Intelligence , Governance and Inclusive Leadership , Jamaica , Women in Parliament
No other APPG Memberships
Greg Clark
Officer
Conservative - Former Member for Tunbridge Wells
Joined: 17th November 2021Departed: 30th May 2024
No other APPG Officer Positions
No other APPG Memberships
Bell Ribeiro-Addy
Officer
Labour - Clapham and Brixton Hill
Joined: 20th May 2020Departed: 30th May 2024
5 APPG Officer Positions
Afrikan Reparations , Endometriosis , Ethnicity Transplantation and Transfusion , Ghana , Immigration Detention
Afrikan Reparations , Endometriosis , Ethnicity Transplantation and Transfusion , Ghana , Immigration Detention
No other APPG Memberships
Janet Daby
Chair & Registered Contact
Labour - Lewisham East
Joined: 31st July 2019Departed: 30th May 2024
No other APPG Officer Positions
No other APPG Memberships
3 APPG Officer Positions
Media , Parks and Green Spaces , Social, Cooperative, and Community Economy
Media , Parks and Green Spaces , Social, Cooperative, and Community Economy
No other APPG Memberships
Florence Eshalomi
Officer
Labour (Co-op) - Vauxhall and Camberwell Green
Joined: 20th May 2020Departed: 6th March 2024
5 APPG Officer Positions
CAFOD , HIV, AIDS and Sexual Health , London , Nigeria , Portugal
CAFOD , HIV, AIDS and Sexual Health , London , Nigeria , Portugal
No other APPG Memberships
Pat McFadden
Officer
Labour - Wolverhampton South East
Joined: 20th May 2020Departed: 6th March 2024
No other APPG Officer Positions
No other APPG Memberships
5 APPG Officer Positions
Christians in Parliament , Eye Health and Visual Impairment , Football , Jamaica , Tennis
Christians in Parliament , Eye Health and Visual Impairment , Football , Jamaica , Tennis
No other APPG Memberships
Bambos Charalambous
Vice Chair
Labour - Southgate and Wood Green
Joined: 2nd January 2019Departed: 17th May 2023
6 APPG Officer Positions
Alevis , Cyprus , Global Education , Music Education , Opera , Yazidis
Alevis , Cyprus , Global Education , Music Education , Opera , Yazidis
No other APPG Memberships
Baroness Ludford
Officer
Liberal Democrat - Life peer
Joined: 11th January 2023Departed: 17th May 2023
Paulette Hamilton
Officer
Labour - Birmingham Erdington
Joined: 11th January 2023Departed: 17th May 2023
6 APPG Officer Positions
Black Health , Caribbean , Cyprus , Hospice and End of Life Care , Less Survivable Cancers , Local Government
Black Health , Caribbean , Cyprus , Hospice and End of Life Care , Less Survivable Cancers , Local Government
No other APPG Memberships
No other APPG Officer Positions
No other APPG Memberships
Baroness Benjamin
Officer
Liberal Democrat - Life peer
Joined: 28th September 2017Departed: 15th June 2022
David Amess
Officer
Conservative - Former Member for Southend West
Joined: 28th September 2017Departed: 6th October 2021
No other APPG Officer Positions
No other APPG Memberships
Helen Grant
Officer
Conservative - Maidstone and Malling
Joined: 20th May 2020Departed: 2nd June 2021
4 APPG Officer Positions
Jamaica , Race and Community , Tennis , Women's Football
Jamaica , Race and Community , Tennis , Women's Football
No other APPG Memberships
Kate Osamor
Officer
Labour (Co-op) - Edmonton and Winchmore Hill
Joined: 20th May 2020Departed: 2nd June 2021
6 APPG Officer Positions
Africa , Global Tuberculosis , Haiti , Libya , Nigeria , Women affected by the Criminal Justice System
Africa , Global Tuberculosis , Haiti , Libya , Nigeria , Women affected by the Criminal Justice System
No other APPG Memberships
Pat McFadden
Chair & Registered Contact
Labour - Wolverhampton South East
Joined: 28th September 2017Departed: 5th November 2019
No other APPG Officer Positions
No other APPG Memberships
Diane Abbott
Chair & Registered Contact
Labour - Hackney North and Stoke Newington
Joined: 28th September 2017Departed: 19th June 2019
2 APPG Officer Positions
Afrikan Reparations , Dalits and Adivasis (Tribals)
Afrikan Reparations , Dalits and Adivasis (Tribals)
No other APPG Memberships
Contact Details
Show/HideRegistered Contact:
Janet Daby MP,
Email: No email supplied
Public Enquiry Point:
Seyi Afolabi, Sickle Cell Society, 54 Station Road, London NW10 4UA. Tel: 020 8961 7795
Email: seyi.afolabi@sicklecellsociety.org
Secretariat:
Sickle Cell Society acts as the group's secretariat. http://www.sicklecellsociety.org/
Group's Website:
Benefits in Kind
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Date
3 Jul 2023
3 Jul 2023
Source
NHS England (London)
NHS England (London)
Description
Event
Event
Value
£1,501
£1,501
Date
26 Feb 2023
26 Feb 2023
Source
Sickle Cell Society
Sickle Cell Society
Description
Sickle Cell Society is part-funded by Vertex and GBT to act as the group's secretariat From : 26/02/2023 To : 25/02/2024
Sickle Cell Society is part-funded by Vertex and GBT to act as the group's secretariat From : 26/02/2023 To : 25/02/2024
Value
£27,001
£27,001
Date
26 Feb 2022
26 Feb 2022
Source
Sickle Cell Society
Sickle Cell Society
Description
Sickle Cell Society is part-funded by Novartis, Vertex and Global Blood Therapeutics to act as the group's secretariat From : 26/02/2022 To : 25/02/2023
Sickle Cell Society is part-funded by Novartis, Vertex and Global Blood Therapeutics to act as the group's secretariat From : 26/02/2022 To : 25/02/2023
Value
£37,501
£37,501
Date
26 Feb 2021
26 Feb 2021
Source
Sickle Cell Society
Sickle Cell Society
Description
Sickle Cell Society is part-funded by Novartis and Bluebird Bio to act as the group's secretariat From : 26/02/2021 To : 25/02/2022
Sickle Cell Society is part-funded by Novartis and Bluebird Bio to act as the group's secretariat From : 26/02/2021 To : 25/02/2022
Value
£33,001
£33,001
Date
26 Feb 2020
26 Feb 2020
Source
Sickle Cell Society
Sickle Cell Society
Description
Sickle Cell Society is part-funded by Novartis and Bluebird Bio to act as the group's secretariat From : 26/02/2020 To : 25/02/2021
Sickle Cell Society is part-funded by Novartis and Bluebird Bio to act as the group's secretariat From : 26/02/2020 To : 25/02/2021
Value
£24,001
£24,001
Date
7 Sep 2018
7 Sep 2018
Source
Sickle Cell Society
Sickle Cell Society
Description
Sickle Cell Society is part-funded by Novartis and Bluebird Bio to act as the group's (joint) secretariat From : 07/09/2018 To : 06/09/2019
Sickle Cell Society is part-funded by Novartis and Bluebird Bio to act as the group's (joint) secretariat From : 07/09/2018 To : 06/09/2019
Value
£13,501
£13,501
Date
7 Sep 2018
7 Sep 2018
Source
UK Thalassaemia Society
UK Thalassaemia Society
Description
UK Thalassaemia Society is funded by Novartis and Bluebird Bio to act as the group's (joint) secretariat From : 07/09/2018 To : 06/09/2019
UK Thalassaemia Society is funded by Novartis and Bluebird Bio to act as the group's (joint) secretariat From : 07/09/2018 To : 06/09/2019
Value
£13,501
£13,501
Date
7 Sep 2018
7 Sep 2018
Source
Sickle Cell Society
Sickle Cell Society
Description
Sickle Cell Society is part-funded by Novartis and Bluebird Bio to act as the group's secretariat From : 07/09/2018 To : 06/09/2019
Sickle Cell Society is part-funded by Novartis and Bluebird Bio to act as the group's secretariat From : 07/09/2018 To : 06/09/2019
Value
£13,501
£13,501
Date
7 Sep 2017
7 Sep 2017
Source
Novartis
Novartis
Description
Secretariat From : 07/09/2017 To : 30/11/2017
Secretariat From : 07/09/2017 To : 30/11/2017
Value
£1,501
£1,501
Date
7 Sep 2017
7 Sep 2017
Source
Sickle Cell Society
Sickle Cell Society
Description
Sickle Cell Society is part-funded by Novartis and Bluebird Bio to act as the group's (joint) secretariat From : 07/09/2017 To : 06/09/2018
Sickle Cell Society is part-funded by Novartis and Bluebird Bio to act as the group's (joint) secretariat From : 07/09/2017 To : 06/09/2018
Value
£13,501
£13,501
Date
7 Sep 2017
7 Sep 2017
Source
UK Thalassaemia Society
UK Thalassaemia Society
Description
UK Thalassaemia Society is funded by Novartis and Bluebird Bio to act as the group's (joint) secretariat From : 07/09/2017 To : 06/09/2018
UK Thalassaemia Society is funded by Novartis and Bluebird Bio to act as the group's (joint) secretariat From : 07/09/2017 To : 06/09/2018
Value
£13,501
£13,501
No direct financial benefits are on record for the Sickle Cell and Thalassaemia APPG